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What Can I Do?


prisskitty

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prisskitty Rookie

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.


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ciavyn Contributor

1. Could you get your own kitchen things and keep them in your room? that would be the easiest solution.

2. Wash what is there really really well. Is anything stainless steel? We use that for everything in my house, and I've never had an issue.

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

4. I like the moving out idea. If you are old enough and it's feasible, I'd go for it.

Best of luck!

Lycopene Rookie

That's what I did. I moved out. The kitchen here isn't completely gluten free, but I do have a LOT more control over it and the pots are all stainless steel. I'll only been here for a few days, but I haven't been glutened yet! I have been sick, but that's due to a different intolerance that I'm unaware of as of right now.

If moving out is a feasible option, DO IT. If not, ciavyn's idea of getting pots and keeping them in your room is a great idea too. [:

prisskitty Rookie

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

That's an idea. But, she has her own bathroom lol.

I am just tired of trying to find food to eat around there. Everything is mushed together.

Ahorsesoul Enthusiast

You know in your heart what the right answer is for you. Go for it. You have been given a gift with a friend who is also gluten free.

RideAllWays Enthusiast

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

prisskitty Rookie

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

I am lucky to have her she's the reason I found out about this. But, unfortunately, I can't seem to meet up with her lately. She is VERY busy. It'd be good if her and I could discuss this.


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BethM55 Enthusiast

Your very own gluten free toaster or toaster oven would help, too. Can you label your own jars of peanut butter, jam, butter, etc, and have other people respect that? Hmmm, I'm seeing your own refrigerator in your room, too. Sounds like it might be easier to move in with your friend!

Gemini Experienced

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.

Pots and pans can be shared as long as they are stainless or other metal which is not porous. If they are cleaned well with soap and water, there should be no problem at all. You do need a separate toaster but they do not take up much room at all. They are not willing to do this? :blink: For utensils, same thing. Wooden ones you need your own but silverware does not have to be segregated.

Getting your own place would be good as long as you can afford it. Supporting yourself and funding a gluten-free diet can be very pricey but a good option if you can afford it. Aren't families a pain in the butt? :angry:

Skylark Collaborator

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

prisskitty Rookie

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

I think rice and meat will make me fat(ter) though if thats all I eat. But maybe not. Considering all I eat when I eat gluten is fried crap.

Thanks for the advice. I think I am just going to go back to being gluten free. I want to test first but I cant find anyone to do it!

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    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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