Did Anyone Lose Weight After Going Gluten Free?

[cyclinglady]

4 hours ago, C. Capone said:

Hi all, I have been diagnosed with celiac for about five months now. My wife and I have both gone gluten free, thank goodness for her, she is a nurse. I an 54 years old and have been moderately overweight for the last twenty years or so, finding out I was celiac was a surprise because I had no symptoms, a routine endoscopy made my doctor suspicious, after ordering a blood test it was confirmed. I noticed almost immediately after going gluten free I started losing inches, my clothes became looser....then I started losing weight. Since being diagnosed I lost around thirty pounds and have dropped about four inches in my waistline, I really did not expect this to happen. My wife is not celiac but very health conscious, she lost a little weight but did lose inches as well. Apparently gluten does not agree with me at all and was stuffing me, frankly I am surprised at the overall loss. I am very pleased at the large selections offered at restaurants of foods that are gluten free. I still miss my breads and pastas ( I am Italian ) but the substitutes are not too bad, there is still work to be done on the breads, they are not the best. My wife bakes breads when she can with different flours, etc. Sorry for rattling on, great forum. I just joined! 

Glad you are doing well!  Welcome to the forum.  

[Bella44]

I was diagnosed 2 years ago with Celiac disease. Before I was diagnosed I was 305 lbs I ate so much. Then I got sick I knew something was wrong. Then I did and was diagnosed with Celiac. I have lost so much weight I'm at 100 lbs now. I'm so scared to eat I look at everything but I still break out in hives and get stomach issues. I'm getting concerned about my body and weight..

 

 

 

[cyclinglady]

1 hour ago, Bella44 said:

I was diagnosed 2 years ago with Celiac disease. Before I was diagnosed I was 305 lbs I ate so much. Then I got sick I knew something was wrong. Then I did and was diagnosed with Celiac. I have lost so much weight I'm at 100 lbs now. I'm so scared to eat I look at everything but I still break out in hives and get stomach issues. I'm getting concerned about my body and weight..

 

 

 

What does your doctor say?  When did you last get follow-up celiac disease testing?  Maybe your celiac disease is still active.  If you have not been retested, ask your doctor.  

http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/

 

 

 

[Bella44]

Got checked 6 months ago again. I do have Celiac just losing to much weight.

Scared to eat anything

[cyclinglady]

12 hours ago, Bella44 said:

Got checked 6 months ago again. I do have Celiac just losing to much weight.

Scared to eat anything

Please get to your doctor for help.  A referral to a dietitian may be very helpful to you.  

[Bella44]

Thank you. I work so much if I have time to go. I'm so sick all the time and shaky. Getting up to go to work my body hurts and trying to work is so hard.

[Jtopolsk]

I have been gluten free since June 2022. It's been 5 months now and I've lost 30 pounds as of today! Which is great for me because I was 190 pounds and and now I'm 159 as of today. I feel much better mentally and physically. 

[Scott Adams]

Congratulations @Jtopolsk, and welcome to the forum! Did you do any special diets, in addition to being gluten-free?

[Jtopolsk]

1 hour ago, Scott Adams said:

Congratulations @Jtopolsk, and welcome to the forum! Did you do any special diets, in addition to being gluten-free?

Hi Scott!! 
nothing other than gluten free! Just more water :)

[LaLeoLoca]

I could never lose weight no matter what! Three years ago I got supremely sick (I believe covid activated severe celiac) and put on 20-25 lbs overnight, despite not eating. It was totally bizarre, and very flurpy / blubbery / jiggly. I felt like I was wearing a water mattress all over.

16 days ago, put together the potential celiac pieces, and I have lost 18 lbs with no other changes. I'm bedridden and not able to be active, and I'm not eating much less than normal. So I believe my whole life, constant inflammation has gotten in the way of any "weight loss" progress, despite previously major activity levels, calorie counting, intuitive eating, whatever.

So, my weight loss plan: Be in a wheelchair on oxygen for three years trying not to die, cut gluten one day after a pizza made even sicker, then -tada!--lose 18 lbs in 16 days. Do not try this at home, people.

[Scott Adams]

Welcome to the forum @LaLeoLoca, and that is quite a story! Hopefully you will see even better health improvements going forward, and this article might be helpful:

 

[Gemma stotler]

Diagnosed Celiac 4 months ago……I am eating gluten free but have lost 10 lbs and can’t seem to gain weight at all! So frustrated! Any suggestions 

[trents]

1 hour ago, Gemma stotler said:

Diagnosed Celiac 4 months ago……I am eating gluten free but have lost 10 lbs and can’t seem to gain weight at all! So frustrated! Any suggestions 

Have you had your thyroid checked?

[Wheatwacked]

Hi Gemma, welcome to the forum.

It takes time. Remember also that "normal" weight today is about 25 pounds more than it was in 1970. They've adjusted the references so we don't feel bad about the out of control obesity crisis. More important is your Body Mass Index. 

After 8 years gluten free I finally have lost 30 pounds of belly fat over the summer. I peaked in 2014 at 185 lbs. 6'2" . Now at 150 lbs my weight when I was 25 and no longer look like a character from MAD magazine. Like I have a basketball embedded in my gut. BMI now 19.3 (normal) compared to 23.8 and feeling much better for it.

According to Dr Fuhrman (Eat to Live) with good nutrition your body will adjust to its optimum weight.

If you want to gain weight go for more calories of protein to increase muscle mass. Eating more carbs and fat may put on weight, but it will be stored fat, not what you want.

vitamins that turned off fat storage for me:

• 500 mg B1 Thiamine (no Tolerable Upper Limit set)
• 500 mg B3 Nicotinic Acid (*UL is 35 mg) The UL is set because Nicotinic Acid can cause flushing and itching at first because capillaries are allowing more blood flow, NOT a medical issue but uncomfortable and passes after a few days. 
• 500 mg B5 Pantothenic Acid (no Tolerable Upper Limit set)
• 840 mg Phoshatidyl Choline equals 500 mg choline (UL is 3500 mg choline)

*Niacin Fact Sheet for Health Professionals  "Thirty to 50 mg nicotinic acid or more typically causes flushing; the skin on the patient’s face, arms, and chest turns a reddish color because of vasodilation of small subcutaneous blood vessels. The flushing is accompanied by burning, tingling, and itching sensations. These signs and symptoms are typically transient and can occur within 30 minutes of intake or over days or weeks with repeated dosing; they are considered an unpleasant, rather than a toxic, side effect."

Edited April 3, 2023 by Wheatwacked

[Scott Adams]

I'm not sure about 6'2" @ 150 lbs. being an ideal weight, to me it seems at least 15 lbs. too low, even given the 1970's charts I grew up with.

[Gemma stotler]

Since I am already thin losing 10 lbs because of Celiac is a worry! Still struggling with what to eat! I seem to gain a few lbs then have stomach issues and lose it. Dr does No seem concerned! Any thoughts?

[trents]

7 minutes ago, Gemma stotler said:

Since I am already thin losing 10 lbs because of Celiac is a worry! Still struggling with what to eat! I seem to gain a few lbs then have stomach issues and lose it. Dr does No seem concerned! Any thoughts?

I'll ask again. Have you had your  thyroid checked?

Also, if you are still having stomach issues, I would wonder if you are still getting glutened sometimes from sources you do not expect. It's easy to achieve a lower gluten diet but to achieve a truly gluten free state in one's eating is more difficult than what first meets the eye. It requires education and constant diligence. Eating away from home, especially at restaurants and other people's houses is a common source of unexpected glutening. You may order something at a restaurant that should e naturally gluten free but back in the kitchen, unbeknownst to you, it is being thrown in the same pot of boiling water that was used to cook wheat spaghetti noodles or your eggs were cooked on the same grill as was used for French toast. Or it is sliced or handled with the same utensils that are being used for wheat things. And so gluten free things take on gluten from cross contamination. This might be helpful:

It is also possible you have developed other non-gluten food sensitivities, a very common experience among celiacs. Dairy, oats and eggs are common among them.

[Wheatwacked]

It got me a 4F. I expect to add meat now. 165 is respectable. When I weighed that it was early stage of toxic weight gain. Never felt healthy above 150.

 

[LaLeoLoca]

You might consider checking for other food intolerances. I learned I have a sulfur intolerance, plus histamine intolerance. Many people with celiac have several food issues. A big cue for sulfur is if you get sick after eating eggs.

You may also look into heavy metals and mycotoxin testing (hair, urine). After years of research I believe they could be major triggers for celiac. 
 

I believe if we don’t get well there is another underlying issue. The sulfur is a common seeming one on here though no one calls it that, but many here cannot eat eggs. That is how I figured it out. If you have a sulfur issue, also look for “low thiol” foods, as thiol turns into sulfur in the body. For me going low sulfur was not enough, low thiol was. They are healthy foods but not with these intolerances. 
 

I really hope you find your answers. People here can be helpful but each situation is individual and it is a forum. I am just sharing what has helped me. 

[redhead01]

On 3/12/2010 at 5:34 PM, Maddy1 said:

Nine months Gluten Free and 9 pounds heavier.....I was considered average weight before but if I keep gaining a pound a month I'm going to be WAY above average soon!

Thyroid out - get it tested it could be thyroid ?    Or selenium deficiency which is needed to convert thyroid hormone.

[Staci19]

Help me please. I am losing my body. Before I was diagnosed I had gained weight and looked healthy but I was bloated and vomitting all the time. I had boobs and I was very excited. Now I’m gluten free and I’m starving cause it’s expensive to eat gluten free and I have lost weight and I’m now depressed because I have no boobs left at all. Self esteem has gone. How can I gain weight in my boobs again without the gluten? Is it possible?

[trents]

Welcome to the forum, Staci19!

If you are willing to cook your own food, eating well and eating gluten free does not need to be expensive. Don't spend money on processed, prepackaged gluten free foods. Focus on fresh meat, fresh vegetables and fruit. Focus on cooking fresh and cooking simple. Calories can be had via potatoes and rice, seeds and nuts. There are lots of mainline regular foods that are naturally gluten free but you have to use discernment. As soon as they slap a "gluten free" label on something the price goes way up.

[cristiana]

H @Staci19

I agree with Trents.  Also, 'google' healthy fats and buy these products if you can (such as tinned fish, nuts, advocado, cheese). If you can tolerate dairy products, consume full fat versions.   When your weight increases, you should see a difference in your figure.  For myself, I am currently trying to lose some weight, having lost a lot of weight when I first was diagnosed over ten years ago it piled on again after a year or so!

 

[Scott Adams]

15 hours ago, Staci19 said:

Help me please. I am losing my body. Before I was diagnosed I had gained weight and looked healthy but I was bloated and vomitting all the time. I had boobs and I was very excited. Now I’m gluten free and I’m starving cause it’s expensive to eat gluten free and I have lost weight and I’m now depressed because I have no boobs left at all. Self esteem has gone. How can I gain weight in my boobs again without the gluten? Is it possible?

Increasing the fat content in meals can help individuals with celiac disease feel less hungry by providing longer-lasting satiety, since fats digest more slowly than carbohydrates and proteins.

Fats take longer to digest compared to carbohydrates and proteins, which helps in maintaining a feeling of fullness for a longer period. Fats play a crucial role in the production of satiety hormones such as leptin, which signal to the brain that you are full. Fats provide a concentrated source of energy, meaning even small amounts can significantly contribute to the feeling of being satiated.

By incorporating these healthy fats into your diet, you can manage hunger more effectively, leading to better overall nutritional balance. 

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