Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guess Who Got Glutened!

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

Yep, I got Glutened by an Amy's gluten-free/DF spinach Pizza. It was really mild compared to the Great Cheerio Incident (I hadn't been diagnosed yet) but still, I am laying on the couch with an upset stomach now.

Is it possible that it wasn't the pizza and just that I am still adjusting to the diet?

Either way, lime gatorade and rice cakes seem to be my best friends right now :P

Luckily kid is in bed and husband is flying so I am able to wallow on my own.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Generic Apprentice
Generic
Posted

Amy's doesn't have a very good reputation for their gluten free foods. I won't touch them personally. Too many peopl have gotten sick from them, myself included.

K8ling Enthusiast
K8ling
Posted
  • Author

OOOOH BOY do I know that now, I feel terrible. I'm balled up in bed with my dog and my gatorade.

NO MORE AMYS FOR ME!!!

starrytrekchic Apprentice
starrytrekchic
Posted

It was definitely the pizza. I've eaten Amy's twice since going gluten free and I was glutened (badly) once.

Amy makes food on shared lines, and though they clean them and test to make sure they're below the 20ppm required to label foods 'gluten-free' their food isn't by any means safe, especially for the more sensitive celiacs.

Open Original Shared Link

K8ling Enthusiast
K8ling
Posted
  • Author

It was definitely the pizza. I've eaten Amy's twice since going gluten free and I was glutened (badly) once.

Amy makes food on shared lines, and though they clean them and test to make sure they're below the 20ppm required to label foods 'gluten-free' their food isn't by any means safe, especially for the more sensitive celiacs.

Open Original Shared Link

I was telling my husband, even if they clean it between every gluten/non gluten thing, all it takes is ONE person having a bad day and slacking off and suddenly there's a bunch of celiacs sick lol.

Thanks for letting me know I'm not crazy!

Rachel W Apprentice
Rachel W
Posted

My sweet sweet mother bought be some Gluten free "mini" muffins, should be Micro , they were tiny ! Anyway I forgot who the manufacturer is. So I was working on the road today and decided to try ! WRONG ! i swear it felt like 5 minutes after it hit my gut the gas bloating and cramps started ! Scary part is in addition to saying Gluten Free on the package it also saied- SUGER FREE, 1 NET CARB... So if they are wrong about the gluten what about diabetic patients what will it do to them ! :blink:

i-geek Rookie
i-geek
Posted

Yep, I got Glutened by an Amy's gluten-free/DF spinach Pizza. It was really mild compared to the Great Cheerio Incident (I hadn't been diagnosed yet) but still, I am laying on the couch with an upset stomach now.

Is it possible that it wasn't the pizza and just that I am still adjusting to the diet?

Either way, lime gatorade and rice cakes seem to be my best friends right now :P

Luckily kid is in bed and husband is flying so I am able to wallow on my own.

:o

I bought one of those and ate half last Wednesday (and I was pissed off because I'd meant to grab the one with dairy cheese and didn't realize my mistake until I got home). I'd been CC'd at a restaurant earlier that day and was already feeling lousy. If there's a bad batch of those pizzas out there, that explains why I had the worst gluten migraine yet for 3 days straight- and why it got worse after I ate the pizza. I was confused because I don't usually get that sick with a minor CC incident.

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Another possibility is that you are intolerant to soy. That pizza is loaded with it. I mention this because it took me literally years to realize that many of the gluten-free foods that I thought had CC'd me had soy and it wasn't the CC that was an issue it was my intolerance to soy.

ciavyn Contributor
ciavyn
Posted

I have extreme reactions to sugar free things. Sugar alcohols go right through me. So that may have played a part too.

K8ling Enthusiast
K8ling
Posted
  • Author

:o

I bought one of those and ate half last Wednesday (and I was pissed off because I'd meant to grab the one with dairy cheese and didn't realize my mistake until I got home). I'd been CC'd at a restaurant earlier that day and was already feeling lousy. If there's a bad batch of those pizzas out there, that explains why I had the worst gluten migraine yet for 3 days straight- and why it got worse after I ate the pizza. I was confused because I don't usually get that sick with a minor CC incident.

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

Kinnikinik (I spelled that wrong) makes AWESOME pizza crusts, they're frozen and my toddler AND husband ate it ALL. I had to make more for me lol. No reactions, and very tasty. Hope that helps your pizza dilemma!

OH YEAH and that other Amy's pizza I had in the freezer? I fed it to my toddler. He thought he was super special and it made his day when really he was just getting rid of it for mommy :P

K8ling Enthusiast
K8ling
Posted
  • Author

My sweet sweet mother bought be some Gluten free "mini" muffins, should be Micro , they were tiny ! Anyway I forgot who the manufacturer is. So I was working on the road today and decided to try ! WRONG ! i swear it felt like 5 minutes after it hit my gut the gas bloating and cramps started ! Scary part is in addition to saying Gluten Free on the package it also saied- SUGER FREE, 1 NET CARB... So if they are wrong about the gluten what about diabetic patients what will it do to them ! :blink:

Aww it might have been the fake sugar! That has gotten me before.

i-geek Rookie
i-geek
Posted

Kinnikinik (I spelled that wrong) makes AWESOME pizza crusts, they're frozen and my toddler AND husband ate it ALL. I had to make more for me lol. No reactions, and very tasty. Hope that helps your pizza dilemma!

OH YEAH and that other Amy's pizza I had in the freezer? I fed it to my toddler. He thought he was super special and it made his day when really he was just getting rid of it for mommy :P

Thanks for the recommendation! There are a couple of stores near work that carry those. I'll have to check them out SOON.

JNBunnie1 Community Regular
JNBunnie1
Posted

Thanks for the recommendation! There are a couple of stores near work that carry those. I'll have to check them out SOON.

Also, if your store has it, try the Against the Grain brand of pizza crusts. They're more expensive, but they're WORTH IT. I think the Kinikinnick are also very good, but find them to be a bit sweet, which works well if you top with spicy stuff or make a dessert pizza.

i-geek Rookie
i-geek
Posted

Also, if your store has it, try the Against the Grain brand of pizza crusts. They're more expensive, but they're WORTH IT. I think the Kinikinnick are also very good, but find them to be a bit sweet, which works well if you top with spicy stuff or make a dessert pizza.

Oh, awesome! According to the website, my food co-op carries the Against the Grain products (as does one of the stores that carries the Kinnikinnick line). Thanks for the recommendation.

JNBunnie1 Community Regular
JNBunnie1
Posted

Oh, awesome! According to the website, my food co-op carries the Against the Grain products (as does one of the stores that carries the Kinnikinnick line). Thanks for the recommendation.

Also, the baguette, when split in half and toasted/baked with garlic butter on top, makes BANGIN garlic bread, just like the stuff you're used to. Just put the garlic butter on top before you bake, not after, or else the baguette dries up and gets hard.

tom Contributor
tom
Posted

With regard to Amy's, for years I've heard of ppl feeling CC'd by Amy's Frozen Food products, but not the rest.

I can't remember anyone w/ a problem w/ Amy's soups or chili.

Even *I* can eat one of the chili varieties. (I'm practically whole alphabet-free, much more than I list at bottom)

K8ling Enthusiast
K8ling
Posted
  • Author

Also, the baguette, when split in half and toasted/baked with garlic butter on top, makes BANGIN garlic bread, just like the stuff you're used to. Just put the garlic butter on top before you bake, not after, or else the baguette dries up and gets hard.

HAHA I could have used this tonight, I had to make due with some Udi's bread with my garlic bread stuff on it LOL it got the job done buuuut.....

Black Sheep Apprentice
Black Sheep
Posted

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

If you decide to try making it again, try this one:

Open Original Shared Link

I can't find sweet rice flour where I live, so I simply added more brown rice flour. That was the other thing I did different from the recipe, was used brown rice flour instead of white. It was nearly the best pizza crust I've ever had, and even non-g.f. hubby thought so, too. I say "nearly" the best because next time I make it, I'll probably make two thin crusts instead of one thick, as we like thin crust better. But even with thick crust, the flavor was so good!

sandsurfgirl Collaborator
sandsurfgirl
Posted

:o

I bought one of those and ate half last Wednesday (and I was pissed off because I'd meant to grab the one with dairy cheese and didn't realize my mistake until I got home). I'd been CC'd at a restaurant earlier that day and was already feeling lousy. If there's a bad batch of those pizzas out there, that explains why I had the worst gluten migraine yet for 3 days straight- and why it got worse after I ate the pizza. I was confused because I don't usually get that sick with a minor CC incident.

Rats. Pizza crust is the only thing I haven't figured out how to make well. Back to square one.

Gluten Free Pantry French Bread and Pizza mix! Best yummiest pizza crust. I spray my hands with oil so I can pat it down flat. I use a chunk for a small piza for myself and bake the rest into a loaf of bread.

jenngolightly Contributor
jenngolightly
Posted

HAHA I could have used this tonight, I had to make due with some Udi's bread with my garlic bread stuff on it LOL it got the job done buuuut.....

Udi's makes fabulous products - their pizza crust is great. Better than kinnikinnik's. Super-soft cinnimon rolls. And bagels that taste good straight from the bag - no toasting required. I hope you can find some of these products where you live.

I heart Udi's.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.