Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Overreacting Here?


horsegirl

Recommended Posts

horsegirl Enthusiast

I've been following the restrictive diet lifestyle for nearly 3 years, with good results for the most part. I am the one who cooks the meals in our household, mainly because my husband won't cook, even though we both work full-time (that's a topic for another day!). I would think by now that he's also well-aware of my restrictions, because he sees me struggle with meal planning, shopping, & dining out, but I feel like he still just doesn't "Get It" much of the time. For example, for my birthday, he bought me 2 boxes of flavored tea, neither of which I could drink because they contained barley extract. For Valentine's Day, he planned ahead & went to a gluten free restaurant/bakery & purchased lasagna, cinnamon rolls, & bread, for a special dinner for our family. That was incredibly sweet to me, because he doesn't usually do that. However, he neglected the fact that I can't have soy either, & all of the things he purchased had soy in them, so I could eat none of them. Only 1 week prior I had been to that bakery, & came home frustrated because they use soy in almost everything, which I very clearly told him.

Other times, he will do something like cut up a pineapple for all of us to have, neglecting to wash his hands first after having just eaten toast or bread or something equally "gluten-y", so what he's cut up becomes contaminated for me. I have explained my restrictions many times to him, including the risk of CC at home since he eats gluten. I tried to kindly express my frustration to him again after the Valentine's Day fiasco, explaining that while I LOVED the fact that he planned ahead, & did this all on his own as a kindness to me, I still felt left out because of the soy issue. I also told him that if the tables were turned, I would have felt mortified, apologized all over the place, & gone to the store to buy something to make him from scratch so he could still join in the nice dinner. However, once he realized his mistake, he didn't offer anything of the sort, & I cooked my own dinner. With the pineapple incident, he didn't apologize either, & basically said I'm making too big a deal of it because he made a mistake, & "there's more at the store if you want some".

I know this is a long rant, but as you can see, I'm frustrated by all of this, especially since this week I've been struggling with clearly being contaminated somewhere because I've been ill.

Any suggestions, or people who might have had similar situations in their relationships?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

I don't think others can truly understand how gluten is effecting someone unless they have gluten intolerances. My DH told me he took a clean knife to cut a squash so what was left in the refrigerator would be safe for me to eat. He was trying but I doubt he washed his hands first or washed the "clean knife" before using it. If he did, he probably used a contaminated towel for drying his hands or the knife. He tries, but just doesn't get it.

I find I can only rely on myself to be careful of cross contamination. I do all the cooking for myself and wash all the dishes, even the ones he uses just to make sure they are clean enough for my use.

I think it is easier for a woman to understand this issue as on the whole, women are more nurturing. I'm not saying this to put down guys, just that this is what I observe. I do know a few men who are very understanding and supportive of their spouses health issues and basically bend over backwards to cater to them. Not my case.

While my DH does try, he gets upset when I correct him on something he does that can cause contamination. I think he just feels so bad and his way of handling it is to get defensive.

On a brighter note, today my dear husband asked me how quinoa tastes. I offered him a spoonful and he said he couldn't use my spoon because it would get cross contaminated. I didn't even think of that. I grabbed a clean spoon for his taste. He saved me from a possible disastrous situation.

nmlove Contributor

My husband tries too and of everyone, he's the one that most gets it. But there are still issues. Though we are relatively new compared to you (6 months). I think it's because he's not at home dealing with it every day. I'm the one who does the planning, most of the cooking, etc. for our household (us and three kids). He eats lunch at work and can still eat whatever he pleases, whenever he pleases and as we all know, we've all been there, you don't really think that much about food. So maybe that's some of it with your husband. Though I didn't like reading he didn't apologize - it can be a big deal!

sandsurfgirl Collaborator

It sounds like your DH is trying really hard for you, and all you can do is applaud his efforts. It's so convoluted and hard to understand for us celiacs, I just think it's very hard for them.

It is so sweet that he did that for you on Valentine's Day. He went way out of his way and probably felt embarrassed and awful that it still wasn't right. Men need to feel successful and if he feels like he's blowing it at every turn, he might quit trying.

Gentle reminders and HUGE thank you's when he gets it right are the way to go. He sounds like you have a good guy there!

In the pineapple incident, could you have washed it off and then cut the outside edges off the pieces you were going to eat? Maybe you are too sensitive even for that, but the point is, find a way to make it work when he tries. The more you praise him, the harder he will try. Men are sort of like puppies that way! (Sorry guys but you know it's true!) Works like a charm with my husband and he freely admits it. ;):lol:

horsegirl Enthusiast

Thanks for the perspective, everyone. I know he's trying, & the Valentine's Day thing was very sweet. I guess I still grieve not being able to feel "normal" & eat whatever I want, whenever I want. There's no way for him to truly understand that, though I wish there was!

I will continue to praise him when he tries, & remind him if things are unsafe for me. I just hope he's able to accept that I'm not criticizing him, I'm just trying to stay healthy!

Roda Rising Star

I've had to take another look at my household. I'm the gluten free one of the bunch. I have a husband and two boys ages 9 and 5. Since Jan. I have been miserable. I am in the process of ruling out gallbladder issues, but since my aga was still elevated I had to look at crosscontamination issues as well. I sat back and realized there were areas that needed improvement. Hubby is great and knows this makes me sick, but there were a few things he need to pay more attention to. It is really hard to change. When I first started it was hard for me too. He is now doing some things differently and I sooooo appreciate it. There are some things in the house that are just a given that are contaminated. Phone, comuter etc. I'm still working on those but the kitchen area is much better. I still have to remind him of things, but not as much. I think me not feeling well put things back in perspective.

sandsurfgirl Collaborator

Thanks for the perspective, everyone. I know he's trying, & the Valentine's Day thing was very sweet. I guess I still grieve not being able to feel "normal" & eat whatever I want, whenever I want. There's no way for him to truly understand that, though I wish there was!

I will continue to praise him when he tries, & remind him if things are unsafe for me. I just hope he's able to accept that I'm not criticizing him, I'm just trying to stay healthy!

We're all grieving aren't we? I know I am. I grieve everyday right now because I'm still pretty sick much of the time and can't figure out why, or maybe it's just withdrawals still. Here's a hug. We can cry together!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsegirl Enthusiast

We're all grieving aren't we? I know I am. I grieve everyday right now because I'm still pretty sick much of the time and can't figure out why, or maybe it's just withdrawals still. Here's a hug. We can cry together!

Thanks for the support - we all need it! And I do appreciate it.

kbug Newbie

It's because they don't understand... they don't have to live with the pain. It becomes very difficult with family and friends, because unless they are really trying to do what's best for you, they won't really think about the fact that one little protien in a tiny amount will make you suffer for days. This is why communication is really important, and sometimes it doesn't help. But we keep on trying anyway! If he loves you he defintely should put out some effort, not just what is convienient for him.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,369
    • Most Online (within 30 mins)
      7,748

    Nick H.
    Newest Member
    Nick H.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...