Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do?


prisskitty

Recommended Posts

prisskitty Rookie

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

1. Could you get your own kitchen things and keep them in your room? that would be the easiest solution.

2. Wash what is there really really well. Is anything stainless steel? We use that for everything in my house, and I've never had an issue.

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

4. I like the moving out idea. If you are old enough and it's feasible, I'd go for it.

Best of luck!

Lycopene Rookie

That's what I did. I moved out. The kitchen here isn't completely gluten free, but I do have a LOT more control over it and the pots are all stainless steel. I'll only been here for a few days, but I haven't been glutened yet! I have been sick, but that's due to a different intolerance that I'm unaware of as of right now.

If moving out is a feasible option, DO IT. If not, ciavyn's idea of getting pots and keeping them in your room is a great idea too. [:

prisskitty Rookie

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

That's an idea. But, she has her own bathroom lol.

I am just tired of trying to find food to eat around there. Everything is mushed together.

Ahorsesoul Enthusiast

You know in your heart what the right answer is for you. Go for it. You have been given a gift with a friend who is also gluten free.

RideAllWays Enthusiast

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

prisskitty Rookie

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

I am lucky to have her she's the reason I found out about this. But, unfortunately, I can't seem to meet up with her lately. She is VERY busy. It'd be good if her and I could discuss this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethM55 Enthusiast

Your very own gluten free toaster or toaster oven would help, too. Can you label your own jars of peanut butter, jam, butter, etc, and have other people respect that? Hmmm, I'm seeing your own refrigerator in your room, too. Sounds like it might be easier to move in with your friend!

Gemini Experienced

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.

Pots and pans can be shared as long as they are stainless or other metal which is not porous. If they are cleaned well with soap and water, there should be no problem at all. You do need a separate toaster but they do not take up much room at all. They are not willing to do this? :blink: For utensils, same thing. Wooden ones you need your own but silverware does not have to be segregated.

Getting your own place would be good as long as you can afford it. Supporting yourself and funding a gluten-free diet can be very pricey but a good option if you can afford it. Aren't families a pain in the butt? :angry:

Skylark Collaborator

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

prisskitty Rookie

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

I think rice and meat will make me fat(ter) though if thats all I eat. But maybe not. Considering all I eat when I eat gluten is fried crap.

Thanks for the advice. I think I am just going to go back to being gluten free. I want to test first but I cant find anyone to do it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,629
    • Most Online (within 30 mins)
      7,748

    EssexMum
    Newest Member
    EssexMum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.