Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream?


clarkje20

Recommended Posts

clarkje20 Newbie

Ok can somebody help me with the Rice dream???? It states on the box that its gluten free but people on here says its not and it contains barley??? So is Rice dream safe for celiacs?????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



climbmtwhitney Apprentice

Hi.

Rice Dream is processed with a barley enzyme. I suppose for some that's too minor an amount of gluten. However, my daughter & I have personally gotten very sick 2x from it. Once was early in the diet when I didn't know and made french toast with it. The second time someone else made us cornbread with it not realizing. Now we use Pacific brand.

Lisa Mentor

The legal standard for what can be called "gluten free" is not established at this point. The gluten in Rice Dream may be below the suggested 20ppm, which some consider a safe level of gluten for people with Celiac to consume.

Open Original Shared Link

Frances03 Enthusiast

I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water

organic brown rice

organic expeller pressed safflower and/or sunflower oil and/or canola oil

Tricalcium Phosphate

Sea Salt

Vitamin A Palmitate

Vitamin D2

Vitamin B12

Is anything in that gluten? I don't see anything.

jerseyangel Proficient
I dont see any barley enzyme in my rice dream. the ingredients in original are as follows:

Filtered water

organic brown rice

organic expeller pressed safflower and/or sunflower oil and/or canola oil

Tricalcium Phosphate

Sea Salt

Vitamin A Palmitate

Vitamin D2

Vitamin B12

Is anything in that gluten? I don't see anything.

The barley enzyme is used in the processing of the milk, not added to it, so it doesn't have to be listed as an ingredient. It's always been prepared the same way, and the label used to disclose this--the label has changed but they still use the barley (I verified this with a phone call to the company). I reacted to it, as many others here. I'm sure that the amount is so low that many will also be able to tolerate it fine. :)

Frances03 Enthusiast

Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"

clarkje20 Newbie
Ok that makes me MAD!!!!! I just called them too, and I got the same story! "barley is used in the processing and it's broken down in the cooking process, it has been tested and gluten is below detectable limits, but if you are very sensitive you might want to not use it" Well that is ASININE!!!! I just bought a whole thing of it at Costco and I used some for the first time this morning! I am taking it ALL BACK to costco and telling them why I won't be buying it again! Maybe they will get another kind of rice milk to carry. BOY I am just steamed, can you tell??? I am new to this celiac disease and when something says "GLUTEN FREE" I think it ought to be GLUTEN FREE and not "some amounts of gluten may be present but we don't think this counts!"

This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... uggg I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
This is crazy so Im assuming that we should NOT trust or use anything that says gluten free!!! Cause it might still use something that we may get sick from..... ug I guess eat ONLY pure form foods..... basic .... this is a death sentence.... how boring..... sorry for my negativity but holy cow.... i thought all this gluten free food was safe....

I would recommend that you read this article:

https://www.celiac.com/articles/21655/1/How...ease/Page1.html

The progress I have seen over the past five years had been tremendous! And I expect that the next five will even exceed that.

If a product does not sit well with you, put it on your "don't go there again" list. Trust your instincts. And what may not work for you, might be okay for others. Sometimes you have to individualize your gluten free choices.

ksymonds84 Enthusiast

I am one that does NOT react to Rice Milk and can't wait for the egg nog rice dream to hit the shelves! :) I agree with Lisa that everyone is different especially with their level of sensitivity.

KristaleeJane Contributor

I agree that it should not be labeled gluten free, I also bought and had to return it after having a reaction, but I am very sensitive. I believe that even the smallest amount of gluten can harm you. I have been drinking Ryza Rice Milk, which is Gluten Free. Its really good and no Reaction.

OptimisticMom42 Apprentice

Any problems with Westsoy Rice Milk?

  • 2 weeks later...
clarkje20 Newbie

I have recently purchased Hemp Milk and it taste great and is dairy free and gluten free with NO barley!!! Im sooo excited!!!

  • 2 weeks later...
earthtoneNJ Rookie

this is what i got from the company. I didn't realize the same company made so many different products (arrowhead mills, deboles, celestial). I'll be taking everything they say with a grain of salt now:

Thank you for taking the time to contact us regarding our Rice Dream Beverage. We strive to maintain the highest quality products and appreciate your patronage.

Analytical testing methods and detection limits have improved over the years. Recent testing shows that the Rice Dream Beverages, as well as the barley protein used to make the product, meet gluten free requirements. We have always maintained a conservative stance regarding gluten in the beverages. The same rigorous standards now allow us to declare them gluten free.

Thank you for your continued support. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time.

Sarah

Consumer Relations Representative

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.

grainfree Newbie

The percentage barley protein printed on the Rice Dream rice milk box I purchased is .002. I had a reaction.

ksymonds84 Enthusiast

...

I don't care how little they think is safe. It should be disclosed. I'm so disgusted. People may say "Oh, I don't feel a reaction" but that does NOT mean that low-level damage is not occurring.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.