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Completely, Completely Overwhelmed :-(


Shess0816

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Shess0816 Apprentice

I am just having a few days of self-pitying, so I was hoping you guys might understand where I'm coming from! I'm just so overwhelmed right now with everything! I've had such a tough year and I'm just ready for it to be over! Since January 2009 I have had pneumonia twice, strep throat twice, 3 other viral infections, an ovarian cyst, diagnosed with Celiac disease (which was a good thing actually), the flu three times, bronchitis, my asthma is getting worse, kidney stones, Fifths Disease, a few colds, and mono. It just seems like my body has not had enough time to recover from one thing before I'm hit with the next. It's just one thing after another, after another... I'm so tired, so worn out. My body is just screaming at me to just sleep for days and days and days at a time...but of course, I have to work full time! I'm so emotionally drained from all the doctors visits, tests, hospital visits, ER visits, labwork, missing work... It's just EXHAUSTING!!! In the month of November alone I had the flu for 5 days, kidney stones for a week and a half, and Fifths disease just this past week -- now I know Fifths disease isn't really a serious thing at all, but this rash ITCHES LIKE CRAZY!!!! I look like a dalmatian with pink spots!

I've started getting embarassed about the number of times I've been sick. I feel like I'm burdening my boyfriend with all my many illnesses. He's been wonderful about it all and has taken great care of me, but I still feel really bad about it all. I am sticking so strictly to the gluten free diet and pretty much all of my Celiac stomach symptoms have gone away -- and the joint pain, head fog...so I'm incredibly glad about that. I take vitamin supplements, eat tons of veggies and fruits. I don't eat red meat, hardly ever drink, and I don't smoke. But it's like my immune system realized it doesn't have to fight the Celiac anymore, so it decided to take a freaking vacation for a year!!!

I just really need some words of encouragement! Now yes, I realize it could be a TON TON worse! None of what I have could compare to some of the things some people on this board have to deal with on a daily basis, so in that sense, sorry for complaining! I'm just so overwhelmed and I feel like I'm an emotional breaking point with all these illnesses!

And not to mention the other emotional stressors -- mom is having some major blood pressure, diabetes issues. My parents divorced because my dad had an affair and he decided to leave the family to be with the other woman. Now he calls us or texts us to tell us how much better his life is now without us. Or the other thing he texts us about is whether we'll feel bad or sorry or feel like it's our fault when he decides to kill himself.... Those calls generally come during the middle of the night....

So anyway, thanks for listening!!!


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buffettbride Enthusiast

2009 has been tough all-around. I wish you the best in 2010 for a healthful recovery and that you can find some peace with your father (although, if he is so happy, why is he telling you he might kill himself??). Maybe you could meet with your dad and tell him how YOU feel about that. He sounds like a real attention-needer.

TrillumHunter Enthusiast

I hope that typing it all out helped some. You have had way more than the average person should have to deal within a very brief time. You're doing all the right things and you'll have to keep doing them until this passes. There aren't any easy answers during times like these. Be good to yourself, keep your head up, and have hope!

Don't be sorry for complaining; we all do it sometimes. It's necessary to keep from breaking down.\

You'll be okay. :)

ang1e0251 Contributor

You have had some major challenges! I know it is tough with all you're facing but keep plugging away every day. I've heard Royal Jelly is good for the immune system. I haven't taken it but what I have taken is honey and apple cider vinegar. When I was getting strep, I read about it's healing affects. I started taking twice a day and I've not had strep again.

You take a large spoon of honey and a large spoon of cider vinegar and stir it into a cup of hot water like a tea. Drink it down. Three times a day was recommended but I too worked full time so I did it two. If you feel something coming on, make a batch of it and sip it throughout your day. You can adjust the amount of honey and vinegar to your taste, I like it sweeter so I add extra honey.

Things will get better even though it's hard to believe when you are in the middle of a mess. What a great guy your boyfriend is!

Ahorsesoul Enthusiast

Glad to have you here where you can vent all you want. Scream and yell, I don't mind at all.

Please realize that you can not stop your father should he decide to attempt suicide. Encourage him to go see a doctor. He may just have a chemical imbalance that could be helped with a prescription. Do try to not feel guilty that him feeling bad about himself and the decisions he's made in his life. He is in control of his life, no one can make a person do anything. You can only be there to support him.

Please do take care of yourself. Are you totally gluten free? If not do so as soon as possible. It may help alot of your problems. At least it will make it easier to get healthier faster.

Pick on thing that you want to tackle at a time. Sometimes with so many problems to correct it is overwhelming. So pick one, do what you can before moving to the next one.

You can do this!

chiroptera Apprentice

First of all, you are NOT complaining! You have been in pain of different types this whole year. That just isn't good no matter how you look at it or what is happening to other people, should they be nice things or worse things. One thing I have learned (and I've had some really really bad years, this being one) is that what happens to other people truly shouldn't effect how we feel about ourselves. Meaning that, just because you haven't had "The Worse" happen, you have had trauma, you don't feel well and for you, you have had it rough. So don't beat yourself up about feeling frustrated, okay? :)

Two, you have a really great boyfriend, but you already know that!

And three, FEEL BETTER!!!!! Seems everyone has times where things hit them all at once, (again for me now) but in the end, it will work out!

Now go take a nap!!! :)

Karrin Rookie
I am just having a few days of self-pitying, so I was hoping you guys might understand where I'm coming from! I'm just so overwhelmed right now with everything! I've had such a tough year and I'm just ready for it to be over! Since January 2009 I have had pneumonia twice, strep throat twice, 3 other viral infections, an ovarian cyst, diagnosed with Celiac disease (which was a good thing actually), the flu three times, bronchitis, my asthma is getting worse, kidney stones, Fifths Disease, a few colds, and mono. It just seems like my body has not had enough time to recover from one thing before I'm hit with the next. It's just one thing after another, after another... I'm so tired, so worn out. My body is just screaming at me to just sleep for days and days and days at a time...but of course, I have to work full time! I'm so emotionally drained from all the doctors visits, tests, hospital visits, ER visits, labwork, missing work... It's just EXHAUSTING!!! In the month of November alone I had the flu for 5 days, kidney stones for a week and a half, and Fifths disease just this past week -- now I know Fifths disease isn't really a serious thing at all, but this rash ITCHES LIKE CRAZY!!!! I look like a dalmatian with pink spots!

I've started getting embarassed about the number of times I've been sick. I feel like I'm burdening my boyfriend with all my many illnesses. He's been wonderful about it all and has taken great care of me, but I still feel really bad about it all. I am sticking so strictly to the gluten free diet and pretty much all of my Celiac stomach symptoms have gone away -- and the joint pain, head fog...so I'm incredibly glad about that. I take vitamin supplements, eat tons of veggies and fruits. I don't eat red meat, hardly ever drink, and I don't smoke. But it's like my immune system realized it doesn't have to fight the Celiac anymore, so it decided to take a freaking vacation for a year!!!

I just really need some words of encouragement! Now yes, I realize it could be a TON TON worse! None of what I have could compare to some of the things some people on this board have to deal with on a daily basis, so in that sense, sorry for complaining! I'm just so overwhelmed and I feel like I'm an emotional breaking point with all these illnesses!

And not to mention the other emotional stressors -- mom is having some major blood pressure, diabetes issues. My parents divorced because my dad had an affair and he decided to leave the family to be with the other woman. Now he calls us or texts us to tell us how much better his life is now without us. Or the other thing he texts us about is whether we'll feel bad or sorry or feel like it's our fault when he decides to kill himself.... Those calls generally come during the middle of the night....

So anyway, thanks for listening!!!

I know how you feel in regards to feeling like a 'burden'. I went undiagnosed for years, nearly 5 of those I have been too sick too work and not knowing why. My poor husband has had to pick up all the slack and I feel awful about it. I'm very luck to have such an understanding man in my life. It can be extremely frustrating - the isolation and the complete lack of control over your own body. It's often like life is passing you by.

If you are still getting sick all the time I would be a little concerned, especially with the extreme fatigue you say you are still experiencing. Sometimes people with autoimmune disease have overtaxed immune systems - that is our immune system is so worn out fighting our own body that the stress makes us very prone to illness. In my case I had other undiagnosed autoimmune conditions beside celiac sprue that failed to turn positive in blood tests, my doctor had to go off of my symptoms, many of which improved or went away with the gluten-free diet - but not all. I was still very sick 6 months into the diet. I'm now on prednisone and having a period of remission - the best I've felt in at least 5 years! So be on the lookout, know your own body and don't be afraid to pester your doctor about all your options if you are still concerned something isn't right. Don't settle!

I hope you feel better! Here's hoping for a great 2010!


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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