Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Weight Gain And Thyroid

Sulevismom

Recommended Posts

Sulevismom Apprentice
Sulevismom
Posted

Hi all,

I've been gluten free now for almost 3 months (except for the unfortunate accidents), after having received inconclusive biopsy results and negative blood work. In September last year, I dropped about ten pounds very quickly, and then started having more noticable bloating, cramps, anxiety, depression, etc, (the typical celiac symptoms). What seems strange to me is that as my symptoms got worse, I gained more and more weight, and I've had to work hard to keep it down to a comfortable level (whereas other celiacs seem to have the opposite problem). I'm also breast-feeding a one and a half year old, which you would think would make it fairly easy to stay slim. I've just been reading about hypo-thyroidism and wondering if I might have it, and if there might be a connection between a nutrient deficiency due to celiac disease. What do you all think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JesikaBeth Contributor
JesikaBeth
Posted

I was diagnosed as having Hashimotos Thyroiditis (Autoimmune Hypothyroidism) and shortly thereafter was diagnosed as having Celiac Disease. Apparently, they run in clusters and are very common in one another.

maile Newbie
maile
Posted
Hi all,

I've been gluten free now for almost 3 months (except for the unfortunate accidents), after having received inconclusive biopsy results and negative blood work. In September last year, I dropped about ten pounds very quickly, and then started having more noticable bloating, cramps, anxiety, depression, etc, (the typical celiac symptoms). What seems strange to me is that as my symptoms got worse, I gained more and more weight, and I've had to work hard to keep it down to a comfortable level (whereas other celiacs seem to have the opposite problem). I'm also breast-feeding a one and a half year old, which you would think would make it fairly easy to stay slim. I've just been reading about hypo-thyroidism and wondering if I might have it, and if there might be a connection between a nutrient deficiency due to celiac disease. What do you all think?

Sulevismom, your story could be mine, except for the breastfeeding part my youngest is 7 ;) , last year dropped 25 lbs in short order (intentionally) but the neuropathy had started to show in February, tingling fingers, numb toes etc. D, anxiety, cramping, bloating and major abdominal pain showed up with their partner sudden, rapid weight gain in August. it has been so frustrating!!! I went to Hawaii ate and drank without too much care and did not gain an ounce!!

and then 2 weeks after returning as the celiac symptoms ramped up the weight gain began and always in 10-12 lb spurts over 3 days. By Mid October I was up 20lbs, and had lost 1 lb of muscle (conveniently had had 2 dexa scans, 1st in February, 2nd in October) despite increased exercise.

I've since put on another 15 lbs, my hair is thinning dramatically as well as falling out; after a bath my skin sheds like a snake, C has returned (despite taking myself of dairy), if I don't take an over the counter thyroid supplement I have very dry throat (to the point where it's difficult to speak) & have to get up in the middle of the night to take a hot bath just to warm up. I've dropped my calories to the 1000/day mark and reduced any grain exposure to 1-2 times per week just to maintain slow the weight gain. :blink:

my GP is finally sending me to an endocrinologist to see what's happening as all the conventional tests show I'm fine (low tsh etc) *sigh* I just hope s/he is able to figure something out.

Sulevismom Apprentice
Sulevismom
Posted
  • Author

Thanks for your responses!

Jessica: Did you also experience weight gain as a result of thyroid issues?

Maile: Good thing your doctor is finally listening to you. Good luck!

JesikaBeth Contributor
JesikaBeth
Posted
Thanks for your responses!

Jessica: Did you also experience weight gain as a result of thyroid issues?

Maile: Good thing your doctor is finally listening to you. Good luck!

Yes I did experience weight gain, my weight evened out but losing it has been nearly impossible <_<

pele Rookie
pele
Posted

Check out this website:

Open Original Shared Link

It mentions low TSH and low t4 as symptoms of adrenal fatigue and hypothyroidism.

Of course if you haven't aleady read

Open Original Shared Link

then you've got some reading to do! Good luck!

Sulevismom Apprentice
Sulevismom
Posted
  • Author
Yes I did experience weight gain, my weight evened out but losing it has been nearly impossible <_<

I had my thyroid tested, for hypo and hyper, but the results showed that I am completely normal. Maybe I just eat too much chocolate! ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748
    V Arnold
    Newest Member
    V Arnold
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...