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Confusing Sx Return! Again!

haleym

By haleym
in Coping with Celiac Disease

Recommended Posts

haleym Contributor
haleym
Posted

hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

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Wolicki Enthusiast
Wolicki
Posted

Quaker rice cakes may contain gluten thru CC. I get the gurgles wh Then I eat them. Trader Joes rice cakes are safe:) It would be a real bummer if the gingerbread syrup isn't gluten-free :o:o I will check on that!

Northern Celiac Newbie
Northern Celiac
Posted
hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

Hi, I have learned the hard way that just because something is not listed doesn't mean that it is "gluten free"

The tyson cornish game hen, it comes off the production line and is packaged for shipment. It is injected with preservatives so it doesn't dry out during shipment.

Mixed nuts can come off the same line as products that use gluten.

Same with hershey's chocolate bars

There's a book called dangerous grains and it lists hidden sources of gluten

for example

MSG

HPP hydrolized plant protien

HVP hydrolized vegetable protien

are 3 that come to mind

best of luck

Frances03 Enthusiast
Frances03
Posted

There are so many things on that list it could be. Quaker rice cakes are definitely on my NO list. Cross contamination issues there. I dont know anything about the ice cream because I don't like ice cream. I think the hershey bar is okay. For some reason I think the only kirkland nuts that are okay are the single ingredient nuts like just almonds, just walnuts, etc. I must have read that somewhere, I could be wrong though. I would call Costco, they are very good about answering those questions. The next 2 I have no idea. Starbucks I wouldn't get anything there at all except maybe a tea bag, but that is just me ;)

haleym Contributor
haleym
Posted
  • Author

Hmm... it seems like a lot of people have had problems with the quaker rice cakes... Ive been eating about one per day for the last week and perhaps theres been a build up of symptoms. Jeez louise.... being gluten free requires that one really pays attention. from now on, if it doesnt say gluten free on it, Im going to be extra careful!

eatingganesh Newbie
eatingganesh
Posted

Cornish Game Hens that are not WILD are fed wheat and barley.

I've noticed that I have reactions even to the eggs of chickens that have been fed wheat and had to go to cage free/free range eggs.

eatingganesh Newbie
eatingganesh
Posted

Oh... and I've been told to carefully look at the ingredients of ice cream as they often contain emulsifiers that are wheat-based.

And chances are those dang rice cakes have malodextrin. They make me sick too.

Just check the labels for everything... some common things like malodextrin and caramel coloring are derived from wheat. There is also a bunch of things that you wouldn't think would have wheat/gluten, but do - like soy sauce, tomato paste, pasta sauces, etc.

It gets tiring to have to always be so vigilant. Hopefully the new "no-gluten diet" fad will mean more products will start labeling gluten-free and develop gluten-free alternatives.

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sunnybabi1986 Contributor
sunnybabi1986
Posted

Breyers has actually gotten in trouble lately for not listing wheat as an ingredient, even though they add it along with another ingredient. It's likely you've been glutened by several of the items on your list. I stay away from Breyer's, as they're not trustworthy enough to be up front about their ingredients right now. Blue Bunny will list any allergens on their foods, though, and I eat their ice cream and ice cream bars. Very yummy and gluten free! :)

Good luck!

ang1e0251 Contributor
ang1e0251
Posted

The labeling laws require that allergens be listed. Maltodextrin has to list the source as wheat if it is used. Chances are that no North American products use maltodextrin made from wheat. The other products listed in the book used to be sometimes be derived from wheat but in the US those products have been changed. Hydrolized doesn't mean wheat anymore. It must be listed if it is.

I would watch out for Starbucks. Lots of people have had a CC problem there. I eat Hershey's chocolate with no problems. I've never had the Quacker rice cakes but I have read others say they had problems with them.

wschmucks Contributor
wschmucks
Posted

i agree on the rice cakes. It would be best to stay away from anything that comes out of a box for awhile. To be honest-- it might be nothing youre eating. Youve only been gluten free for 2 months-- usually it takes between 6-12 months to have a real difference. So be VERY careful with what you eat or it will just take longer.

haleym Contributor
haleym
Posted
  • Author
i agree on the rice cakes. It would be best to stay away from anything that comes out of a box for awhile. To be honest-- it might be nothing youre eating. Youve only been gluten free for 2 months-- usually it takes between 6-12 months to have a real difference. So be VERY careful with what you eat or it will just take longer.

Yeah- Ill have to just buck up and make sure I stop and think each time I eat something. I was very careful at the beginning but as time goes on I need to not think that something will be OK unless I can verify that it is. It seems like it takes soooo long for my gut to be normal after I think I eat a no-no, but its so hard when you dont know what the no-no was!

Its back to steamed veggies and brown rice for a while- Ive GOT to sort this out!

Wolicki Enthusiast
Wolicki
Posted
hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

So, I emailed Starbucks about the GB syrup and haven't heard back. I went in this am amd read the lable on the bottle, and there is nothing listed as gluten, but does list that elusive "natural flavors." I'm always leery of that.

  • 4 weeks later...
ziola13 Newbie
ziola13
Posted
hello everyone! This is kind of long, but Im looking for some help and advice to figure out what my symptoms are coming from.

I have been gluten free for 2 months now, and have experienced SUCH amazing relief of GI disturbances and increased energy. Lately though, I have gotten my gnawing in the stomach and even bad stools/gas/bloating and even some weird issues with not being able to write by hand correctly... as in writing and unintentionally skipping letters in words. (I was at a professional development class trying to take notes!). The GI stuff feels exactly like it did before I went gluten-free, and the weird dyslexia-like writing is something Ive never had before.

I am realizing that I have been getting slightly lax with what I put into my mouth, so here is a list of possible things that I can think of. Some of these I have researched but have not been able to get a straight answer. I would be so thankful if you all could comment on this and help me figure out what to do.

Ive also recently changed brands of levothyroxine, but Ive researched a few different brands and they all seem safe.

1. Quaker plain rice cakes

2. Breyers vanilla bean ice cream

3. Hershey's milk chocolate bar

4. Kirkland Signature mixed nuts *ingredients dont mention gluten*

5. Farmers market organic sweet potato puree

6. Tyson cornish game hen *anyone know if they inject the bird with gluten ingredients?

7. Starbuck's soy peppermint mocha *btw is it true that their gingerbread latte is not gluten-free?

If I dont figure this out then I may do an elimination diet to see if I'm sensitive to other things as well. So, does anyone know a good approach for that?

THANKS soo much for your input!

I did call starbucks and was told there were no ingredients that contain gluten. But the last week I noticed I was having a reaction and have not had one and I am starting to feel better. I don't think they are safe.

SGWhiskers Collaborator
SGWhiskers
Posted

I had the typson cornish game hens for thanksgiving without problem.

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