Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Want To Live Life! But Nervous...


The Glutenator

Recommended Posts

The Glutenator Contributor

I have the opportunity to go to Germany for work, and want to take a month off after the conference to go to France and Spain. I am very exited, but apprehensive about the eating situation. I don't want celiac disease to prevent me from traveling as I think it is an amazing part of life! my family has also voiced there concerns and some think I should not go at all. Does any one have any advice? Can I make it for a month with out starving to death? I am disappointed to be missing out on the cultural foods, but there is still lot to see! Any support or advice would be very appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tictax707 Apprentice

My vote is to go for it. I would do a lot of research beforehand about the places that you will be visiting. Find out places to eat and places to buy food. You can also ship from here to your hotel. Find hotels with mini fridges and microwaves.

Do you speak any French or Spanish? There are triumph dining cards in Mexican spanish and french. Hopefully you won't annoy the Spaniards with Mexican spanish, but it's better than nothing if you don't speak the language.

I spent three weeks in New Zealand and Australia. Granted the awareness is a little better there than here, but I didn't know that going into it. I shipped food to my hotels. I did a LOT of research on the internet first. There are meals that you can make where you just add water. There is another meal much like a TV dinner, that is vaccuum sealed & ok at room temp so you don't have to worry about keeping it cool (or shipping it cool for that matter). I can't for the life of me remember the name of it, but I know it was kosher too.

This looks like it might be a helpful site:

Open Original Shared Link

Let us know what you decide!!

Jestgar Rising Star

If I were there I would be beating you over the head with a guide book yelling GO! GO!

It's just food. You can always find something to eat, and just as you've learned to cope here, you can learn to cope anywhere.

jenngolightly Contributor

I've heard that they're much more sensitive to celiac over there than they are here. Have a great time!

The Glutenator Contributor

Thanks for all your support. I am 24 and my parents have actually said they "forbid" me to go because they are so worried. I don' know what to say to ease their minds and it is really stressing me out.

tictax707 Apprentice

I was 24 once and my parents forbade me to do something or other. Do you need their monetary support? There comes a time to break away and do your thing. Not one person so far has said don't go, and we are ALL staunch gluten-fearers. It's understandable that your parents worry about you, but I am sure we will be joined by more voices that say it CAN be done. Maybe you could even use what you find here to help convince them to support you in your decision to go. Tell them about your research that you will do about places to eat and food you can buy. Then, after you have done your research you can SHOW them what you found and what your plan of attack is. My parents were also once very overbearing and controlling, and that is how I dealt with them. And it really worked. Now they leave me alone thank goodness, but it's part of the process, and yes I was still going through it in my 20s, so don't feel bad about that. Let us know how it goes and how else we can help!! :)

Ahorsesoul Enthusiast

Europe is much more advanced about celiac and gluten free eating than the USA. Go enjoy and be sure to report back here about what you find and places to eat. Son just returned from a week in Paris and a week in Germany. He absolutely loved Germany. Probably will not go back to Paris. Germany is so much better. Enjoy.

Found this article:

Open Original Shared Link

Beside you are an adult. You can go if you if you desire. Why pass up this once in a lifetime opportunity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Thanks for all your support. I am 24 and my parents have actually said they "forbid" me to go because they are so worried. I don' know what to say to ease their minds and it is really stressing me out.

Believe it or not, I am always a bit nervous when I come to the U.S. :lol::o , away from the safety of what I know. However, of course I have this handy reference guide right here to keep me on the right path. Every country has different ways of doing food, but where I go to in Nevada has to be the gluten capital of the U.S. Someone even asked me if that was sugar :lol: That being said, there is so much food that is naturally gluten free and so much more awareness on the continent than in the U.S. ... you would be missing out on a tremendous experience to let fear of food keep you back, because I don't think it is necessary to be afraid at all. You have had some good suggestions here. Learn a basic gluten vocabulary, but you will be surprised how much English is spoken, (although I understand in France they don't often let on :rolleyes: , especially if they take exception to your 'franglais" :lol: ) I was even able to communicate in Italy about flax seed oil and we came to the conclusion that linseed oil was the same thing :)

Go and you will have a great time. Wonderful cheeses, sausages (that they don't stuff with gluten), olives, fruits, oh my, I want to go right now.

Lycopene Rookie

Meats, vegetables... I mean, you can live off of that for a month, right? Plus, it seems as if everyone is saying they're more advanced in the whole gluten-free-area than the US is. GOGOGO. DEFINITELY GO. Do NOT pass up an option to see the world, you will REGRET IT FOREVERRRRR.

Seriously. That's something everyone wants to do, and if you have the option available, TAKE IT. Please, for all of us here!!

EDIT: Whoa. =o Didn't need mod approval for this post. Yay. [:

GFLindsey Explorer

Here is a good way to look at things... You can always fly back home if you go and are too overwhelmed, stressed, etc. But you may lose this chance if you don't go for it now! Nothing is ever permanent so don't put too much pressure on yourself to stay if you are not comfortable or happy or healthy when you are in Europe. (Sometimes when I think of things in this way, it helps take the pressure off. Decisions are rarely permanent - so don't feel stuck!)

Celiactravel website has FREE gluten free dining cards in 49 langauages!!! Take them with you and let them do the talking!

kayo Explorer

I say GO! No question about it. Rarely do we get the opportunity to do such things especially as we get older. Jobs, kids, careers, life all seem to take precedence and once you hit that full time job you won't be able to take months off to experience such an amazing journey (you'll get 2-3 weeks of vacation tops). I wish I had traveled more when I was younger and had the time. It would have been budget travel (think hostels and pbj) but that's ok.

We have decided our next vacation will be in Europe since they do have a better understanding of gluten/celiac and they don't cook with so much soy (damn soy). Pour through this site for information. There's a travel section and use your google-fu.

If you show your parents you have staked out shops and restaurants where you can get gluten-free meals, plan to bring X gluten-free items with you, and ship X gluten-free items ahead of time AND you're willing to come home if you get very sick then I can't see why their concerns wouldn't be alleviated. They'll still worry of course but if you show 'you've got this' then that will go a long way in your favor.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.