Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Gluten Free


new to gluten free

Recommended Posts

new to gluten free Newbie

I absolutely love food...all food...now I find out I have celiac disease. I am glad to know what is wrong with me (finally). I go to the normal grocery store and want to cry. Things seem so limited now, and I have to always be on guard. I go to a health food grocery store and I have to spend WAY too much money on very little groceries. Does everyone go through a sad or upset time before you finally accept this?? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I think everyone goes through some sort of grieving.

The good news is that there's a TON of stuff in a "regular" store that you can eat. It won't have wheat in it and processed stuff can be iffy, but there's really a lot more there than you think right now. I don't spend any more now than I did before going gluten-free, but I also rarely buy specialty gluten-free foods.

richard

jststric Contributor

I would say yes. At least it was for me. I still have my moments I throw myself a pity party. Growing up in the south on great food, I had to give up all the fried stuff and since I'm also lactose intolerant, rice, bean, egg and nut intolerant, Had to give up MOST things I absolutely loved. Southerners don't just eat....we have love affairs with our food. I've been doing this for 3 yrs and am getting better about it though. Yes, the alternative stuff is expensive but you learn what you can do and how you can work around the need for so much alternative stuff sometimes. Hang in there.

new to gluten free Newbie

Thanks for getting back to me so fast! Glad to know I am not the only one who gets upset about this...change is always hard, especially with food!

ang1e0251 Contributor

Welcome to the Forum! We do have strong emotional attachments to our food. But the good news is we can learn to form new attachments to food that is safe for us. You can buy most of your food in a normal market. Just stick to the basics of what you can eat, meat, vegetables, and fruits. You look like you could probably tolerate corn tortillas in place of bread and straight cornmeal or instant potatoes for breading. You will learn what you can convert to your diet and what could be a problem. You know if you want to convert certain favorite recipes, this is a good place for it. We have quite a few cooks who love a challenge!

I personally don't buy much processed food so my food budget isn't too crazy. I do buy soy milk and coconut milk but I was using that before so that was in my budget anyway.

It's normal to mourn that large part of your life that has changed. I didn't say lost because you are just changing it not losing it. Find a couple of splurge comfort foods that you can make or buy and have those around because you deserve a treat. When you go into a pity party, make sure you have something special just for you. Lately mine has been coffee soy ice cream with hot fudge sauce.......

new to gluten free Newbie
Welcome to the Forum! We do have strong emotional attachments to our food. But the good news is we can learn to form new attachments to food that is safe for us. You can buy most of your food in a normal market. Just stick to the basics of what you can eat, meat, vegetables, and fruits. You look like you could probably tolerate corn tortillas in place of bread and straight cornmeal or instant potatoes for breading. You will learn what you can convert to your diet and what could be a problem. You know if you want to convert certain favorite recipes, this is a good place for it. We have quite a few cooks who love a challenge!

I personally don't buy much processed food so my food budget isn't too crazy. I do buy soy milk and coconut milk but I was using that before so that was in my budget anyway.

It's normal to mourn that large part of your life that has changed. I didn't say lost because you are just changing it not losing it. Find a couple of splurge comfort foods that you can make or buy and have those around because you deserve a treat. When you go into a pity party, make sure you have something special just for you. Lately mine has been coffee soy ice cream with hot fudge sauce.......

thanks! I will come here to get ideas for recipes :) much appreciated.

Ahorsesoul Enthusiast

I've been gluten free for awhile so I've forgotten how it feels at the beginning. I love to cook and I love good tasting foods. I would never put tomato sauce on a rice cake and thing that's pizza (yes, had someone suggest this when I was moaning about missing pizza in my early days).

Now I say I can make anything gluten free. I have two things I still miss: phyllo dough and cream of shrimp soup.

The phyllo dough I know I could try making myself but I"m too lazy. I do have a few recipes printed off but doubt I'll ever try them. The Cream of Shrimp soup I use to use for a dip recipe I have. I have found nothing (yet) that gives me the same flavor. I do make my own cream of mushroom soup.

I feel so much better that I don't mind if I miss out on something. I decided when I gave up gluten I would not do without the things I love; pizza, pasta and all those yummy gluten items that made me sick. I found replacements for all of them. And I demand that they taste good because I really do not like cardboard. Bread for sandwiches had been a problem until I read here about Udi Bread. I'm eating more sandwiches now than I ever did before going gluten free. I can't wait to try it for my turkey stuffing recipe at Thanksgiving.

So ask here and I'm sure someone can tell you how to make what you think you are missing.

Contact your local grocery store to see if they have a gluten free listing of their foods. Wal-mart and our local Nash Finch store both have them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenfreeinminnesota Contributor
I've been gluten free for awhile so I've forgotten how it feels at the beginning. I love to cook and I love good tasting foods. I would never put tomato sauce on a rice cake and thing that's pizza (yes, had someone suggest this when I was moaning about missing pizza in my early days).

Now I say I can make anything gluten free. I have two things I still miss: phyllo dough and cream of shrimp soup.

The phyllo dough I know I could try making myself but I"m too lazy. I do have a few recipes printed off but doubt I'll ever try them. The Cream of Shrimp soup I use to use for a dip recipe I have. I have found nothing (yet) that gives me the same flavor. I do make my own cream of mushroom soup.

I feel so much better that I don't mind if I miss out on something. I decided when I gave up gluten I would not do without the things I love; pizza, pasta and all those yummy gluten items that made me sick. I found replacements for all of them. And I demand that they taste good because I really do not like cardboard. Bread for sandwiches had been a problem until I read here about Udi Bread. I'm eating more sandwiches now than I ever did before going gluten free. I can't wait to try it for my turkey stuffing recipe at Thanksgiving.

So ask here and I'm sure someone can tell you how to make what you think you are missing.

Contact your local grocery store to see if they have a gluten free listing of their foods. Wal-mart and our local Nash Finch store both have them.

would you mind sharing with me how you make cream of mushroom soup?? This is how I make a lot of my casseroles and cant figure out how to replace the "bad" ingredients...:) I went and bought UDIs bread, havent tried it yet...and a local gluten free bakery has stuffing :) thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    2. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      High DGP-A with normal IGA

    4. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients

    5. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      6

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.