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Who Uses A Dietician/nutritionist?


JBaby

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JBaby Enthusiast

Did you or do you have one? Did it help?


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Amyleigh0007 Enthusiast

I spoke to one on the phone after my son was diagnosed and she gave me some websites to check out and wanted to schedule an appointment. I declined. My son is so picky about food and I didn't want him to feel like he was going to be forced to eat all different foods. We started slowly, substituting the foods he actually ate (chicken nuggets, mac and cheese, and that's about it) with gluten free versions. We did just fine.

JillianLindsay Enthusiast

I saw a dietitian last week (~3 weeks after my Dx). I had already done a lot of research on my own and she really couldn't tell me anything new. We just went through my diet and made sure I was following the food guide. Luckily it was covered by insurance, so I didn't pay to be told I was already doing everything right.

wendstress Rookie
I saw a dietitian last week (~3 weeks after my Dx). I had already done a lot of research on my own and she really couldn't tell me anything new. We just went through my diet and made sure I was following the food guide. Luckily it was covered by insurance, so I didn't pay to be told I was already doing everything right.

DITTO! She said we don't see too many Celiacs.... Best advice she gave me was to join the local Celiac Support Group. THEY have been extraordinarily helpful!!!!!!

cat3883 Explorer

I was fortunate to find a nutritionist in my area that has Celiac Disease. She has been very helpful. I spoke to a dietician before I met my nutritionist and she said she wouldn't be able to help me.

darlindeb25 Collaborator

I would be a dietician's nightmare! :lol: I am my own dietician. My sister is a dietician, and celiac, so I do have someone to discuss things with. Of course, reading in all these forums, often times I am telling her something she didn't know! :P

Lisa16 Collaborator

I had an excellent experience with one a few years back. He was extremely knowledgeable about celiac and we did a specific carb diet type thing for awhile. He was very supportive and I learned a lot and lost weight (20+ lbs.). Kept a journal, became aware of other allergies and really started to recover. I loved my guy. He was technically a specialist in diabetes, but he helped me.

I think that anybody who gets a celiac diagnosis should automatically be referred to somebody who knows about the diet. Unfortuantely, I don't think there are very many of those out there. I got lucky.

I hope you get lucky too!


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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
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    • par18
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