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Guest Doct.Giggles

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celiac3270 Collaborator

Oh, I see, cool. I thought there would be some simple meaning behind it, but I didn't know what it was . Thanx for answering.

Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol

:mellow::huh:^_^:o;):P:D:lol:B):rolleyes:-_-<_<:):wub::angry::(:unsure::wacko::blink::ph34r:


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  • Replies 86
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jazzyjess Newbie

hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

celiac3270 Collaborator
hello everybody

i just wondered can we eat emulsifiers llike soya lechitin?

does anyone know

:P thanks!

Yea...soy lecthin (spelling?) is fine...gluten-free.

jazzyjess Newbie

thanks

im so bad at reading the labels i usually just end up not eating things cos im not sure wether there ok or not and its safer so its great that i can find out some things i didnt know :lol:

celiac3270 Collaborator

When in doubt, check the forbidden list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

or the safe list: https://www.celiac.com/st_prod.html?p_prodi...-46105547579.c5

and if you are searching for something, do ctrl and f, pulling up a "find" box. Then you can type in the word you're looking for and if you're not sure of the spelling, just do, for example, "soy L"

jazzyjess Newbie

thats reli good i just visited it thanks so much when ever labels have long ingredients i never know whether there all right or not thats going to be very useful

im jess btw im 14 i became coeliacs around easter :P

Carriefaith Enthusiast
Nobody's asking me to do anything, but I'm inserting all the "emoctions" anyway, lol
I don't have all those smilies as an option, like the bashful one with hearts above its head and the sleepy one. Do you have to do something special to get those?

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gf4life Enthusiast

Carrie, at the bottom of the emoticon box there is a Show All option. Click on that and it will open up the whole box in a separate window. :)

God bless,

Mariann

celiac3270 Collaborator

Yes...I anticipated I would get that question :lol:

melly Rookie

hello my name is melly I technicaly wont be a teenager till the sixtenth of october i found out that i had celiac disease 2 weeks a go im still not felling well and still getting used to it some times it makes me sad seeing all i cant have and i think it would be really nice to talk to someone my age thats going through the same thing if you are please message me

ps is everyone here named tifany

celiac3270 Collaborator

no I responded to your other topic.

melly Rookie
I feel really young!!!! I am still 13 and won't be 14 untill October!!!!! :( But it is nice to find people close to my age!!! :huh:

-Tiffany

lol tiffany I am still 12 and i wont be 13 till october and i feel really young

PrincessLEah Rookie

turned 13 a month ago :D

PrincessLEah Rookie

I need some candy. BRB

Guest gliX

I'm too old for this section B)

  • 1 month later...
Thyraxeon Newbie

Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

KaitiUSA Enthusiast
Hey, i'm new to the board. I'm 18 and wondering if anyone would like to chat. if so you could reach me at Thyraxeon on YIM and E-mail me at Thyraxeon@yahoo.com, anyway i kind of feel alone in this Celiac thing, did since i was diagnosed in July 2002, since then i came on and off my diet for certaint reasons, dont feel like mentioning them right now. Anyway i'm more or less looking for some one around my age to talk to, like from 17-19.

<{POST_SNAPBACK}>

Hey I am also 18. You can email me anytime to chat.

petlover Newbie

I am 11 and very new to this whole thing. Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back. My mom tested negative but can't eat anything with gluten in it. I feel the same way she does when I eat it. So I will probably never eat it again even if the test is negative. It is nice to know there are other kids like me. :P . Most kids dont understand. It is hard when someone offers me something I can't eat but want to :(

Asia

KaitiUSA Enthusiast
I am 11 and very new to this whole thing.  Don't know if I have celiac disease, just had a blood test and it takes 2 weeks to come back.  My mom tested negative but can't eat anything with gluten in it.  I feel the same way she does when I eat it.  So I will probably never eat it again even if the test is negative.  It is nice to know there are other kids like me. :P  . Most kids dont understand.  It is hard when someone offers me something I can't eat but want to :(

Asia

<{POST_SNAPBACK}>

Were you gluten free at the time of testing? If you were not on gluten then the results may not come back right. I am glad that you feel better on the diet so you should continue to stick to it. There is so much stuff that you can have that your friends can have too so it won't be as hard when you get used to it and find things :D

2Boys4Me Enthusiast

Not a teenager ( :o since too long to mention) and my son Ty who was just diagnosed with celiac disease won't be a teenager for almost 7 years!

I'm just posting to say there are young celiac disease kids out there, we don't know any of them though ;)

Linda, mom to Ty my 5.5 year old Celiac kid.

petlover Newbie

I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

dragonzzz Newbie

I'm 10 but i'm almost 11. My mom can't have gluten and neither can my sister. I got tested and the results haven't come back yet but i can't eat anything with gluten in it for the time being :( . i hate it cause half the things i eat have gluten in them and i luv them soo much. I have been feeling better since ive stopped eating it. One of my symtoms was gas. Sometimes it was so painful i had to stay home from school. I had diarrhea with it and was doubled over when it was really bad. But since i went gluten-free i havent had any gas! I ws wondering do any of u guys have the same symptoms as me? Or any other symptoms...

dragonzzz Newbie
I have not eaten gluten for only 2-3 weeks but have had a few accidents.  Some how now when I have an accident it hurts so much more

<{POST_SNAPBACK}>

I luv your avatar!!! Is it u? :D

celiac3270 Collaborator
    I have not eaten gluten for only 2-3 weeks but have had a few accidents. Some how now when I have an accident it hurts so much more

Absolutely. As your intestines heal they become more sensitive to gluten...and are less accustomed to it, yielding a more painful reaction when you do accidentally ingest gluten.

dragonzzz Newbie

I know ur not talking to me but that is really cool!

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    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
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