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Then Last Item With Gluten You Ate...


VegasCeliacBuckeye

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Carriefaith Enthusiast

The last gluten meal I had was the day before the biopsy. It was some pasta dish at a restaurant.


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  • Replies 86
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SharonF Contributor

Stuffing, last Thanksgiving. That's what made me realize that, yep, I really did have celiac.

uclangel422 Apprentice

Before i was diagnosed with celiac disease my doctor had me on a bland diet anyway, so i didnt get to have a last hurrah really. I think the last thing i had was Orange Chicken from Panda Express.

If i would have known i would have to be gluten-free, i would have made it a philly cheesesteak with a side of pancakes or something extravagent.

kabowman Explorer

At the county fair - an elephant ear! I was sick for days and days...I ate the whole thing and wouldn't let anyone else touch it!

Rikki Tikki Explorer

What is an elephant ear?

celiac3270 Collaborator
What is an elephant ear?

Yeah, lol. Please enlighten me :lol:

ianm Apprentice

It is a flat piece of deep fried dough covered in sugar and cinnamon. :blink:


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KaitiUSA Enthusiast
It is a flat piece of deep fried dough covered in sugar and cinnamon. :blink:

wow to me an elephant ear just doesn't sound like something that would taste good..how did they ever get that name? :blink:

ianm Apprentice

Because it is about the same size and shape as an elephant ear hence the name.

VegasCeliacBuckeye Collaborator

Elephant ears are made of the same thing as funnel cakes -- puffy dough and loads of powdered sugar. Very common at State/County Fairs

I miss them....

Rikki Tikki Explorer

I guess I don't miss them because I didn't know what they were, but they sound really good! :D

How about what we miss the most? I suppose I miss pasta with alfredo sauce! Unless I want sweets, then ot would be an apple fritter! :rolleyes:

Rikki Tikki Explorer

I guess I don't miss them because I didn't know what they were, but they sound really good! :D

How about what we miss the most? I suppose I miss pasta with alfredo sauce! Unless I want sweets, then it would be an apple fritter! :rolleyes:

Niteyx13 Explorer

I guess I maybe shouldn't talk since I just off a cheating binge, but I always miss the food I eat at my favorite Italian restaurant. Their salad is the best, I love the bread and oil, and I LOVE their ravioli (I may have to find out the ingredients to their salad).

Guest Leidenschaft

I was diagnosed (100% for sure, figured much earlier) on Christmas Eve 2003! I had told myself way back in April when I had positive blood work and then again in October when I had my biopsy that if I did have celiac disease I would wait until the New Year to go gluten-free. See I didn't feel that I had many symptoms and figured a few more months (after October) would make a whole lot of difference and it would get me through the busy holiday season! <_<

So with my final dx for Christmas... nice gift... :( I continued to enjoy my beer and plan my final days as a full fledged NON celiac! My husband's daughter and her two boys were coming after Christmas so I planned all my favourites! It was a very busy day at work so I got McDonalds for Ron and I at lunch. Yes, it was my last McD burger! Dinner that night was roast beef with "real" gravy, Yorkshire Pudding and the works. Angel Food cake with strawberries and whipped cream for desert. Kind of like being on death row and having your last meal... :blink:

And of course there was beer to go with it! :lol:

Well the next day had me in the hospital, not knowing which end of me was going to explode first! :blink: I swore I had food poisoning (which of course I did! <_< ) because when I ate my McD's burger, I had noticed a cold spot in it... :o of course I had already swallowed by the time I clued in. Ron figured I had just over done the gluten and the doctor agreed. I didn't eat much of anything for the next few days...

My last intentional gluten would have been New Years Eve 2003, I had beer and my favourite Szechuan (sp?) Chicken at The Diplomat. We haven't eaten there since I went gluten-free... :( They won't make that meal gluten-free and I just don't know what else is worth going there for. <_<

I've read many of your posts that "it wasn't as good as I remembered"... I'm surprised at the number of people who admit cheating on the diet! :o:lol: I've had enough accidentals that leave me feeling crappy I wouldn't dare do it intentionally.

I'll complain to Ron at times if I feel constipated, his reply is usually "have a piece of toast"! Funny man! <_< My response is that if I'm going to intentionally glutenate myself, I'll have a beer thanks! :lol:

Interesting thread! :D

kabowman Explorer

An elephant ear is a greasy, fried, blob of bread, covered with cinnamon sugar. Sounds really icky, tastes really good; wouldn't miss a fair without one before this...

plantime Contributor

A slice of black forest cake last August. I will never do that to myself again!

lotusgem Rookie

Well, before I found out that I had Celiac, I knew that I was allergic to casein. Back in those days, I would occasionally cheat, and the last time that I did, is easy to remember because I got Sooooo sick! :( I had gone to a 40th birthday party for one of my huband's co-workers and it was at a Mexican restaurant. I had a tostada that was absolutely loaded with cheese and sour cream...total insanity! The brief enjoyment was definitely not worth 2 months recovering from an ear infection that made me miss some work because I was too dizzy to stand.

So, when it comes to Celiac, I know from experience that there's a price to pay for cheating, and nothing can tempt me. There are plenty of other good things to eat! :D

Paula

jenvan Collaborator

Ahhh... Elephant ears rock! Crispy, yet chewy, covered with so much sugar you have to wipe your face and hands after every bite. I ate a whole one of those last summer, by myself...

minibabe Contributor

Right after I got back from one of my biopsys, my boyfriend took me to my favorite deli and we got Egg, ham and cheese sandwiches w/ salt and pepper. I can just taste it right now......on a really soft bagel.... <_< no fair. I def. miss those days :(

Niteyx13 Explorer

Isn't it amazing how much food plays a part in our lives, and you really don't notice until you have to go without the good stuff? Gosh I used to eat everything and anything...which probably wasn't a good thing. Oh, well, I can honestly saying that being gluten-free forces me to eat healthier, and that is a plus.

:wub: <~~cuz my daughter says so.

gabrielle Contributor

MMMMM... elephant ears... Funnel cake.... STOP IT!! <_<

Nadtorious Rookie

Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

ianm Apprentice

Chocolate chip cookie dough, raw eggs and all, :P is probably the only gluten containing thing I sort of miss.

  • 2 weeks later...
Guest BellyTimber

It was a Penguin biscuit (like a coated bourbon) handed out to the churchyard clearing team I was on. That's what brought it all to a head and precipitated my going gluten-free as well as wheat free.

Emme999 Enthusiast

Mine was a vegan oatmeal cookie at Wild Oats. Mmm... it was yummy. It's wasn't *that* yummy though because I was kinda full from just eating a vegan chocolate chip cookie ;)

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      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
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      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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