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Nyt: The Expense Of Eating With Celiac Disease


The Fluffy Assassin

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The Fluffy Assassin Enthusiast

By LESLEY ALDERMAN

Published: August 14, 2009

You would think that after Kelly Oram broke more than 10 bones and experienced chronic stomach problems for most of his life, someone (a nurse? a doctor?) might have wondered if something fundamental was wrong with his health. But it wasn


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celiac-mommy Collaborator

We actually spend much less than before diagnosis. Very little eating out, cooking from scratch, not buying crap food from the grocery store, impulse buys, etc. It's been great for us in many different ways!

Mskedi Newbie

I liked the article -- the only word I can think of to describe it is calm. It doesn't make the diet sound impossible, nor does it try to get controversial, even though it mentions how care in the US is woefully behind care in other countries. Overall, it sounds doable despite the costs involved, and I like that it ended on a positive note.

mommida Enthusiast

When we were just one the gluten free diet ~ it wasn't so expensive. Now that we are avoiding the full top eight and peas and chick peas ~ YIKES! It's nightmare expensive.

How ironic ~ is food with less ingredients can cost that much more!!?

ranger Enthusiast
We actually spend much less than before diagnosis. Very little eating out, cooking from scratch, not buying crap food from the grocery store, impulse buys, etc. It's been great for us in many different ways!

Ditto for me. I cook a lot, but don't spend much more. You have to be creative and inventive. Or spend a lot of money.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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