Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Quick Question Re: Dh.


rueyn

Recommended Posts

rueyn Apprentice

If the area that's effected doesn't hurt (everyone mentions PAIN), is it still DH?

Also, if you have DH, but your household isn't gluten-free, what do you do if you have to come in contact with wheat? For instance I have to fix my 3.5-y.o. son sandwiches. Do you wear gloves or just wash your hands afterward or what?

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



glutenfreenew Rookie
If the area that's effected doesn't hurt (everyone mentions PAIN), is it still DH?

Also, if you have DH, but your household isn't gluten-free, what do you do if you have to come in contact with wheat? For instance I have to fix my 3.5-y.o. son sandwiches. Do you wear gloves or just wash your hands afterward or what?

Thanks :)

hi,

been gluten free 5 years, and i prepare sandwiches and stuff for my son as well, just wash your hands really well. I try to keep the gluten seperate... my own toaster, cutting board-glass.. I have DH as well, the blisters that i started with were painful and weepy. over the years it has just become an itchyness and i still am trying to find the trigger especially for my scalp..very itchy and flaky i have tried all kinds of shampoos and am going to go corn, potato and rice free to see if it clears. hope i was helpful :)

rueyn Apprentice
hi,

been gluten free 5 years, and i prepare sandwiches and stuff for my son as well, just wash your hands really well. I try to keep the gluten seperate... my own toaster, cutting board-glass.. I have DH as well, the blisters that i started with were painful and weepy. over the years it has just become an itchyness and i still am trying to find the trigger especially for my scalp..very itchy and flaky i have tried all kinds of shampoos and am going to go corn, potato and rice free to see if it clears. hope i was helpful :)

Thanks so much for taking the time to respond! I already know I'm severely gluten intolerant (in my body and on my skin), and I have 90% of the symptoms of DH, except for the pain. The points are weepy and itch BADLY if I so much as lightly scratch them (hard not to do some times), but no pain (should probably be grateful for that ;)).

Something about your scalp...I had the same issue for about a year - itching that drove me crazy and was pretty much non-stop. Guess what was an ingredient in my shampoo? Yup. Wheat. It was a Burt's Bees shampoo, and I didn't even think about the connection to gluten intolerance until after I went gluten-free in March. As soon as I stopped using it the itching went away FAST, so you're probably on the right track eliminating other possible allergens.

Desert Essence Organics makes a shampoo that specifically says "gluten-free" on the label, and Amazon has it on mega sale right now. I use the fragrance free shampoo and condition. Here are the ingredients via their website for their shampoo:

Aqueous Infusion of Certified Organic Extracts: Organic Olea Europea (Olive) Leaf (2) and Organic Macrocystis Pyrifera (Sea Kelp) (2), Organic Urtica Dioica (Nettle) (2), Organic Camellia Sinensis (Green Tea) Leaf (2), Cocamidopropyl Betaine (1), Sodium Coco Sulfate, Decyl Polyglucose (1), Polyquaternium-7, Organic Simmondsia Chinensis (Jojoba) Seed Oil (2), DL-Panthenol (Pro-Vitamin B5), 1,2-Octanediol, Phenoxyethanol, Potassium Sorbate.1 Certified Organic by EcoCert 2 Certified Organic by QCS

In the meantime I give thumbs-up to Selsun Blue (the daily one with selenium sulfide). When I was transitioning between the wheat shampoo and the gluten-free stuff, it helped TREMENDOUSLY with the itching, though it stinks to high heaven :) I only used it once or twice a week, during my nightly shower. The ingredients from Drugstore.Com's website are:

Active Ingredients: Contains: Selenium Sulfide Lotion (1%)

Inactive Ingredients: Ammonium Laureth Sulfate, Ammonium Lauryl Sulfate, Citric Acid, Cocamide DEA, Cocamidopropyl Betaine, DMDM Hydantoin, D&C Red 33, FD&C Blue 1, Fragrance, Hydroxypropylmethylcellulose, Magnesium Aluminum Silicate, Menthol, Water Purified, Sodium Chloride, TEA Lauryl Sulfate

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.