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I'm New! Can Anyone Help?

Newbyliz

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Newbyliz Rookie
Newbyliz
Posted

I'm new to the forum and am not sure if I posted my original question correctly. I have had negative blood tests but came back with positive for DQ2 and a subset of that gene putting me in a moderate risk category since I have many symptoms associated with celiac such as: 3-8 loose stools per day, vitamin b12 and d deficiencies, bloating, gas, stomach pain, severe osteopenia in my back(I just turned 40), inflammation in my entire digestive tract from my esophagus all the way down. I had an upper endoscopy which only showed inflammation(esophagitis, gastritis and duodenitis) and a colonoscopy that also just showed inflammation. I have peripheral neuropathy in my right hand and am constantly fatigued and have joint pain. I am scheduled for a 2nd upper endoscopy in 2 weeks because my new gastroenterologist said that there were no biopsises taken from the first part of the duodenum only the 2nd. The testing has been going on for 18 months and my symptoms have been around for about 7 years. Can you have early stage celiac with just inflammation and negative bloodwork?

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Wolicki Enthusiast
Wolicki
Posted

Blood tests are frequently false negative. Be sure to stay on gluten until you have the endo, and make sure they take at least 6 samples. Sounds like Celiac to me. Welcome!

Newbyliz Rookie
Newbyliz
Posted
  • Author
Blood tests are frequently false negative. Be sure to stay on gluten until you have the endo, and make sure they take at least 6 samples. Sounds like Celiac to me. Welcome!

Thank you so much for your reply. I have to say that I have been making sure to eat gluten containing foods at each meal and surprise, surprise I am not feeling to great. My stools have definitely increased and the gas and stomach pain also, heartburn seems to be getting worse when I was never one to suffer with it except when I was pregnant with my children. Is heartburn sometimes an indirect symptom of celiac? I just want the second upper endoscopy to be over and to HOPEFULLY

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    • lookingforanswersone
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