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Gluten Free Oats - Affordable, Safe Brand Recommendations?


waitingdorothea

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waitingdorothea Explorer

Since I am only gluten-intolerant, I thought I'd give gluten free oats a shot (I think that the one-year rule doesn't apply to me since a biopsy showed no damage, right?). Can anyone recommend a safe, affordable brand I could purchase online?

Fall would be very strange without oatmeal!


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Puddy Explorer

I've used both Gifts of Nature and Cream Hill Estates brands. I bought both brands on-line, but definitely plan on spending more than you would in the grocery store.

celiac-mommy Collaborator

Bob's RedMill is what we buy. They are the cheapest of our options here, but the mill is here in town... ;)

hannahp57 Contributor

i buy bob's red mill. they are my favorite oas ever (including my pregluten free days when i used quaker). I made no bakes a few months ago with them and found myself just putting an or two in my mouth raw here and there. good flavor and they are nice and thick which makes for chewy granola bars or oat cookies:)

hth

JennyC Enthusiast

You many still have celiac even though your biopsy was normal, it's called latent celiac disease. This is my biggest pet peeve. Gastroenertologists can be so set in their ways! :ph34r:

"Latent celiac disease is defined by a positive serology but no villous atrophy on biopsy. These individuals are asymptomatic, but later may develop symptoms and/or histologic changes."

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Back to the subject at hand. :) I buy Bob's Red Mill gluten-free rolled oats in the 25 pound bag. They are very affordable that way.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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