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Celiac Weight Gain And Thyroid


Sulevismom

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Sulevismom Apprentice

Hi all,

I've been gluten free now for almost 3 months (except for the unfortunate accidents), after having received inconclusive biopsy results and negative blood work. In September last year, I dropped about ten pounds very quickly, and then started having more noticable bloating, cramps, anxiety, depression, etc, (the typical celiac symptoms). What seems strange to me is that as my symptoms got worse, I gained more and more weight, and I've had to work hard to keep it down to a comfortable level (whereas other celiacs seem to have the opposite problem). I'm also breast-feeding a one and a half year old, which you would think would make it fairly easy to stay slim. I've just been reading about hypo-thyroidism and wondering if I might have it, and if there might be a connection between a nutrient deficiency due to celiac disease. What do you all think?


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JesikaBeth Contributor

I was diagnosed as having Hashimotos Thyroiditis (Autoimmune Hypothyroidism) and shortly thereafter was diagnosed as having Celiac Disease. Apparently, they run in clusters and are very common in one another.

maile Newbie
Hi all,

I've been gluten free now for almost 3 months (except for the unfortunate accidents), after having received inconclusive biopsy results and negative blood work. In September last year, I dropped about ten pounds very quickly, and then started having more noticable bloating, cramps, anxiety, depression, etc, (the typical celiac symptoms). What seems strange to me is that as my symptoms got worse, I gained more and more weight, and I've had to work hard to keep it down to a comfortable level (whereas other celiacs seem to have the opposite problem). I'm also breast-feeding a one and a half year old, which you would think would make it fairly easy to stay slim. I've just been reading about hypo-thyroidism and wondering if I might have it, and if there might be a connection between a nutrient deficiency due to celiac disease. What do you all think?

Sulevismom, your story could be mine, except for the breastfeeding part my youngest is 7 ;) , last year dropped 25 lbs in short order (intentionally) but the neuropathy had started to show in February, tingling fingers, numb toes etc. D, anxiety, cramping, bloating and major abdominal pain showed up with their partner sudden, rapid weight gain in August. it has been so frustrating!!! I went to Hawaii ate and drank without too much care and did not gain an ounce!!

and then 2 weeks after returning as the celiac symptoms ramped up the weight gain began and always in 10-12 lb spurts over 3 days. By Mid October I was up 20lbs, and had lost 1 lb of muscle (conveniently had had 2 dexa scans, 1st in February, 2nd in October) despite increased exercise.

I've since put on another 15 lbs, my hair is thinning dramatically as well as falling out; after a bath my skin sheds like a snake, C has returned (despite taking myself of dairy), if I don't take an over the counter thyroid supplement I have very dry throat (to the point where it's difficult to speak) & have to get up in the middle of the night to take a hot bath just to warm up. I've dropped my calories to the 1000/day mark and reduced any grain exposure to 1-2 times per week just to maintain slow the weight gain. :blink:

my GP is finally sending me to an endocrinologist to see what's happening as all the conventional tests show I'm fine (low tsh etc) *sigh* I just hope s/he is able to figure something out.

Sulevismom Apprentice

Thanks for your responses!

Jessica: Did you also experience weight gain as a result of thyroid issues?

Maile: Good thing your doctor is finally listening to you. Good luck!

JesikaBeth Contributor
Thanks for your responses!

Jessica: Did you also experience weight gain as a result of thyroid issues?

Maile: Good thing your doctor is finally listening to you. Good luck!

Yes I did experience weight gain, my weight evened out but losing it has been nearly impossible <_<

pele Rookie

Check out this website:

Open Original Shared Link

It mentions low TSH and low t4 as symptoms of adrenal fatigue and hypothyroidism.

Of course if you haven't aleady read

Open Original Shared Link

then you've got some reading to do! Good luck!

Sulevismom Apprentice
Yes I did experience weight gain, my weight evened out but losing it has been nearly impossible <_<

I had my thyroid tested, for hypo and hyper, but the results showed that I am completely normal. Maybe I just eat too much chocolate! ;)


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    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
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      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
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