Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Gluten-Intolerant & Vegetarian


USFgirl

Recommended Posts

USFgirl Newbie

Hi everyone!! :)

I'm so happy I found this forum -- glad to have some support with this situation.

Let's see, I'm not sure where to begin. My doctor told me (back in August) that I am VERY likely gluten intolerant. I had an endoscopy done and I am not a celiac, but my doctor wanted me to try the gluten-free diet to see if it would help me. I've had headaches almost every single day for the past 10 or 11 years of my life. I'm now 21 years old so you can imagine how I have felt most of my life growing up. It's been awful and I am ready for these headaches to leave my body forever.

A few issues: Obviously I'm struggling with grasping the concept of the amount of food types that I can no longer eat, and it's even more difficult for me since I am a vegetarian & a VERY picky eater. I haven't been able to stay on this diet for more than a day. Pittiful, I know :(

I also find that I just cannot afford the gluten-free foods. The only real change that I have made in my diet is I now only eat gluten-free Quinoa pasta-- no more real pasta, which is killing me because it's my favorite. I miss it more than I could ever explain.

And lastly, I still live with my family and I find it impossible to attempt to eat a gluten-free meal when their meals ALWAYS include gluten and/or meat. I find myself utterly dreading meals because after a long day of class, work, and studying I still have to come home, figure out what on earth to eat, attempt to avoid gluten, and sit with my family while they eat their gluten.

Another issue is I am always hungry and can never seem to fill up. My doctors can't find anything wrong with me regarding that issue and say it's "normal".

Before anyone asks, no my family is not willing to go gluten-free with me. It's honestly just too expensive and none of us can afford it. :(

Like I said, I'm glad to be here. Does anyone have any advice for me?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

You are going to rely on the other sources of protein like beans and nuts to make up the difference in your diet.

I would suggest that you take vitamins to supplement.

My natural headache cure.... Vitamin supplemented water like Smartwater, with a sublingal vitamin B12 supplement, deep breathing for relaxing the muscles, and "remember what it feels like not to have a headache" mantra.

RiceGuy Collaborator

Welcome to the board!

First, it is always a good idea to stick to whole, naturally gluten-free foods, especially at first. Plain veggies, fruits, beans, gluten-free grains, nut, seeds, etc, are the things to buy. Preparing meals from scratch is not only safer, but more nutritious. Your body needs the nutrients, hence the hunger you're experiencing. That is quite common, and will subside as you heal. Keep in mind that the endoscopy is hit and miss, so you could very well have Celiac. However, the diet is the same either way.

The length of time it takes to heal varies widely from person to person. I had a ravenous appetite for about a year, and my digestion was practically non-existent.

That said, you can have real gluten-free pasta, and it tastes every bit as good as the gluten-filled stuff. I haven't tried quinoa pasta, but the consensus around here is that Tinkyada makes the best gluten-free pasta. IMO it is even better than the traditional wheat pasta.

One thing to keep in mind too, is that there is often a period of withdrawal. Especially when gluten-filled foods have been your favorites. This often means that none of the specialty gluten-free foods will satisfy at first. Research has found that gluten and casein can act as opioids. That is, they can actually create some of the same effects in the brain as heroin. This is one reason why gluten-filled foods are so often our favorites, and we can't imagine having to do without them. They truly are addicting. This is one very good reason to skip the specialty gluten-free items for awhile, because they often just don't satisfy what we think we like about the traditionally made ones. I believe this is also what makes many people picky eaters. But that can change, once gluten-free for awhile.

Eventually, you'll be feeling better, and may enjoy some of the specialty gluten-free products. But most agree that homemade gluten-free breads are by far the best. The prepackaged gluten-free breads just don't measure up, for the majority of us. Homemade also costs considerably less.

Anyway, being vegetarian shouldn't make things more difficult at all. Just remember to feed your body all the nutrients it needs. Beans and other legumes, whole gluten-free grains, nut and seeds, can all provide plenty of protein as well as other nutrients.

Also, it is important to avoid CC (Cross-Contamination) from your family's foods. Use only smooth-surfaced pots and pans, and wash them separately, by hand, using gluten-free soap and your own sponge/cloth. Never use cast iron pans, wooden utensils/cutting boards, rolling pins, etc. Don't use scratched non-stick pans either. If you want to toast gluten-free bread, you'll need your own dedicated gluten-free toaster. Do check all skin/hair care products, makeup, etc, to make sure they are gluten-free. Call or email the company when in doubt, and of course this board has many fine members who are always willing to help answer your questions.

USFgirl Newbie

Thank you both so very much for your responses! :)

Janessa Rookie

I am also vegetarian and there is still tons of stuff for you to eat

If you have a Trader Joes near you they have tons of gluten free food much cheaper, I like their brown rice pasta the best, they have mac and cheese, brownie mix, pancake mix, and they will print out a list of all the gluten free stuff they carry if you ask.

you can make rice, risotto, you can get corn tortillas with beans, cheese and veges or quesadillas, making indian or thai food is easy and doesn't normally require any special expensive ingredients.

make extra and label it in the fridge or freezer and make sure your family knows not to touch it so you have extra meals

There are a lot of vege gluten free cookbooks you can probably get at the library for free

Welda Johnson Newbie

Welcome friend,

I think you are more than halfway to success, starting this diet as a vegetarian. You are already used to eliminating certain foods from your menu, and that is half the battle for newcomers. Meats, fruits & vegetables are the only foods I can tolerate, and I've been on this diet for many years. Believe me, it does get easier, and you will feel so much better and be so much happier with life. There are so many foods that you can enjoy as a vegetarian (I often go vegan for years at a time, then add chicken or turkey when I crave them). I sometimes go to my favorite restaurants and stock up for a few weeks at a time, breaking the food down one by one into 8 ounce styrofoam cups that I label & put into the freezer. Refried beans, rice, salsa & tamales are some favorites, along with the chicken, fish & turkey. I make fresh pineapple smoothies and freeze them, then blend them a second time to make them into ice cream. Oranges, kiwi, pineapple, acorn & banana squashes, potatoes--I stock up on them so they're always in my kitchen--it makes life so much easier. I think you'll find yourself eating pretty much the same foods over & over as you progress, so it's good to have them around when that overwhelming hunger hits. I usually eat every two hours, and I always eat all I want. I weigh 94 ounds and am under five feet, so I am now GRATEFUL to be on this diet. I've seen on tv recently that this is the diet a lot of health-conscious experts are now recommending, so, thankfully, we are ahead of the game. I wish you all the best as you travel this road to great health. Best wishes, Welda

Reba32 Rookie

it is SO EASY to be vegetarian and gluten free!

Broccoli doesn't have gluten. Nor do eggs. Or lettuce. Or spaghetti squash. Or tomato sauce. Do you eat fish? no gluten there.

You don't have to use the expensive manufactured and packaged gluten free alternatives. Go for whole, natural foods as Mother Nature intended. If you feel like baking something, buy some whole blanched almonds, stick them in the food processor and make your own flour (soooooooooo much cheaper than buying already ground almond flour!).

My husband won't do gluten free either, and I'm having a heckuva time trying to convince him that even one crumb from his morning Eggo could make me sick, so I understand living in a "mixed" household. But it is not impossible. You just have to think outside the food box, and do what you need to do to get well.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mskedi Newbie

Gluten-free and vegetarian makes eating out more limiting -- but, if you've been vegetarian a long time (I think I'm at around 14 years), then you're already used to ordering off a fairly limited menu (or creating your own meals and asking the chef to whip them up), so it's not too bad.

Other than cutting out pasta and bread (I use gluten-free versions occasionally), my diet at home hasn't changed all that much. I did start taking a multivitamin and it's helped quite a bit; I'm also thinking of getting some protein powder to add to my fruit smoothies because I feel like my protein intake has gone down just out of bad planning. While I get the hang of things, supplements are perfectly ok by me.

The one change I made to my vegetarianism is that I now eat eggs. I don't have them often, but it gives me an added option when I eat out, and I've found that after being glutened (which is happening less and less often) and losing lots of nutrients through D and V, eggs are one of the few things I can keep down. They still gross me out and maybe someday I'll cut them out again, but for now it seems to be a concession I have to make for my health.

Evangeline Explorer

I'm a vegan who is embarking on this gluten-free journey. I've decided it is easier to learn a few raw food recipes to make things simple.

I suggest you take sublingual Vitamin B12 tablets. If you are a celiac, you most likely are not absorbing the B12 because you are not making intrinsic factor, which is needed in B12 absorption. So buy sublingual tablets!

mangomagic Newbie

I'm vegan and gluten free, so it can definitely be done. I eat lots of rice (which is cheap) and rice noodles, also have started making things like corn fritters and polenta. It doesn't have to be expensive.

kbug Newbie

Oh my!

I have horrible headaches when I eat gluten, I still live with my family too... and I'm a vegetarian as well!

It's horrible to live life in pain. I did it too and it's wonderful to feel ALIVE again... don't hurt yourself for your family's sake. I made this mistake and it isn't going to happen again. No matter how much you love them, you can't sacrifice your health (basically your day to day life, and happiness!) for someone else's convenience. Please try a gluten free diet! And try to stay on it!

I have a headache right now that I got from some root beer earlier... :blink: they are really bad headaches! Mine go all the way from the base of my neck and wrap around to my cheekbones.

Even if you can't afford most gluten free items (I can't either!) then try to read as many labels as you can. Raw fruits and vegetables don't have gluten in them and if you buy frozen, it shouldn't be too expensive. Don't feel like you have to sit at the dinner table and eat gluten. It is possible to fix your own, relatively cheap gluten free food!

Being a vegetarian makes it twice as hard, although it eliminates the worry of gluten being used as filler in chicken and other meats. Peanut butter (organic is usually gluten free), garbonzo beans, boiled eggs and nuts are all really good sources of protien, as I'm sure you know! Watch out for tofu, it can contain gluten.

Good luck! You're not alone! :D

  • 2 weeks later...
USFgirl Newbie

Wow... again, thank you ALL. You all are so helpful & supportive. One of these days (hopefully sooner rather than later) I will tell myself that I WILL stick to this diet. :)

starrytrekchic Apprentice

I've found it fairly easy to stick to a gluten free veggie diet (at least at home) and have it cheap. Just don't be suckered in to buying the replacement items like bread mixes and such--they're too expensive, and you've already said you don't have the time to make them. Here are my quick and easy veggie standby meals:

Breakfast:

cottage cheese with trail mix and/or fruit

yogurt with trail mix and/or fruit

eggs with salt, pepper, and/or cheese

chex cereal with milk (several flavors to chose from), fruit

if you have a little more time, omelets

lunch & dinner:

celery with chunky peanut butter

salad--takes only a few minutes to chop everything up

veggie steamers--you put them in the microwave for 5 minutes and they come out steamed (frozen food aisle), add cheese if you like

corn tortillas--these are my standby. I put any combination of rosarita's vegetarian refried beans, cheese, hummus, sour cream, avocado, lettuce, tomato, etc on them. Heat them up in the microwave--takes five minutes to make, tops. Also consider taco shells to change things up.

also you can add the cottage cheese or yogurt from the breakfast menu.

If you've got some time on the weekend, it can help to prepare meals for the week all at once--also cuts down on cross contamination because you don't have to do it over and over again. Here's some that take a little more time, but can be frozen or put in the fridge. All cheap.

Veggie soup--whatever frozen or fresh veggies you want, water or vegetable broth, lemon extract, salt and pepper, a can of tomatoes to add flavor

Potato soup--slice up the potatoes boil in water until they're soft. Then drain, add milk, butter, salt & pepper, sour cream if you like, and heat up again. Add cheese afterward.

Beans--these are great because if you set them out overnight, then let them cook during the day, you'll have a bunch of beans that you can add to anything during the week. You can have bean soup, add them to the tortillas, eat them by themselves, add rice to them, whatever. Very versatile.

Baked potatoes. Just pop them in the oven when you have time, then put them in the fridge for later. Heat up and add sour cream, cheese, and butter when you want them.

Most of these can be cooked in a really short time. Really you just need to find a few easy to make dishes, and always make sure you have something on hand to eat or that can be fixed quickly. Canned soup and canned veggies are also quick and easy to make. Fresh fruit and veggies can be cheap and easy to add too. And when you have that odd day with spare time, whip up some of the above dishes for the next week.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.