Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Or Can Nerves Affect Celiac?

Del

By Del
in Coping with Celiac Disease

Recommended Posts

Del Rookie
Del
Posted

I really don't want to add a sob story but I do need to tell you what's going on for you to be able to help me. The last three weeks have been HX#*.....my husband of 34 years has been diagnosed with Stage III3 B Lung Cancer...supposedly inoperatable and incurable.....it's been doctors, broncho/med, start of radiation, more doctors and plenty of bad news piled on top of more bad news. On top of that my stomach has gone crazy....diarreha everyday. I need Immodium just to get thru the day of meetings. Is this normal, as if anything in my life is normal right now? Any suggestions? I really don't care about myself....but I want to and have to be there every step of the way for my husband. Any suggestions would be appreciated. Thanks in advance....Del

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Do you have Celiac disease?

Nerves, stress, trauma etc... can all be causes of a "nervous stomach" regardless of Celiac. With everything you're going through, I think that's a very possible explaination.

Good luck to you and your husband. I'm sorry that you're having to go through this.

Del Rookie
Del
Posted
  • Author

Yes, I do have Celiac.....thank you so much for your kind reply!!!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Del,

My heart goes out to you! Please accept my prayers for strength during this time.

Gfresh404 Enthusiast
Gfresh404
Posted

I'm sorry to hear that. But I think I might be able to be of some help. I remember my mom telling me that when her dad died her stomach was so upset she could not eat. She said peppermint tea helped a ton. It is my understanding that there are certain compounds in peppermint that calm, sooth, and relax the bowels.

And if you do not want to drink tea you could take enteric-coated peppermint capsules. They are supposedly a very effective alternative treatment for IBS. They are also fairly safe, I have taken them myself when I had severe IBS symptoms and they helped a ton.

Again, I am sorry for what you have to go through. I really do sympathize. Good luck and I hope you and your husband feel better.

jststric Contributor
jststric
Posted

I have nothing to add except that I'm so sorry for all you and your hubby are going thru! I'll keep you in my prayers! Oh....ginger is good for tummy also, if you can tolerate it.

Del Rookie
Del
Posted
  • Author

Thank you for your kind words and your suggestion....will try that now!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Del Rookie
Del
Posted
  • Author

Thank you so much....especially for the prayers!!! They are appreciated more than I can say!

Del Rookie
Del
Posted
  • Author

Thank you so much...please keep praying!!! That's the only thing that is going to help us thru this!

Also thanks for reminding me of the ginger....it has helped me in the past!

mommida Enthusiast
mommida
Posted

Stress makes EVERYTHING worse.

My thoughts and prayers are with you!

When my stomach has been extremely out of order, bananas help get some food down and stay put. A baked potato can be a meal in a pinch.

Del Rookie
Del
Posted
  • Author

Thank you so very much for your thoughts, prayers and suggestions!!

ranger Enthusiast
ranger
Posted

Del,

My heart and prayers go to you and your husband, and an extra prayer that the doc is wrong. That kind of stress can certainly cause the digestive problems that you are experiencing. I'm sure others have better advice on what to take or do. I just wanted you to know there's a bunch praying for you, and I believe there is power in collective thaught. God be by your side.

Susan

Del Rookie
Del
Posted
  • Author

I can't thank you enough, Susan, for your prayers....we are relying on the prayers of many!!!

Our anthem/battle cry is this"

Lord, this time you've given us a mountain

A mountain we're going to climb

Lord, please carry Bruce up that mountain

To the top and down the healing side!

Hope everyone on here sees that and joins us in the battle!!!

Del

Three Ds Newbie
Three Ds
Posted

Del, I have no suggestions to add; it sounds like others have had good ideas to offer. I just wanted to say that you will be in my prayers also. And positive thoughts are coming your way for a much better than expected out come for you and your husband. Hugs to you both.

Del Rookie
Del
Posted
  • Author

Thank you for the caring thoughts and prayers!

jerseyangel Proficient
jerseyangel
Posted

Del, I'm so sorry to hear about all of this. The suggestions given for your GI issues are all good ones and I hope that you can get some relief from that. Yes, stress can affect even the strongest stomach :(

Please know that you and your husband will be in my thoughts and prayers. I wish him the strength to fight and fight hard!

Take care :)

Del Rookie
Del
Posted
  • Author

Thank you so much for your kind thoughts and prayers!!!

I didn't come on here today looking for support but I sure found it....thank you all so much!!!

Keep praying!

ang1e0251 Contributor
ang1e0251
Posted

Just to add to the mention of peppermints. I just eat peppermint candies, portable and soothing. So sorry this mountain has been put into your life. I'll visualize you both reaching the summit and heading down the healing side.

Del Rookie
Del
Posted
  • Author

Thanks for the tip and bless you for the kind words! Keep praying please!!!

Del

Gemini Experienced
Gemini
Posted
I can't thank you enough, Susan, for your prayers....we are relying on the prayers of many!!!

Our anthem/battle cry is this"

Lord, this time you've given us a mountain

A mountain we're going to climb

Lord, please carry Bruce up that mountain

To the top and down the healing side!

Hope everyone on here sees that and joins us in the battle!!!

Del

What a beautiful verse, Del! I wish much strength and all the healing powers for you and your hubby. Take a deep breath and go for walks when the stress builds up....it really does help. Bless you both.

JNBunnie1 Community Regular
JNBunnie1
Posted
What a beautiful verse, Del! I wish much strength and all the healing powers for you and your hubby. Take a deep breath and go for walks when the stress builds up....it really does help. Bless you both.

Just don't walk too far from the house.... speaking from experience...

When my father was diagnosed with cancer, I went through a 96 pill bottle of imodium in three weeks. Didn't help much, but it was all I had at the time. I can tell you that my mother, who was my father's caretaker during his illness until his death, very much needed me. She needed my support, the things I did around the house while they were gone, and for me to be of some help taking care of Daddy, because it made him feel better to have me there too. Do you have anyone in your life who can be YOUR helper, Del? I say ask, because it really will help relieve the burden, especially with your food restrictions.

A few links to herbal stuff that may help your tummy more than Imodium.

Open Original Shared Link

I read through this one and the nutrition and supplement advice is very good, scroll down to get to it.

Open Original Shared Link

Gemini Experienced
Gemini
Posted
Just don't walk too far from the house.... speaking from experience...

When my father was diagnosed with cancer, I went through a 96 pill bottle of imodium in three weeks. Didn't help much, but it was all I had at the time. I can tell you that my mother, who was my father's caretaker during his illness until his death, very much needed me. She needed my support, the things I did around the house while they were gone, and for me to be of some help taking care of Daddy, because it made him feel better to have me there too. Do you have anyone in your life who can be YOUR helper, Del? I say ask, because it really will help relieve the burden, especially with your food restrictions.

A few links to herbal stuff that may help your tummy more than Imodium.

Open Original Shared Link

I read through this one and the nutrition and supplement advice is very good, scroll down to get to it.

Open Original Shared Link

Not really sure what your point was but taking walks is a huge stress reliever and gives a person some breaks from all the daily regimens that must be followed during treatments. You need to step outside and deep breath good air and have the sunshine hit your face for half an hour or so. Obviously if a person is having diarrhea, they should seek medical intervention because 3 weeks of that is not good in and of itself.

JNBunnie1 Community Regular
JNBunnie1
Posted
Not really sure what your point was but taking walks is a huge stress reliever and gives a person some breaks from all the daily regimens that must be followed during treatments. You need to step outside and deep breath good air and have the sunshine hit your face for half an hour or so. Obviously if a person is having diarrhea, they should seek medical intervention because 3 weeks of that is not good in and of itself.

My point was that if you have intermittent diarrhea and you're a half mile from the house, you're not gonna make it back in time if you have to go. I was not disputing the therapeutic nature of the outdoors, in fact I agree with you. Such therapy becomes ineffective when you've crapped your pants. I was merely recommending she stay close to home.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.