Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do?

prisskitty

Recommended Posts

prisskitty Rookie
prisskitty
Posted

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

1. Could you get your own kitchen things and keep them in your room? that would be the easiest solution.

2. Wash what is there really really well. Is anything stainless steel? We use that for everything in my house, and I've never had an issue.

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

4. I like the moving out idea. If you are old enough and it's feasible, I'd go for it.

Best of luck!

Lycopene Rookie
Lycopene
Posted

That's what I did. I moved out. The kitchen here isn't completely gluten free, but I do have a LOT more control over it and the pots are all stainless steel. I'll only been here for a few days, but I haven't been glutened yet! I have been sick, but that's due to a different intolerance that I'm unaware of as of right now.

If moving out is a feasible option, DO IT. If not, ciavyn's idea of getting pots and keeping them in your room is a great idea too. [:

prisskitty Rookie
prisskitty
Posted
  • Author

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

That's an idea. But, she has her own bathroom lol.

I am just tired of trying to find food to eat around there. Everything is mushed together.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

You know in your heart what the right answer is for you. Go for it. You have been given a gift with a friend who is also gluten free.

RideAllWays Enthusiast
RideAllWays
Posted

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

prisskitty Rookie
prisskitty
Posted
  • Author

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

I am lucky to have her she's the reason I found out about this. But, unfortunately, I can't seem to meet up with her lately. She is VERY busy. It'd be good if her and I could discuss this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BethM55 Enthusiast
BethM55
Posted

Your very own gluten free toaster or toaster oven would help, too. Can you label your own jars of peanut butter, jam, butter, etc, and have other people respect that? Hmmm, I'm seeing your own refrigerator in your room, too. Sounds like it might be easier to move in with your friend!

Gemini Experienced
Gemini
Posted

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.

Pots and pans can be shared as long as they are stainless or other metal which is not porous. If they are cleaned well with soap and water, there should be no problem at all. You do need a separate toaster but they do not take up much room at all. They are not willing to do this? :blink: For utensils, same thing. Wooden ones you need your own but silverware does not have to be segregated.

Getting your own place would be good as long as you can afford it. Supporting yourself and funding a gluten-free diet can be very pricey but a good option if you can afford it. Aren't families a pain in the butt? :angry:

Skylark Collaborator
Skylark
Posted

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

prisskitty Rookie
prisskitty
Posted
  • Author

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

I think rice and meat will make me fat(ter) though if thats all I eat. But maybe not. Considering all I eat when I eat gluten is fried crap.

Thanks for the advice. I think I am just going to go back to being gluten free. I want to test first but I cant find anyone to do it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    2. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    3. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities...
    5. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748
    DPC
    Newest Member
    DPC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.