Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can'T Figure Out What Caused Reaction, I Need Help

DoodleDog

Recommended Posts

DoodleDog Apprentice
DoodleDog
Posted

Hello,

Been very careful past two weeks with gluten, dairy and soy free diet and just woke up with a reaction. Ankles hurt, fingers little numb, head heavy, tired and very tempermental. I only had a few different things in my diet yesterday that I will list. Do any of these items look like a red flag for gluten?

White rice flour (I made Sue's white rice muffins from bobs red mill)

Almonds (used in the recipe above)

Popcorn (I air popped, and was purchased from local farmers market bag indicated tiny yellow popcorn)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Darn210 Enthusiast
Darn210
Posted

What brand was the Almonds? . . . sometimes they are processed in the same facility or on the same line as wheat products. My daughter doesn't have a problem with same facility type products but some people do.

So was the farmers market product actually commercially packaged or packaged by the farmer? If it was packaged by the farmer, that would be my leading candidate.

horsegirl Enthusiast
horsegirl
Posted

Hello,

Been very careful past two weeks with gluten, dairy and soy free diet and just woke up with a reaction. Ankles hurt, fingers little numb, head heavy, tired and very tempermental. I only had a few different things in my diet yesterday that I will list. Do any of these items look like a red flag for gluten?

White rice flour (I made Sue's white rice muffins from bobs red mill)

Almonds (used in the recipe above)

Popcorn (I air popped, and was purchased from local farmers market bag indicated tiny yellow popcorn)

Have you checked medications you're taking? Toothpaste? Vitamins? Is your kitchen completely cleaned of gluten/dairy/soy? There are many different things that could cause a reaction, & sometimes it's very hard to pinpoint what it is. Perhaps you are also sensitive to corn?

Good luck, & hopefully you'll feel better soon.

Darn210 Enthusiast
Darn210
Posted

Hello,

Been very careful past two weeks with gluten, dairy and soy free diet and just woke up with a reaction. Ankles hurt, fingers little numb, head heavy, tired and very tempermental. I only had a few different things in my diet yesterday that I will list. Do any of these items look like a red flag for gluten?

White rice flour (I made Sue's white rice muffins from bobs red mill)

Almonds (used in the recipe above)

Popcorn (I air popped, and was purchased from local farmers market bag indicated tiny yellow popcorn)

I also just want to mention that in the beginning, there are a lot of ups and downs that aren't necessarily associated with the food you eat and the products you use. You should still be thorough and check everything out (or not use those items again or at least not use them for a while) but sometimes in the beginning, you just won't be able to trace it to something.

jststric Contributor
jststric
Posted

I am very much that way with white rice flour also.

DoodleDog Apprentice
DoodleDog
Posted
  • Author

Thank you all for your comments! The corn was packaged by some farmer, no list of ingredients, just packaged in a clear bag. The almonds were bought at marks, packaged by harrell nut company, no phone number. I am not on any medication, my stomach is just now tollerating fish oil gel pills, calcium plus V D3 and just today started taking a multi vitamin ... all of these are from solgar. Regarding the health and beauty I have gone through everything... I think all is gluten, soy free. Last I have gluten crumbs everywhere in kitchen ... I keep my stuff sep. from everything else and use kitchen cleaner bleach to wipe the couners down consistently. I have cleaned every cabinet.

So anyway I guess I should get rid of the almonds, and popcorn. Just not sure if I can have the rice flour.

I am trying to be positive and my reaction is just draining not as bad as I have had ... but... I am so frustrated with myself! I should only add in one new thing at a time. Sometimes I wish I would have just gotten tested before doing all of this. Maybe life would be a great deal easier!

dilettantesteph Collaborator
dilettantesteph
Posted

Some celiacs, myself included are sensitive to the protein in oats as well. Last I knew Bob's processes their gluten free oats in their gluten free facility so their products are ruled out for people like me. Could that be your problem?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DoodleDog Apprentice
DoodleDog
Posted
  • Author

I stay away from oats ... I can always trace a reaction back to them.

GFinDC Veteran
GFinDC
Posted

....

So anyway I guess I should get rid of the almonds, and popcorn. Just not sure if I can have the rice flour.

I am trying to be positive and my reaction is just draining not as bad as I have had ... but... I am so frustrated with myself! I should only add in one new thing at a time. Sometimes I wish I would have just gotten tested before doing all of this. Maybe life would be a great deal easier!

You can probably wash the popcorn and dry it. Or just wait a while until you are feeling better and test it. Packaging equipment is often shared, so cross contamination can happen during that process. Imagine famer Joe packed up some whole wheat flour in the morning, and then packaged up popcorn in the afternoon. Unless farmer Joe thouroghly cleans the packaging equipment there going to be some cc.

Adding only 1 new food at a time is good policy. Not adding a another for a few days is also a good idea as reactions can take some time.

Testing is a good thing to do but doesn't really change anything. You still follow the diet either wya. You could do the gene tests at any time, but they only include you in the group of possible celiacs, they don't diagnose you. There is also Enterolab stool testing that can be done for some time after going gluten-free. Again, it doesn't diagnose celiac but does indicate if you are producing antibodies to gliaden. You can also do your own gluten challenge. Stick strictly to the gluten-free diet for a while and then eat some gluten bread or cereal for a few days. If you have GI symptoms normally then they should show up when eating gluten for several days. For most people anyway. There are celiacs who don't have GI symptoms and this kind of challenge wouldn't work for them. But if it does work it is as good a reason to avoid gluten as any other test. The old doctor joke applies. The patient says "Doc it hurts when I do x" The doc says " Then don't do x!". :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Seeeye
    Newest Member
    Seeeye
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…                 
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...