Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Symptoms Other Than Gi Did You Have.....

NE Mom

Recommended Posts

NE Mom Apprentice
NE Mom
Posted

I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I had all the same symptoms you listed. I was dx'd with Celiac Disease in March of this year and Fibromyalgia in October after over 20years of these symptoms worsening with no diagnosis. My first months of gluten-free brought improvement to my bloating and other digestive issues, but none of the Fibro symptoms improved until just recently - I'm 9 months gluten-free and am supplementing with vitamins B, D, Calcium, Fish Oil, Malic Acid and some Essential Aminos.

I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

ciavyn Contributor
ciavyn
Posted
I was dx'd with Fibromyalgia two years ago but am now thinking that I might have a gluten intolerance. I've read a lot about the GI issues that go with Celiac but I'm wondering about other common symptoms. My main symptoms have been overwhelming fatigue, joint pain, overall soreness in all limbs, brain fog, cold intolerance, feel like I'm 40 years older than I am, GI issues which seem to arise with any dairy consumption, tingling in limbs, and RLS.

I'm curious what symptoms overs have experienced and how many have been dx'd with Fibro??

Thanks,

Sam

I've had ongoing fatigue, joint and muscle pain, and brain fog. All of which are improved after a little over a month gluten free.

Ahorsesoul Enthusiast
Ahorsesoul
Posted
I believe that the Fibromyalgia was a result of long term malnutrition from Celiac Disease. I'm 44 and have likely been Celiac my entire life.

I agree!!!

jerseyangel Proficient
jerseyangel
Posted

I have not been diagnosed with Fibro--although I still experience muscle pain that is more or less constant.

As for the Celiac, in addition to digestive symptoms I had tingling and numbness, feelings of "burning" from the inside on my feet and face, anxiety, depression, fatigue, severe dizziness (from the anemia), brain fog, general achiness, and something that I can only describe as clumsiness/unsteady on my feet.

lizard00 Enthusiast
lizard00
Posted

Overwhelming fatigue and pounding headaches were my two longest symptoms. The best we can figure, my pregnancy triggered my celiac, and I went gluten-free when my son was 2 1/2... so, I figure I caught it very early on. However, toward the end of my gluten filled journey, I was starting to have a lot of muscle aches, and somedays I felt beat up from the inside out. I think I was probably headed down a bad path, and thankfully caught a lot of stuff before it happened.

I am 2 years gluten-free, and I rarely have headaches, my fatigue is 100% better, and the unknown muscle aches are a thing of the past. I have a 4 yr old and an almost 4 month old who has just recently decided to sleep in a bed, and on some of my worst days, I still feel better than I did two years ago before I kicked the gluten. Hang in there! :)

NE Mom Apprentice
NE Mom
Posted
  • Author

Thank you everyone for your replies.

I also think my second pregnancy may have somehow triggered my Fibro (if that is really what it is). I was unable to eat multiple during this pregnancy because they made me sick, my daughter was born with a low birth weight and a anaphylactic allergy to dairy. See now has a total of 11 food allergies that we know of with the possiblity of more. My health has never been the same since giving birth to her.

The tTg results were all normal but I'm still waiting on the AGA IgG. A week of gluten free eating has me feeling better than I have in a couple of years until the last two days. Now I have to figure out if it is the roasted almonds from Walmart or the Honey Kix than may have contibuted to the debilitating fatigue the last two days.

Sam

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.