Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want To Go To College...what Should I Do?


Lilymylove

Recommended Posts

Lilymylove Newbie

I just found out I have Celiacs. and I also finally found a college I would love to go to... What should I do ? Being gluten free is obviously very difficult but it is absolutely necessary. Can i do this at college? The college is a small liberal arts school and I hear Celiac Disease is under the disability act? What should I do about food in college??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

Hi Lilly. Where there's a will, there's a way. Celiac Disease is something you can *live* with. It's frightening at first, but the more you know, the easier it is to deal with. There are so many things that you CAN eat.....focus on that instead of what you can't. It's not always convenient, but I've found I'm much better off without pre-packaged, pre-prepared, or fast foods.

Will you be staying on-campus?, or a room near by? If you can live with kitchen facilities....especially one that you can control, would make life much easier for you at college. I know that you'll be getting some excellent advise here, and a lot of support. Good luck! :)

lovegrov Collaborator

Generally speaking you're probably better off at a smaller college. The college I attended (pre-celiac days) has about 1,500 students and they are now very aware of diet restrictions, including celiac. The huge places that serve thousands per meal have a very hard time keeping track of what's happening, although I know there are ones that try very hard.

It's your choice as to whether to apply and then talk to them if you're accepted or talk to them first. However, you HAVE to talk to them one way or another. I wouldn't bring up the ADA first thing. I'm no legal expert, but I'm pretty sure the ADA doesn't mean they have to guarantee gluten-free meals. They could instead just let you out of the required meal contract and deal with meals on your own.

richard

Shess0816 Apprentice
I just found out I have Celiacs. and I also finally found a college I would love to go to... What should I do ? Being gluten free is obviously very difficult but it is absolutely necessary. Can i do this at college? The college is a small liberal arts school and I hear Celiac Disease is under the disability act? What should I do about food in college??

Yes, you can absolutely do it in college! If you found a college you really want to go to and think you'll really enjoy, by all means do not let this stupid gluten thing hold you back! I don't know what kind of housing accomodations your school has, but if you could find someplace to live where you have a kitchen to cook in -- like a small apartment by yourself or if the dorms are apartment style. That way at least you can cook meals for yourself and make sure you get enough to eat each day. It will be harder being in college because friends will want to go out to eat and you will not always be able to eat with them, but I think you'll find that if you plan ahead and always remember to take gluten free snacks with you everywhere you go, it's definitely something you can manage! I would maybe try calling the manager for the cafeteria of the school, let them know you are considering going to that school and tell them about your dietary restrictions. Then see if they have any ways of helping you out with that. You may find that they have several other people on campus with similar situations and are able to accomodate them.

One idea for food that is really easy -- there are rice noodle bowls made by Thai Kitchen. The ones that are gluten free say gluten free on the front of the package. They are SUPER easy to make and to take with you wherever you go. All you have to do is add hot water, pour in the seasoning packets, let it sit for 5 min so the noodles soften, and its ready to eat. I take these with me on car trips and when I know we'll be going places they won't have food for me.

Lilymylove Newbie

The college only has about 400 kids attending. St. John's College. I have talked to admissions people there already and they were super nice. The college is a tightly knit community. The campus is in Annapolis Maryland though and I don't know if the college would be able to accommodate me as far as a dorm with a kitchen.

happygirl Collaborator

Here is some info that may be helpful to you and/or your college. Other colleges deal with gluten free students very well. Good luck!

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

emili1242 Newbie

hello!

i thought i would share my advice as someone who is currently in college and dealing with celiac. i actually go to college in towson, md...im not quite sure how far that it from annapolis. anyway, i was diagnosed at the beginning of this semster, so ive been working on how to deal with it. I dont have a kitchen in my room, but I do have a stove and oven in the dorm common room (most colleges have this). I brought my own pots and pans from home and i have a supply of different gluten free foods that i can cook for myself. I highly recommend doing something like this, because as helpful as the dining service can be, there is always a chance of cross contamination or someone not knowing exactly what is in the food. Ive already been glutened a few times just because a cook didnt really know what was in the food. im not going to lie, its hard to do, but its not impossible. im on the lowest possible meal plan my school offers so that i can cook some of my own meals and not waste money. My friends are good about going out to eat and they try to pick restaurants they know i can go to. i would just recommend talking to your dining service about celiac to make sure they know you have it and you have very specific dietary restrictions. and like i said before try to bring pots and pans so you have the option of cooking yourself.

good luck with college!

emily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kera87 Newbie

You can absolutely do it in college, I just graduated after getting diagnosed 2 and a half years ago. The thing I can't stress enough is to be open and honest to everyone. Talk to the cafeteria staff as soon as you know you will be attending so they can help you plan out meals. They will be able to accomidate you, they have to! Be honest to new friends, the sooner they know, the more normal it will become to them - before you know it they'll be picking you up everything gluten-free they see haha. (my friend once got me gluten-free parmasean cheese from the grocery store she saw...so random but so thoughtful haha).

I would suggest asking for a dorm that has a kitchen, maybe you could get an apartment on campus? If not don't worry...you'll have a microwave in your room im sure, and you can stock up on lots of frozen dinners like Amy's. I didn't live in a dorm when I was diagnosed but if I did my parents said they would have bought me my own fridge/freezer and a microwave which is the best idea.

I'm not sure if you will be drinking/going out to dinner at all but those are probably going to be the most annoying things. Suggest restuarants you know will have something you can eat...if not, a lot of restuarants will have things like rice, mashed potatos, baked potatos and meat - just ask for things unseasoned and plain. You'll be fine, I promise :)

jeharries Newbie

I am in graduate school now, at Brandeis University in MA. The store where you can buy food there actually stocks gluten free frozen food (amy's and others) as well as other items that are clearly labeled gluten free. I also heard that the school has accommodated kids w/celiac before in terms of taking them to buy special food when there was nothing in the dining halls, etc. I would think a smaller school would DEFINITELY work with you.

Kylie Explorer

I have had Celiac my entire college career and have always found a way to make it work. I have a team of personal chefs on campus that deal only with kids with food allergies and I eat better at school than I do at home. I lived in a dorm both my freshman and sophomore years without a personal kitchen and made it work. We had a dorm kitchen that was disgusting, but it did cook food. I live in an apartment now and I still eat lunch on campus every day because I love the food. I am registered in the Office of Disabilities for my Celiac and for a neurological disorder that I have and it was an easy process. The people in ODS are really there to help you. I live in the boonies (Harrisonburg, VA) and I have found natural food stores and a local grocery store that carries gluten free food. I'm sure in Annapolis they can accomodate you. Have fun, Annapolis is wonderful, will always be a USNA girl at heart!

  • 2 weeks later...
Fitze082 Newbie
I have had Celiac my entire college career and have always found a way to make it work. I have a team of personal chefs on campus that deal only with kids with food allergies and I eat better at school than I do at home. I lived in a dorm both my freshman and sophomore years without a personal kitchen and made it work. We had a dorm kitchen that was disgusting, but it did cook food. I live in an apartment now and I still eat lunch on campus every day because I love the food. I am registered in the Office of Disabilities for my Celiac and for a neurological disorder that I have and it was an easy process. The people in ODS are really there to help you. I live in the boonies (Harrisonburg, VA) and I have found natural food stores and a local grocery store that carries gluten free food. I'm sure in Annapolis they can accomodate you. Have fun, Annapolis is wonderful, will always be a USNA girl at heart!

Talk to the person in control of the dining on campus. They have become more knowledgable and cooperative. Most colleges also have nutritionists available. Maybe not a smaller ones thu. I was looking into a school in Oregon and on their site it listed gluten as one of the top allergies and who to contact about your allergies. I would check out the school's website and if that isnt helpful talk to the counselor and they can point you in the right direction

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

    3. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    5. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.