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Then Last Item With Gluten You Ate...


VegasCeliacBuckeye

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Carriefaith Enthusiast

The last gluten meal I had was the day before the biopsy. It was some pasta dish at a restaurant.


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  • Replies 86
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SharonF Contributor

Stuffing, last Thanksgiving. That's what made me realize that, yep, I really did have celiac.

uclangel422 Apprentice

Before i was diagnosed with celiac disease my doctor had me on a bland diet anyway, so i didnt get to have a last hurrah really. I think the last thing i had was Orange Chicken from Panda Express.

If i would have known i would have to be gluten-free, i would have made it a philly cheesesteak with a side of pancakes or something extravagent.

kabowman Explorer

At the county fair - an elephant ear! I was sick for days and days...I ate the whole thing and wouldn't let anyone else touch it!

Rikki Tikki Explorer

What is an elephant ear?

celiac3270 Collaborator
What is an elephant ear?

Yeah, lol. Please enlighten me :lol:

ianm Apprentice

It is a flat piece of deep fried dough covered in sugar and cinnamon. :blink:


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KaitiUSA Enthusiast
It is a flat piece of deep fried dough covered in sugar and cinnamon. :blink:

wow to me an elephant ear just doesn't sound like something that would taste good..how did they ever get that name? :blink:

ianm Apprentice

Because it is about the same size and shape as an elephant ear hence the name.

VegasCeliacBuckeye Collaborator

Elephant ears are made of the same thing as funnel cakes -- puffy dough and loads of powdered sugar. Very common at State/County Fairs

I miss them....

Rikki Tikki Explorer

I guess I don't miss them because I didn't know what they were, but they sound really good! :D

How about what we miss the most? I suppose I miss pasta with alfredo sauce! Unless I want sweets, then ot would be an apple fritter! :rolleyes:

Rikki Tikki Explorer

I guess I don't miss them because I didn't know what they were, but they sound really good! :D

How about what we miss the most? I suppose I miss pasta with alfredo sauce! Unless I want sweets, then it would be an apple fritter! :rolleyes:

Niteyx13 Explorer

I guess I maybe shouldn't talk since I just off a cheating binge, but I always miss the food I eat at my favorite Italian restaurant. Their salad is the best, I love the bread and oil, and I LOVE their ravioli (I may have to find out the ingredients to their salad).

Guest Leidenschaft

I was diagnosed (100% for sure, figured much earlier) on Christmas Eve 2003! I had told myself way back in April when I had positive blood work and then again in October when I had my biopsy that if I did have celiac disease I would wait until the New Year to go gluten-free. See I didn't feel that I had many symptoms and figured a few more months (after October) would make a whole lot of difference and it would get me through the busy holiday season! <_<

So with my final dx for Christmas... nice gift... :( I continued to enjoy my beer and plan my final days as a full fledged NON celiac! My husband's daughter and her two boys were coming after Christmas so I planned all my favourites! It was a very busy day at work so I got McDonalds for Ron and I at lunch. Yes, it was my last McD burger! Dinner that night was roast beef with "real" gravy, Yorkshire Pudding and the works. Angel Food cake with strawberries and whipped cream for desert. Kind of like being on death row and having your last meal... :blink:

And of course there was beer to go with it! :lol:

Well the next day had me in the hospital, not knowing which end of me was going to explode first! :blink: I swore I had food poisoning (which of course I did! <_< ) because when I ate my McD's burger, I had noticed a cold spot in it... :o of course I had already swallowed by the time I clued in. Ron figured I had just over done the gluten and the doctor agreed. I didn't eat much of anything for the next few days...

My last intentional gluten would have been New Years Eve 2003, I had beer and my favourite Szechuan (sp?) Chicken at The Diplomat. We haven't eaten there since I went gluten-free... :( They won't make that meal gluten-free and I just don't know what else is worth going there for. <_<

I've read many of your posts that "it wasn't as good as I remembered"... I'm surprised at the number of people who admit cheating on the diet! :o:lol: I've had enough accidentals that leave me feeling crappy I wouldn't dare do it intentionally.

I'll complain to Ron at times if I feel constipated, his reply is usually "have a piece of toast"! Funny man! <_< My response is that if I'm going to intentionally glutenate myself, I'll have a beer thanks! :lol:

Interesting thread! :D

kabowman Explorer

An elephant ear is a greasy, fried, blob of bread, covered with cinnamon sugar. Sounds really icky, tastes really good; wouldn't miss a fair without one before this...

plantime Contributor

A slice of black forest cake last August. I will never do that to myself again!

lotusgem Rookie

Well, before I found out that I had Celiac, I knew that I was allergic to casein. Back in those days, I would occasionally cheat, and the last time that I did, is easy to remember because I got Sooooo sick! :( I had gone to a 40th birthday party for one of my huband's co-workers and it was at a Mexican restaurant. I had a tostada that was absolutely loaded with cheese and sour cream...total insanity! The brief enjoyment was definitely not worth 2 months recovering from an ear infection that made me miss some work because I was too dizzy to stand.

So, when it comes to Celiac, I know from experience that there's a price to pay for cheating, and nothing can tempt me. There are plenty of other good things to eat! :D

Paula

jenvan Collaborator

Ahhh... Elephant ears rock! Crispy, yet chewy, covered with so much sugar you have to wipe your face and hands after every bite. I ate a whole one of those last summer, by myself...

minibabe Contributor

Right after I got back from one of my biopsys, my boyfriend took me to my favorite deli and we got Egg, ham and cheese sandwiches w/ salt and pepper. I can just taste it right now......on a really soft bagel.... <_< no fair. I def. miss those days :(

Niteyx13 Explorer

Isn't it amazing how much food plays a part in our lives, and you really don't notice until you have to go without the good stuff? Gosh I used to eat everything and anything...which probably wasn't a good thing. Oh, well, I can honestly saying that being gluten-free forces me to eat healthier, and that is a plus.

:wub: <~~cuz my daughter says so.

gabrielle Contributor

MMMMM... elephant ears... Funnel cake.... STOP IT!! <_<

Nadtorious Rookie

Beer and Cookie dough ice cream for an endoscopy-a little too much of both.

Sometimes when I 'm really bored in class and in the mood to torture myself, I'll make a list of all my favorite foods that I'll eat one of these days when we're cured.

ianm Apprentice

Chocolate chip cookie dough, raw eggs and all, :P is probably the only gluten containing thing I sort of miss.

  • 2 weeks later...
Guest BellyTimber

It was a Penguin biscuit (like a coated bourbon) handed out to the churchyard clearing team I was on. That's what brought it all to a head and precipitated my going gluten-free as well as wheat free.

Emme999 Enthusiast

Mine was a vegan oatmeal cookie at Wild Oats. Mmm... it was yummy. It's wasn't *that* yummy though because I was kinda full from just eating a vegan chocolate chip cookie ;)

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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