Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Progress


jasonD2

Recommended Posts

jasonD2 Experienced

I know some of you guys wanted to know of my progress, so I thought I would post

Got my recent stool test results back today from Metametrix:

I now have 3 parasites instead of 5 and to my complete shock Blastocystis was not detected. I feared that i would need to be on months and months of antibiotics to treat that, but now I dont have to. only 3 bugs left are Endolimax nana, hookworm and an unknown protozoan...I will do a 5 day course of mebendazole and follow up with Alinia for 2 weeks or maybe longer. I felt really good when i was on alinia last time, but after i stopped I relapsed...maybe needed a longer course

Other GI functional tests looked much better...fecal anti-gliadin was down from a 90 to a 1, sIgA went from 40 up to 106 and my probiotics were all in normal range. Also no candida, yeast or c.diff, which showed up in the past

All in all progress is being made...I attribute this to the high dose probiotics and mediclear plus supplement.

Unfortunately im still dealing with a sensitive upper GI and feel I need to be very restricted with what I eat. Ive been able to tolerate larger meals, which is good but if I stray from my diet I will experience a reflux/spasm sensation in my esophagus - still have to get to the bottom of that. at first i thought it was fats, but ive been eating salmon and olive oil and pumpkin seeds w/o anyt problems. I also suspected fructose, which may be an issue but I ate some dates last week (which are high in fructose) and didnt have a problem.

I am so desperate to get back in the gym but lifting weights doesnt seem to agree with the reflux, so i have to figure out a way to correct that...any suggestions?

Anyway, thanks for all your support...i dont think i could function without coming here

Jason


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

Where on earth are all those parasites coming from?? Ya know... it might be that you're gonna have to go OFF everything to get a definitive diagnosis... you're so young. If you can... give it all a chance. Continue w/ your doctors and find out what's really going on!

mushroom Proficient

So glad to hear you are making progress, Jason. That is good news. I have a feeling that if you can get rid of those bugs that are plaguing you, you will be a new man! Keep up the good work.

jasonD2 Experienced

Have no idea...but I believe it has something to do with low intestinal antibodies..maybe due to gluten or flora imbalance...at least the probiotics are helping and I will never live without them again

burdee Enthusiast

Hi Jason:

I'm glad you eliminated 2 of those 5 parasites. You probably don't need to consider the 'unknown protazoan'. I never treated mine and didn't suffer any symptoms. However, as long as you still have hookworm and Endolimax nana, you may suffer digestive challenges. Your improvements in digestion certainly point to less parasites and more good bacteria in your gut. Nevertheless, larger meals often influence reflux (as well as caffeine, alcohol, onions and a few other specific foods and drugs). Whatever you do to improve your gastrointestinal health (like taking probiotics) should also decrease reflux. Good luck!

SUE

jasonD2 Experienced

Thanks- I know many people still question the Metametrix DNA test. they say a positive of anything doesnt necessarily mean you will have symptoms or disease..but i feel better knowing that the bugs are not showing up

dilettantesteph Collaborator

I find that the elliptical can give me a pretty good workout without getting my reflux going when I'm in a glutened state and am having reflux problems. It's not going to do anything much with your upper body compared wit weights, but at least it is something. Decreasing processed foods does the trick for me as far as getting rid of those nagging symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jasonD2 Experienced

one thing i cant afford to do is burn more calories..gotta build muscle mass

burdee Enthusiast

Thanks- I know many people still question the Metametrix DNA test. they say a positive of anything doesnt necessarily mean you will have symptoms or disease..but i feel better knowing that the bugs are not showing up

Hi Jason:

I can't believe people question the Metametrix DNA test. Maybe they have never experienced all the gut infections from bacteria, candida and parasites, that we have suffered. Without that test, I'd probably still be suffering from c-diff, because traditional docs only use a c-diff toxins test, which 'experts' consider a 'iffy' test, or they rely on colonoscopies to show irreversible c-diff damage, which they treat by cutting out sections of the colon. I really appreciate a test which identifies the DNA of the 'bugs', rather than just looking for signs of damage which the bugs cause.

Also previous stool tests didn't report the exact level of candida fungus. So I was advised that my candida was a 'normal' level. However, the Metametrix test results advised that I treat the candida, because low levels are not 'normal'. After treating candida I never again suffered from constipation and resulting hemorrhoidal pain.

Obviously I'm a big fan of Metametrix DNA stool tests, as well as Enterolab tests for gluten intolernace and other allergies. It took me 6 years of testing and treating celiac disease, 6 food allergies, 4 bacteria, one parasite and candida, but I'm FINALLY healthy.

Hang in there, Jason. Keep getting tested and treating those bad bugs, while you keep taking probiotics. You will get well and enjoy normal digestion again.

SUE

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.