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Celiac Disease And Other Illnesses

twe0708

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twe0708 Community Regular
twe0708
Posted

What major health issues have you been diagnosed with since being diagnosed with Celiac Disease?

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Lgood22573 Rookie
Lgood22573
Posted

Hashimoto's disease (autoimmune thyroiditis) was my first, Celiac my second.

bluebonnet Explorer
bluebonnet
Posted

hypothyroid first, celiac years later. :(

MamaMeagan Apprentice
MamaMeagan
Posted

Well I have not been officialy diagnosed. I had a stroke and a positive ANA test, but nothing found.

tarnalberry Community Regular
tarnalberry
Posted

Since celiac?

Fibromyalgia/restless leg (and it wasn't just diagnosed after I went gluten free, it started after that).

Everything else - asthma, vulvar vestibulitis, chronic migraines, hypermobility - was before celiac, some long enough before that I am certain they are not related (and I'm actually sure that none of the others are related - for me - because the gluten free diet didn't change them in any way.

Reba32 Rookie
Reba32
Posted

since celiac diagnosis, I've also been told I'm vitimin D deficient and have high cholesterol. Both easily manageable with diet and supplements. I'm quite certain the cholesterol was elevated because of the gluten challenge and will go back down to normal levels the longer I'm gluten free.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Hypothyroism

Asthma

Chronic sinusitis

Then celiac. Hoping the others will get better or go away now that I'm gluten free.

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jerseyangel Proficient
jerseyangel
Posted

Microscopic colitis, endometriosis, adenomyosis, hypertension, TMJ, chronic allergic rhinitis.

GG-GFree Newbie
GG-GFree
Posted

I have been healthy my entire life and started having stomach pains this August (2009). I went to my Primary care doctor who thought maybe it was gastritis and prescribed me protonix. But the stomach ache didnt clear up so my Doc sent me to a GI who tested for celiac disease. Blood work came back postive, so an endoscopy was done which appeared normal but my biopsies came back postive for Celiac Disease [/b]and Eosinophilic Esophagits[/b]. This December I also developed Raynauds[/b]-which is a symptom associated with autoimmune disorders-when I am really cold my toes turn pale and go numb untill I warm them up. I'm only 26 and went from having nothing wrong with me to having three chronic conditons. My doctors have told me that often once someone develops an autoimune disorder they are more prone to develop another. So, know I am nervous that I might develop another condition in the future. While this is frustrating I do find myself fortunate that for the most part I actually feel pretty good, and am glad that my conditoins can be controlled though diet changes so I don't need to take long term medications.

Chrisco Apprentice
Chrisco
Posted

Endometriosis

Adenomyosis

Chronic Gastritis

Restless Leg Syndrome

Gall Bladder Disease (Had Gallbladder Removed)

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  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
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      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
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      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
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      My only proof

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    5. AlwaysLearning
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      Gluten related ??

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  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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