Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Does Not Mean Gluten Free? Did You Know...


meatslayer

Recommended Posts

meatslayer Newbie

To be labeled Gluten free the FDA standard is less than 20 ppm. At that level, those with a gluten allergy will not have a reaction. However it becomes a little grayer when you are talking about Celiac. For this reason, the FDA (USA) and the CFIA (Canada) are currently reviewing the standard.

You guys know that? Anyone have any more info? 20ppm is a very small amount (tiny) To most here I would think that a Gluten free label means Gluten free, but not so. I wonder at what PPM it effects a Celiac? Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

You guys know that? Anyone have any more info? 20ppm is a very small amount (tiny) To most here I would think that a Gluten free label means Gluten free, but not so. I wonder at what PPM it effects a Celiac? Anyone know?

Meatslayer,

It is different for everyone. Everyone's body reacts differently. That is why there are so many different symptoms. We don't all have the same symptoms either.

Jackay

meatslayer Newbie

Meatslayer,

It is different for everyone. Everyone's body reacts differently. That is why there are so many different symptoms. We don't all have the same symptoms either.

Jackay

Very true indeed, thanks for pointing that out.

sandsurfgirl Collaborator

Yet another complication to the mystery that is celiac. 20ppm is really really really tiny, but... you never know. Celiac can present with so many symptoms, so you eat that stuff with 20ppm and you get a sinus infection. Is it due to celiac or just a sinus infection? I was told by a doc who is pretty knowledgable that it's very hard to truly be gluten free because it's just everywhere.

Jestgar Rising Star

Yet another complication to the mystery that is celiac. 20ppm is really really really tiny,

unless you eat 40 of them.....

DougE Rookie

Another complication for us celiacs with no appreciable symptoms. How do we know when we ate too much gluten?

tarnalberry Community Regular

Most studies suggest that 20ppm in moderate amounts of most foods won't cause damage to a celiac's intestines (or elevate antibody levels detectably).

Nothing, medically speaking, is true for everyone, of course.

And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

At this point the U.S. has no official gluten-free standard, although 20 ppm is definitely being considered. 20 ppm probably has little to no apparent effect on most people with celiac, but some definitely react. As for having zero percent gluten, no test can determine that, although it can go a good bit lower than 20.

richard

psawyer Proficient

And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.

What Tiffany said, as usual, is right on the money. :)

kareng Grand Master

unless you eat 40 of them.....

I understand what Tiffany said. There has to be a number, something to measure. We then have to be sure we don't eat "40" like Jess said. We will have to be vigilant to what a serving is per the packaging, not what we would usually eat. I know that what I think is a serving of cereal in my bowl is usually closer to 2. I think this problem has come up with transfat as less then 1 unit of fat per serving is considered 0. But everyone usually eats 4 "servings" thus getting 2 units of fat & it isn't really transfat free. Maybe I'll just eat Puppy's gluten-free dog food - it looks like a really balanced diet.

  • 2 weeks later...
bittykitty Rookie

I understand what Tiffany said. There has to be a number, something to measure. We then have to be sure we don't eat "40" like Jess said. We will have to be vigilant to what a serving is per the packaging, not what we would usually eat. I know that what I think is a serving of cereal in my bowl is usually closer to 2. I think this problem has come up with transfat as less then 1 unit of fat per serving is considered 0. But everyone usually eats 4 "servings" thus getting 2 units of fat & it isn't really transfat free. Maybe I'll just eat Puppy's gluten-free dog food - it looks like a really balanced diet.

Sometimes this is why it's wise to just avoid processed foods, no matter what the label says.I've reacted to a lot of stuff that proudly screamed"gluten free"on the package.You really don't know who handled it,where it was manufactured, and until federal guidelines become a little stricter, it's easy for companies to cut corners and still be in that gray area.Yeah, we all like convenience foods(hell in America it is a way of life),but you have to make the choice as to whether or not taking the chance is worth it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    2. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.