Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Two Phrases I Don't Want To Say Anymore...

Tabasco

Recommended Posts

Tabasco Apprentice
Tabasco
Posted

It seems that for as long as I can remember I have said "My belly hurts" and "I'm so tired". Almost every day of my life. :( And ya know, it kind of sucks.

To think that just changing my diet could possibly "cure" me is an unimaginable concept.

To think that I could actually feel "good"...really feel good for once. Man, that would be priceless.

Here's hoping.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted
It seems that for as long as I can remember I have said "My belly hurts" and "I'm so tired". Almost every day of my life. :( And ya know, it kind of sucks.

To think that just changing my diet could possibly "cure" me is an unimaginable concept.

To think that I could actually feel "good"...really feel good for once. Man, that would be priceless.

Here's hoping.

I'll second that!.. I just learned to live with all the dis-conforts, but it was the many years of the DH itch that finally got diagnosed 2 months ago.. Life is getting a little better each day..

runningcrazy Contributor
runningcrazy
Posted
It seems that for as long as I can remember I have said "My belly hurts" and "I'm so tired". Almost every day of my life. :( And ya know, it kind of sucks.

To think that just changing my diet could possibly "cure" me is an unimaginable concept.

To think that I could actually feel "good"...really feel good for once. Man, that would be priceless.

Here's hoping.

Have you just been diagnosed or are you giving it a go yourself? Either way good luck and I wish you good health and hope your stommach issues VANISH!

Were working on figuring out mine, after 2 negative blood tests and doctors who treated us like I'm stupid and making it up, I hope enterolab will give me some info, although i know it wont diagnose me I'd like to have some insight on genes, etc..

ravenwoodglass Mentor
ravenwoodglass
Posted

Sure do know. I hope the diet helps you. The diagnosis process can be a long and hard one for some of us. It sure was for me. LOL If the diet helps it can seem almost miraculous the difference in the way we feel. It is hard at first and there is a lot to learn but it is so worth it if gluten is causing the issues.

Tabasco Apprentice
Tabasco
Posted
  • Author

No diagnosis yet and I don't want to talk myself into having celiac disease or GS. I know how I am. A little bit of knowledge can be dangerous! It's just eery how I have so many of the "symtoms" that I am reading about.

My latest "thing" is completely forgetting to finish a word or a thought. I'll start a sentence and just stop. My husband will look at me like "well?" and I just can't remember the word.

I do have ADD that i am not treating because the meds cause headaches.

Ya know...now that I think about it...at my last visit with my rheumatologist, I was told that I had very low vitamin D deficiency (22 ng/ml) and I think she also told me that my B12 was low too.

I was given a prescription for 50,000 units of Vit D and she told me to buy OTC calcium and B12.

Putting all of the pieces together brings the big picture together, doesn't it?

I'll get there.

Hurry up 8/31!!!!!

ang1e0251 Contributor
ang1e0251
Posted

Good luck on your testing! I hope you'll give the gluten-free diet a test run even if your tests are negative. That's the only way you'll know.

The phrase I never want to say again is "I'm so tired of being tired."

SunnyJB Newbie
SunnyJB
Posted

Completely understand your frustration!!

Here's to finding a way to live without pain!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ranger Enthusiast
ranger
Posted

Don't let the test results stop you from trying the diet. I had negative bloodwork ( had been gluten free for a month - duh, doc), and negative endo ( quick look - 1 biopsy), but went on the diet anyway. I knew my body. Am feeling better every day. Try the diet for a few months and see if thats what it is. Good luck.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.