Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Acid Reflex With Dairy?


Tigercat17

Recommended Posts

Tigercat17 Enthusiast

Hi everyone,

I've been having problems with acid reflux since July & I've been gluten free for five weeks. I'm taking Prevacid, which I don't think it's helping, & I'm still having acid reflux & I suspect it's from dairy. I seen my GI doc today & he didn't think it was possible, so I wondering if anyone else has experienced this? I also mentioned to him, from what I understand, that a lot of people with newly diagnosed celiac have problems with dairy & he said he never heard of it? I don't ahve stomach pain or D when I eat dairy, it's just this throat pain.

I'm so confused & my throat is always hurting. He wants to do a Bravo test & another endoscopy on me a couple of weeks. He wants to make sure I actually have acid reflux since this all started with a "mysterious" throat infection.

I did cut back on dairy but didn't cut it out all the way. Today I drank an Ensure & it seems my throat felt worse. But it does say it's lactose free? But it has milk in it? I don't get it...

I don't feel the sore throat pain while I'm sleeping, it's only during the day. So, now starting tomorrow I'm going to cut out dairy all together for about a week & see if it helps.

Has anyone else had this problem? And if so, what did you do to help? I'm not really sure it's the dairy, but I'm going to see. And I eat everything at home in my gluten-free kitchen. I'm very careful with labels, too. I don't eat anything unless I'm positively sure it's gluten free. Any advice? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mrs. Smith Explorer

Yes!! I cannot eat dairy. I have tested this theory on myself many times and it goes away everytime I quit dairy. I also stay away from tomato products and citrus. My heartburn is non-existant when I avoid these foods.

knittygirl1014 Rookie

Lactose is only part of milk- it is the sugar. Casein is the protein part, which is actually what irritates many celiacs. Lactose can be removed from products or digested with lactase (Lactaid), but casein has to be avoided. When I gave up all dairy (including butter, and trace amounts in anything) my GI problems improved vastly. I was also on an acid-reducer before and it didn't help. Also, if you've only been gluten-free for five weeks, your system is probably very irritated right now. Giving up dairy is so hard, but it's worth it. I've been able to add it back after 10 months, but for some it takes longer. In the meantime, rice milk, almond milk and coconut milk are great replacements.

Joe0123 Contributor

Oh yes, I had terrible heartburn for about 5 months (felt like someone was sitting on my chest all day :/ ) and dairy would always make it worse. Going gluten free and dairy free really helped that. So I would suggest you stop taking the Prevacid (I was taking Nexium for awhile and I know that stuff isn't cheap not to mention it didn't help) and give up dairy for awhile to let your digestive system heal.

nmlove Contributor

Sure, acid reflux can be caused by a lot of things, including dairy. I had to cut out dairy for my baby (who's reflux is worse by the way when I consume dairy) and I actually noticed I felt better without dairy! I never had a reflux problem except during pregnancies and following the birth of my third this summer it never went away. But I know dairy makes it worse when I've had some. As well as other biggies - chocolate, tomatoes, citrus, junk. :) Good luck figuring it out!

Tigercat17 Enthusiast

Thanks everyone for your input! I was being to think I was the only one with reflux form dairy.

It's been three days of being dairy free for me & boy, is it hard! I still have the reflux though... :(

Does it usually take a long time for the acid reflux to go away? I know my doctor said to go dairy free for a week & see f it helps. Or should I try two weeks?

It's nice to know other people have had acid reflux from milk. too. It seems like it's such a long healing process.

chiroptera Apprentice

YES!!! Not to sound weird :o but I get happy to hear that others have the same problem as one of my twin daughters!! GERD was her MAIN symptom of Celiac; her identical twin had more typical digestive issues. We found out via Enterolab testing that she is gluten, casein (the milk protein) and egg intolerant. If she does not eat ANYTHING with those ingredients she has NO gerd!!! We are SO glad to find this out as we tried Prevaid as a last resort for a short while and it helped only with her actual burning but not with her other Gerd symptoms such as cough, chest pain, throat mucous, etc.

Honestly it is hard for her/us to not have casein and dairy. Much harder than just gluten. But is is so worth it. Now with Halloween (she is just nine) she did have some regular (but gluten-free) candy and she has been sickish for two days with Gerd.

It is so obvious that she can't have casein! We love soy and almond and rice milk but we have trouble with cheese because you will have to have vegan cheese as the rice/soy cheeses still contain casein. We don't like the vegan stuff so she does without and I just make her stuff like cheeseless pizza, plain pasta, etc.

Keep up the hard work though! I bet you will feel better and need no drugs! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Nadia2009 Enthusiast
YES!!! Not to sound weird :o but I get happy to hear that others have the same problem as one of my twin daughters!! GERD was her MAIN symptom of Celiac; her identical twin had more typical digestive issues. We found out via Enterolab testing that she is gluten, casein (the milk protein) and egg intolerant. If she does not eat ANYTHING with those ingredients she has NO gerd!!! We are SO glad to find this out as we tried Prevaid as a last resort for a short while and it helped only with her actual burning but not with her other Gerd symptoms such as cough, chest pain, throat mucous, etc.

Honestly it is hard for her/us to not have casein and dairy. Much harder than just gluten. But is is so worth it. Now with Halloween (she is just nine) she did have some regular (but gluten-free) candy and she has been sickish for two days with Gerd.

It is so obvious that she can't have casein! We love soy and almond and rice milk but we have trouble with cheese because you will have to have vegan cheese as the rice/soy cheeses still contain casein. We don't like the vegan stuff so she does without and I just make her stuff like cheeseless pizza, plain pasta, etc.

Keep up the hard work though! I bet you will feel better and need no drugs! :)

Hi there,

I didn't know that Gerd was one of the celiac symptoms. I have acid reflux from most foods I eat except when I eat non spicy meat with vegetables. Sugar, milk, spices and fried food are the worst. For many years, I naturally got rid of the problem by following a 80% alkaline 20% acidic diet and watch my saliva ph. It is easy to it with little band paper you buy at the pharmacy or help food store.

Tigercat17 Enthusiast
Oh yes, I had terrible heartburn for about 5 months (felt like someone was sitting on my chest all day :/ ) and dairy would always make it worse. Going gluten free and dairy free really helped that. So I would suggest you stop taking the Prevacid (I was taking Nexium for awhile and I know that stuff isn't cheap not to mention it didn't help) and give up dairy for awhile to let your digestive system heal.

Thanks for responding! It's nice to know I'm not crazy! My GI doctor thinks dairy wasn't making my reflux worse, but it was. I think I need a new GI doctor.

Anyway, I've been gluten free for nine weeks now & still having acid reflux with my throat. My doctor wants to do the Bravo Ph study on me & another endoscopy this Thursday. More Stress... it really doesn't help the acid reflux.... :huh:

I did just stop taking the Prevacid as of yesterday. In the last few days I was so bloated, con., full feeling, my stomach was hurting more & I really felt that I couldn't eat. And I'm only 102 lbs at 5'1. In the last four days I lost three pounds because I felt so full & I couldn't eat much. It's pretty scary when I can't eat & I'm so skinny. This happened to me before when I was taking Priolsec after a month, so I guess my body just can't handle the ppi's after a month. And I really felt like my throat was was getting better. I'm not sure if this is because of the Prevacid or just being gluten free. And especially when I cut out the dairy. I felt it really was helping. Now I'm just taking the Zantac 150 & Tums Ultra 1,000 & hoping that it eventually goes away. It was so much worse when I was eating gluten. I did eat a lot better this morning so I'm thinking it is the Prevacid that's making me feel full. My GI doctor thinks I'm crazy...

I'm wondering if I'm having so much acid reflux because my stomach is so badly damaged? Did your heartburn go away after five months being gluten free or did it stop completely as soon as you were gluten free? I've read the other people had acid reflux too, and when they went gluten free it completely went away. I really hope mine does. It's really uncomfortable. Being on a gluten free diet & a GERD diet is so hard & I really need to put on some weight.

I did stop the dairy for nine days & I did feel like my acid reflux was better, but not completely gone. Then I started drinking the Ensure again for four days & it seemed like it got worse again. So now I'm stopping it again. My doctor recommended taking Lactaid with it, but I really don't think it would help much since the ensure is lactose free anyway. I really think it's the milk protein in it that's making the acid reflux worse.

This is so crazy for me since I never had any stomach problems before & I never had any acid reflux before either. I ate anything I wanted & then all of the sudden I got this horrible sore throat in July & I lost my voice. I went to eight different doctors & no one knew why until they did the endoscopy. It took them two months to figure it out.

I'm so thankful for this forum. I learned so much for all of you. It's so nice to know there are people out there who understand.

Thanks everyone!

  • 8 years later...
aya Apprentice
On 10/30/2009 at 3:08 AM, Tigercat17 said:

Hi everyone,

 

I've been having problems with acid reflux since July & I've been gluten free for five weeks. I'm taking Prevacid, which I don't think it's helping, & I'm still having acid reflux & I suspect it's from dairy. I seen my GI doc today & he didn't think it was possible, so I wondering if anyone else has experienced this? I also mentioned to him, from what I understand, that a lot of people with newly diagnosed celiac have problems with dairy & he said he never heard of it? I don't ahve stomach pain or D when I eat dairy, it's just this throat pain.

 

I'm so confused & my throat is always hurting. He wants to do a Bravo test & another endoscopy on me a couple of weeks. He wants to make sure I actually have acid reflux since this all started with a "mysterious" throat infection.

I did cut back on dairy but didn't cut it out all the way. Today I drank an Ensure & it seems my throat felt worse. But it does say it's lactose free? But it has milk in it? I don't get it...

 

I don't feel the sore throat pain while I'm sleeping, it's only during the day. So, now starting tomorrow I'm going to cut out dairy all together for about a week & see if it helps.

 

Has anyone else had this problem? And if so, what did you do to help? I'm not really sure it's the dairy, but I'm going to see. And I eat everything at home in my gluten-free kitchen. I'm very careful with labels, too. I don't eat anything unless I'm positively sure it's gluten free. Any advice? Thanks!

Tigercat17,

I would appreciate if you could tell us how you are going? I am in a quite same position, desperately searching what could be the reason for my reflux. So I would love to know what was causing tour reflux and how did you solve it.  

Thank you,

Aya

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748

    maggie23
    Newest Member
    maggie23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.