Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Sad


Betty Boop

Recommended Posts

Betty Boop Rookie

I just found out that my little two-year old grandson had a high score on test for allergies to dairy and eggs. They'll now test him for celiac disease. They think there is a high probability he'll have that, too. I'm so sad for him, even though I'm sure his parents will make everything work. I'd love to know if anyone out there has a child with celiac and allergies to dairy and eggs. and how they make life work for their child. Any tips? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daphniela Explorer

I don't have those allergies neither does my child, but there is an egg replacer you can find at the health food store you can use in place of eggs that you would use in any recipe. You can also use 1 tablespoon of ground flaxseed mixed with 3 tablespoons of water to replace eggs in recipes.

For milk he can have soy milk. I heard that if you are intolerant to milk there is a high probablity that he will be intolerant to soy. If so, then he can drink rice milk (check labels for gluten) or almond milk (check labels for soy)

tarnalberry Community Regular

I'm gluten and dairy free, and can go long periods of time without eating eggs. Really, there are SO MANY foods out there that are WONDERFUL. Eliminating six foods from everything we can eat (wheat, barley, rye, oats, dairy, and eggs) means that he may not eat the same things you do, but he'll still have a wide variety of wonderful flavors to explore. Perhaps you can join him exploring the "unusual" foods that one might miss out on if they stick to just "the normal". :)

Betty Boop Rookie

Thanks. That's great news. I really appreciate it.

shayesmom Rookie
I just found out that my little two-year old grandson had a high score on test for allergies to dairy and eggs. They'll now test him for celiac disease. They think there is a high probability he'll have that, too. I'm so sad for him, even though I'm sure his parents will make everything work. I'd love to know if anyone out there has a child with celiac and allergies to dairy and eggs. and how they make life work for their child. Any tips? Thanks.

My daughter is in the same boat as well. We've been gluten, dairy and egg-free for over 5 years now. And it does get much easier to deal with over time.

The toughest thing to deal with is the fact that there are very few conventional foods that are safe. And school lunches? Forget it.

That being said, I can tell you that my daughter's friends prefer my cupcakes to theirs. I use The Gluten-free Pantry Decadent Chocolate Cake mix and substitute 1 cup of coconut milk + 1 TBSP lemon juice for the milk. And I then use 1/4 cup of unsweetened applesauce for each egg. I also use half applesauce, half oil where oil is called for. In sweet baked goods, applesauce, mashed banana or any pureed fruit can replace egg. In breads and non-sweet baked goods, Ener-G egg replacer, ground flax can both work. I also add unflavored gelatin to some items to help with binding.

The "worst" meal is breakfast. I've found that some vegan recipe sites can be really helpful to find alternative ways to make breakfast items. And for "cheese", you can often use ground cashews and/or nutritional yeast to help get that "cheesy" flavor. We have taken to eating some non-traditional foods for breakfast as well. Meatloaf for breakfast? Bring it on! LOL! It may be non-traditional....but if you think about it, it's better than the majority of cereals and breakfast bars being offered at the grocery store.

There are some tasty coconut-based yogurts as well as ice cream available as well. It's all about finding the alternatives that work for your family. I highly recommend a subscription to Living Without magazine to help get you started.

Juliebove Rising Star

My daughter is not celiac but is allergic to wheat. She was allergic to dairy and eggs. Has since outgrown them but has been told not to have them over twice a week now. So when I bake and cook, I generally do not use eggs or dairy. Mostly we reserve those things for meals out.

We use rice cheese for sandwiches and pizza. We get the vegan kind. It is soy free and dairy free. Not all rice cheese is dairy free so you have to check. For Parmesan we use a substitue from Allergy Foods. I get it online.

It is true that there is no safe school lunch. And other school things can be a pain. Seems there is always some occasion where there is food and she can't eat it.

juliasmith Newbie

This Might help you

Allowed Foods

amaranth

arrowroot

buckwheat

cassava

corn

flax

Indian rice grass

Job


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Betty Boop Rookie

Thanks so much, all of you. This really helps. I'll pass this info on to his parents. :)

Amyleigh0007 Enthusiast

Is it possible for your grandson to go on a rotation diet for the food allergies? That way he will still get to eat those problems foods, but on a rotation basis. My son is on a rotation diet for his food allergies and it is working fine. He eats the offending food every 3 or 4 days.

Mother of Jibril Enthusiast
I just found out that my little two-year old grandson had a high score on test for allergies to dairy and eggs. They'll now test him for celiac disease. They think there is a high probability he'll have that, too. I'm so sad for him, even though I'm sure his parents will make everything work. I'd love to know if anyone out there has a child with celiac and allergies to dairy and eggs. and how they make life work for their child. Any tips? Thanks.

What kind of symptoms does your grandson get when he eats those foods? If he had a "high score" on an allergy test then I'm guessing it was RAST (a blood test), but his parents need to consider his symptoms before deciding how careful they need to be. Just to give you an example...

My son is intolerant to dairy and has IgE allergies to peanuts and corn. Peanuts will send him into anaphylaxis (hives, vomiting, wheezing, etc...), so we're very, VERY strict about avoiding them. A taste of peanuts could mean a trip to the ER. Corn, on the other hand, is a totally different story. Corn gives him eczema and digestive symptoms, but it's not a life-threatening allergy. If he gets a little taste now and then, no big deal. His pediatric allergist told us that researchers at Tulane did a study on corn allergies recently and found that corn is very unlikely to cause anaphylaxis. So... it's a great candidate for a rotation diet (although we haven't tried that yet).

Although it caused pretty bad symptoms (eczema, vomiting, green diarrhea with streaks of blood), the dairy (casein) intolerance is something our son might actually grow out of. We're supposed to start giving him a little dairy starting at 18 months (coming up soon!) to see if he can tolerate it... the idea is that maybe his system just needed extra time to start making the appropriate enzymes. An enzyme deficiency is a LOT different from having an allergy. (BTW... we also have him off gluten as a precaution... he eats a lot of rice, meat, fruits and vegetables :)... quite the healthy diet for a little boy.)

Anyway... good luck! It might not be as hard as you think to change your grandson's diet. In my experience, after a few months it becomes second nature.

  • 3 weeks later...
juliasmith Newbie
Thanks so much, all of you. This really helps. I'll pass this info on to his parents. :)

ur welcome betty :)

Open Original Shared Link | Open Original Shared Link

kiwi-mum Newbie

My 3 yr old DD is anaphylactic to eggs and nuts, and minimally to wheat, dairy, pork, beef and the cacao bean - the later is included minimally in her diet as the reaction so far has been limited to bad excema - so far. Be careful because allergy testing does not indicate the level of reaction because that next or the 10th exposure might be worse than excema - my DD is attached at the hip to her epi pen and antihistamine for that reason.

anyway - we have just completed the blood test today for Celiac - while I can't begin to imagine adding in such a major to the restricted diet she already has, I never thought I would have survived this far and as daunting as going gluten free would be I know we can get through it.

It is really important to read read read labels on food everytime you food shop and from what I have learned the hard way - just because egg or another allergen is not in one brand doesn't mean it is not in another of the same food. Also it is important to learn what egg (and other allergens) can also be called in labelling - who would have known egg could have so many other names!!!

On a positive note - I do not know any other 3 yr old who knows such a great variety of fruit and veges even if she doens't like them all (LOL but she tried and thats whats important)

good luck - knowledge is power and what helps me sleep better at night :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.