Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Florida?

simplyconfused

Recommended Posts

simplyconfused Newbie
simplyconfused
Posted

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K.Darling Rookie
K.Darling
Posted

hi, i live in florida and im 20 and very confused as well? have you been diagnosed?

twe0708 Community Regular
twe0708
Posted

I live in Tampa and was diagnosed about 6 months ago.

laurelfla Enthusiast
laurelfla
Posted

I was in Florida but have moved. There is a great support group in Orlando! Look them up and try to go to a meeting, if you can. :)

  • 1 month later...
taylor- Rookie
taylor-
Posted

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

  • 1 month later...
RideAllWays Enthusiast
RideAllWays
Posted

Sarasota has an amazing gluten free bakery!

GF Traveling Dude Newbie
GF Traveling Dude
Posted

I'm moving to Florida in a couple years; seeking friends in the meantime. I'm 30 and travel there often.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

HI! I"m 28 in the Daytona Beach area. Have a 3 year old, and a 5 year old. Waiting on test results to come back next week. Have been gluten-free for 2 weeks now. Was also on Dr. Phil in Sept, and if it wasn't for all his show has done for me, I would have NEVER known!

I can't find any support groups in the area and thinking about starting one.

  • 2 months later...
jparsick84 Rookie
jparsick84
Posted

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

cO-ol Explorer
cO-ol
Posted

Hey! I know this was posted last month..but I haven't been on here in awhile. I'm 21 and I live in Florida! I'm from the Tampa Bay area originally but live in Tallahassee now for school. I've had Celiac Disease for 19...almost 20 years :) don't worry it gets better. If you have any questions feel free to ask.

I'm from the Tampa Bay area too! Still live here as well. :)

  • 1 month later...
laurelfla Enthusiast
laurelfla
Posted

jparsick84, you don't have to be that paranoid in my opinion -- of course, we all have differing levels of sensitivity and you will hear of people that do not worry about such things and people that would never dream of kissing someone who had had a beer. I make my husband rinse his mouth out after beer, and brush his teeth after eating gluten. I haven't ever gotten sick from kissing him. :)

  • 4 weeks later...
scuzy Rookie
scuzy
Posted

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

I can vouch for the kissing thing, IT SUCKS!!!!!!!!!!!!, I guess everyone is different though, but one night I kissed a guy after he had eaten pizza a few hours earlier and I still got glutened... I read in a book somewhere that if you are dating a not gluten free person make sure they brush there teeth before you ever kiss them to avoid the horrible consequences.

  • 1 month later...
NolesChick Newbie
NolesChick
Posted

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

  • 3 weeks later...
taylor- Rookie
taylor-
Posted

I'm Christy, from the Tallahassee area and have been gluten free since September of 2010. I was diagnosed a few years after a family member found out she had it. Just wanted to say hello!

Hey Christy! I live in Tallahassee too! Welcome :)

  • 8 months later...
lsteward68 Newbie
lsteward68
Posted

Hi, My name is Laura I live in Cocoa Fl. My Son who is 14 almost died of type 1 Diabetes, I went to the library to get info on Diabetes and a cook book, in the same area I found a book for ADHD & Autism cookbook going gluten free and casein free which my second son is very hyper with low concentration? So I picked up that book too, to my realization all the symtoms that were described in the book was what I myself was feeling... So being un-employed with no insurance I went on an internet scout of my own and found some very interesting and scary facts about type 1 Diabetes and Celiac Disease. After a day of information overload, I went to my cabinet and filled three boxes full of food and frozen foods that I imediately gave away went to the store to see what I and my family can eat. I bought bread flour and all the other things that I could imediately eat and fix for dinner. From that day on which has been two weeks now, I can get out of bed without feeling bad and I have eaten food that does not make my stomach hurt, and I do remember things now. Not sure if I am Coeliac or not but the whole Me is much better. I told my ex to take my oldest son to the Dr. to get the test ( he has insurance for him ) hopefully he will, have not heard or not. Thanks for the vent session. If there is anyone out there with input or more info that will help feel free to let me know...

Mike Menkes Newbie
Mike Menkes
Posted

hi im sarah from lake mary florida im 20 years old. anyone else in florida with celiac disease?

I have lived in Florida off and on since 1970. I have found gluten-free foods to be more accessible than ever.

Mike Menkes Newbie
Mike Menkes
Posted

I'm 26 and I live in Orlando. Has anyone tried dating after being diagnosed? I've heard horror stories about kissing a guy after he had a few beers and then being sick...I'm unsure how paranoid I need to be in that aspect. Any tips?

Also, if anyone has any questions about eating out in the Orlando area, especially Disney, please don't hesitate to contact me! I've been living here for almost 2 years now, so I've had a good chance to scope out some favorite restaurants. :)

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

IrishHeart Veteran
IrishHeart
Posted

"Better a night alone than a night with bad company"

PS: How many is a few beers and why so many??

Just so you know, you are replying to a post that is old---(Dec. 2010) and the person may not see your reply.

  • 2 weeks later...
TravelnVal Newbie
TravelnVal
Posted

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

IrishHeart Veteran
IrishHeart
Posted

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

MarilynR mentioned it to me. PM her! :)

kareng Grand Master
kareng
Posted

Has anyone been to the gluten-free expos held in West Palm Beach, Fl??? Heading that way next weekend, will it be worth my time to check out the different products???

Looks like several forum members will be there:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,878
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.