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Good Lord, I'm Scared Reading This Website!


AmyDel

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AmyDel Newbie

I was just diagnosed with Celiac last week. I'm 15 weeks pregnant with #5 & the only reason I got tested was b/c I had to have blood drawn anyway at my last OB appt & my oldest DD was diagnosed last month after a month of stomach pain.

I'm petrified of miscarriage & stillbirth - altho my other 4 were fine, big (8 to 9.5 lb) babies.

The GI Dr seemed to think that altho I'm asymptomatic, that I've had this for a while.

I'm trying to go gluten free - however this is quite a learning process. It just figures - I finally get over 9 weeks of constant nausea, finally have an appetite & 1/2 of what I normally eat is now off limits - - there is no justice! :rolleyes:


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mushroom Proficient

No need to be scared; just be happy you were diagnosed now rather than later. There's always a silver lining in there somewhere :rolleyes::D

No better time to start eating what is healthy for you and the new baby than right now :D --get him off to a good start! Fortunately, the food you should be eating is very nutritious and full of what baby needs; meat, fish, rice, fruits and vegetables, seeds and nuts. You are obviously already familiar with the gluten free diet from your daughter's diagnosis. Since your are asymptomatic you may not have done much damage to your villi and will probably handle dairy okay too. If you straighten up and fly right you really shouldn't worry too much about the baby being affected, being as he is four months now and you had no problems with the other children.

Good luck on your gluten free journey.

AmyDel Newbie
No need to be scared; just be happy you were diagnosed now rather than later. There's always a silver lining in there somewhere :rolleyes::D

No better time to start eating what is healthy for you and the new baby than right now :D --get him off to a good start! Fortunately, the food you should be eating is very nutritious and full of what baby needs; meat, fish, rice, fruits and vegetables, seeds and nuts. You are obviously already familiar with the gluten free diet from your daughter's diagnosis. Since your are asymptomatic you may not have done much damage to your villi and will probably handle dairy okay too. If you straighten up and fly right you really shouldn't worry too much about the baby being affected, being as he is four months now and you had no problems with the other children.

Good luck on your gluten free journey.

Thankfully I don't seem to be lactose intolerant - I'd really lose my mind if I had to give up cheese & milk!

I will miss my whole grains tho - I love Kashi products - - well, rather, I "loved" Kashi...

dream77 Apprentice

What are your test results like ?

Do you have antigliadin antibodies ?

I've been trying to find someone with only antigliadin igA and IgG markers set for celiacs but don't find anyone.

Take care

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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