Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scopes Tomorrow!

dermgirl

Recommended Posts

dermgirl Rookie
dermgirl
Posted

Tomorrow is my day for colonoscopy and endoscopy....I waited over 2 months to see a gastro, I was forunate he has openings this week for the scopes. He is a specialist in celiac and gluten sensitivity. I am so thankful, because my other doctor has not a clue. He didn't even run the correct celiac panel. He said it was negative, to eat more bananas & take calcium. OMG! I did testing through Enterolab, I have 1 celiac gene & tested positvie for gluten sensitivity. I will be glad when Dr. Fine publishes his studies. I have been eating gluten since yesterday. Now I am saying so long to gluten....I am beginning to think it is posion for all! I cleaned my kitchen out yesterday, bags going to the homeless shelter (I worry about them too!) I have been researching recipes, trying to gear up! I have a son in college who has some of the same issues I have. He stopped eating gluten--feels so much better! I have a supportive family, so I am blessed! I have to say I am starving today, right now I am sipping on yummy chicken broth. I have to start the laxitives at 4pm...which is so funny, I have chronic diarrea. For those of you who pray, I would covet your prayers for tomorrow, I am nervous. This is my first scope. I am thankful for this forum, up until a few months ago, I could not have told you what celiac or gluten problems were about. I just keep thinking, how many people are suffering every singe day??? How many people are actually willing to change their lifestyle to feel better? I know it is worth it to me....I can't wait to start feeling better!

Blessings!

Bev

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

Tomorrow is my day for colonoscopy and endoscopy....

Blessings!

Bev

I will be thinking of you! But don't be anxious, you will be fine :-)

Ana

AutumnSong Rookie
AutumnSong
Posted

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

dermgirl Rookie
dermgirl
Posted
  • Author

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

AutumnSong Rookie
AutumnSong
Posted

Praise God! I'm thankful everything went well. Yes, God is good!

Blessings,

Elizabeth

nutralady2001 Newbie
nutralady2001
Posted

Hi Bev I have Hashimoto's too. More than likely your tests will be positive. Both my blood tests and biopsy were positive. Let us know what happens !

Black Sheep Apprentice
Black Sheep
Posted

Thanks for the prayers...God is good :-)

Blessings!

Bev

Ah, that He is!!! B) I just saw this, sorry I was too late to pray for you, too, but happy to hear that you survived your ordeal, and with such a great attitude! Even though going g.f. is hard (it's been 1 month for me), it's such a blessing to finally have an answer, 'ya know? I mean, I don't know if gluten is the root of all my health issues, it's way too soon to know, but---it's obviously a huge part of my problem. As soon as we can afford it, my doc is going to test for food allergies, too.

Let us know how your tests turn out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

I am glad this went well. I was also told I had irritation in the esophagus and stomach. Personally I feel this was a reaction from the prep as I had no stomach pain previous, none after and only had pain while drinking that nasty stuff. My doc gave me a bunch of different acid blockers to try but I used Pepto the next day for the left over discomfort and didn't need anything after that. This may not be the case for you.

I am glad to hear you are going to stick with the diet and hope the biopsies show something definative.

AlysounRI Contributor
AlysounRI
Posted

He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons.

Bev, this happened to me too.

What do you mean I have acid reflux and small ulcers in my esophagus??

How come I have never felt it??

I'm on protonix now and my doc wants me to have a repeat scope in two months to see how the little ulcers are doing.

still waiting on the results of my endopscopy and blood tests too. Next week sometime.

I'm crossing all paws for you. Just getting off the poison once and for all was such a relief!!

Good luck with everything!!

Allison

sa1937 Community Regular
sa1937
Posted

Bev, I just had my endoscopy/biopsy on Fri. My GI doc diagnosed me with gastritis and duodenitis by visual examination. I need to wait 3 weeks for a follow-up appt. as he will be out of town for two weeks so I won't know the biopsy results until then, even through they'll be available in a week.

He did tell me to go gluten free until then. So here I am wondering where I stand. I do not have stomach pain, acid reflux or anything like that so the gastritis/duodenitis was a complete surprise to me.

So I don't know if I will be diagnosed with celiac or not. Nor do I know how long it will take to see if the gluten free diet will make a difference or if 3 weeks is long enough to see any results. I had a very positive celiac panel in Dec., which pretty well tells me I do have celiac regardless of biopsy results. It just seems to take so long while waiting for a referral to a GI doc and then scheduling the endoscopy. A colonoscopy is definitely in my future. I just want to get rid of the Big D.

I'm so glad everything went well for you!!! biggrin.gif

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    2. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    3. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
    4. BlessedinBoston
      - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,414
    • Most Online (within 30 mins)
      7,748
    Jane Margaret
    Newest Member
    Jane Margaret
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.