Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Snacks Are Safe?


jasonD2

Recommended Posts

jasonD2 Experienced

there are tons of potato & corn chips & other snacks that are labeled gluten free, but people are still getting sick from them. bottom line, whats safe?

I usually eat tostitos & fritos and most of the popular potato chips, but now im finding that they are not made on dedicated lines. is there ANYTHING safe to eat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
is there ANYTHING safe to eat?

No, there is NOTHING you can buy that is GUARANTEED to be safe to eat.

We each make out own choices about how much risk we will accept. No company will GUARANTEE that their products are 100% gluten-free, because they all buy at least some of their ingredients from third parties, and do not test them for possible cross contamination with gluten. So there are no guarantees because they will not accept legal responsibility for a possible error by their third-party suppliers.

You must make your own decisions about what is "safe enough" for you. Disclosure of shared equipment or facilities is voluntary. If you see it, fine, but if it is not there don't make any assumptions.

Any manufacturer could, one day, receive a contaminated batch of a normally gluten-free ingredient. Unless they test it, and most don't, then the final product would contain undisclosed gluten.

hannahp57 Contributor

sorry to say the previous poster was absolutely correct. every person is sensitive to a different level and some things bother us more than others.

for instance, i am not a super sensitive but if i get a little bit of cross contamination i usually have a pretty good idea because i will feel a lot of pressure in my stomach and a small cramping feeling in my stomach. nothing serious but it makes me uncomfortable enough that i will not eat that again. tostitos do not give me problems but lay's chips have in the past. i eat cocoa pebbles and fruity pebbles with no problems along with rice chex. but for some reason the flavored chex cereals give me issues. you will soon learn how sensitive you are... and if you get a reaction from a product quit consuming it for a while. you may have gotten a contaminated bag. if you buy it again a few weeks later and have the same issues then maybe you are sensitive enough that they're facility is not safe enough to keep you safe. some even react to gluten free products because they are not required to test down to 0ppm. for some 5 and 10 ppm is still too much. but if you are that sensitive you will probably be able to tell with every product you buy

jasonD2 Experienced

this is very disconcerting because even if you eat something that doesnt necessarily give you symptoms, it could still be doing damage and keeping your anti-gliadin antibodies elevated - the only safe way to live is to just prepare all your own food with raw ingredients, and obviously most people cant live like that- i know i cant. this sucks for me because i dont even get real symptoms so i dont know what im putting in my body

tarnalberry Community Regular

jason, this is where you have to learn that you can only do the best you can, and can't be perfect. could something still go wrong? sure. but you could obey all the rules of the road and still get into a fatal car accident. heck, you could never drive and still be killed in a car (as a passenger) or by a car (as a pedestrian). *nothing* in life is guaranteed, so you learn to develop your judgment, learn to gauge risks, and learn to make choices about what risks you are willing to take based on the judgment you have of the overall scenario.

captaincrab55 Collaborator

I've been using Sharkies as a snack. It's labeled as, "Organic Energy Sports Chews"... They are also labeled as Gluten Free, Wheat Free, Dairy Free & Vegetarian.

hannahp57 Contributor

i cant say for sure....(as i am not an expert) but i am thinking if you dont have overt symptoms then you are probably not a super sensitive. again, i could be wrong! but you will probably be fine with products labeled gluten free and most of the products that have been proven to be made on dedicated lines. i am not what i consider super sensitive. my only allergies are gluten intolerance, MSG and artificial sweetners. i eat gluten free labeled products and a lot of mainstream products as well and have been very good about not getting glutened. and i have the digestive symptoms predominantly so i KNOW when i have been glutened. read labels and check with the maunfacturer and you'll be fairly safe. mishaps will still happen but i think as you get used to this you'll do fine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.