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Celiac Disease And Other Illnesses


twe0708

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twe0708 Community Regular

What major health issues have you been diagnosed with since being diagnosed with Celiac Disease?


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Lgood22573 Rookie

Hashimoto's disease (autoimmune thyroiditis) was my first, Celiac my second.

bluebonnet Explorer

hypothyroid first, celiac years later. :(

MamaMeagan Apprentice

Well I have not been officialy diagnosed. I had a stroke and a positive ANA test, but nothing found.

tarnalberry Community Regular

Since celiac?

Fibromyalgia/restless leg (and it wasn't just diagnosed after I went gluten free, it started after that).

Everything else - asthma, vulvar vestibulitis, chronic migraines, hypermobility - was before celiac, some long enough before that I am certain they are not related (and I'm actually sure that none of the others are related - for me - because the gluten free diet didn't change them in any way.

Reba32 Rookie

since celiac diagnosis, I've also been told I'm vitimin D deficient and have high cholesterol. Both easily manageable with diet and supplements. I'm quite certain the cholesterol was elevated because of the gluten challenge and will go back down to normal levels the longer I'm gluten free.

sandsurfgirl Collaborator

Hypothyroism

Asthma

Chronic sinusitis

Then celiac. Hoping the others will get better or go away now that I'm gluten free.


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jerseyangel Proficient

Microscopic colitis, endometriosis, adenomyosis, hypertension, TMJ, chronic allergic rhinitis.

GG-GFree Newbie

I have been healthy my entire life and started having stomach pains this August (2009). I went to my Primary care doctor who thought maybe it was gastritis and prescribed me protonix. But the stomach ache didnt clear up so my Doc sent me to a GI who tested for celiac disease. Blood work came back postive, so an endoscopy was done which appeared normal but my biopsies came back postive for Celiac Disease [/b]and Eosinophilic Esophagits[/b]. This December I also developed Raynauds[/b]-which is a symptom associated with autoimmune disorders-when I am really cold my toes turn pale and go numb untill I warm them up. I'm only 26 and went from having nothing wrong with me to having three chronic conditons. My doctors have told me that often once someone develops an autoimune disorder they are more prone to develop another. So, know I am nervous that I might develop another condition in the future. While this is frustrating I do find myself fortunate that for the most part I actually feel pretty good, and am glad that my conditoins can be controlled though diet changes so I don't need to take long term medications.

Chrisco Apprentice

Endometriosis

Adenomyosis

Chronic Gastritis

Restless Leg Syndrome

Gall Bladder Disease (Had Gallbladder Removed)

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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