Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do?

prisskitty

Recommended Posts

prisskitty Rookie
prisskitty
Posted

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

1. Could you get your own kitchen things and keep them in your room? that would be the easiest solution.

2. Wash what is there really really well. Is anything stainless steel? We use that for everything in my house, and I've never had an issue.

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

4. I like the moving out idea. If you are old enough and it's feasible, I'd go for it.

Best of luck!

Lycopene Rookie
Lycopene
Posted

That's what I did. I moved out. The kitchen here isn't completely gluten free, but I do have a LOT more control over it and the pots are all stainless steel. I'll only been here for a few days, but I haven't been glutened yet! I have been sick, but that's due to a different intolerance that I'm unaware of as of right now.

If moving out is a feasible option, DO IT. If not, ciavyn's idea of getting pots and keeping them in your room is a great idea too. [:

prisskitty Rookie
prisskitty
Posted
  • Author

3. Perhaps be even more inconvenient than pots and pans by taking up the bathroom all day when you are glutened? ;) Sorry, had to throw that in.

That's an idea. But, she has her own bathroom lol.

I am just tired of trying to find food to eat around there. Everything is mushed together.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

You know in your heart what the right answer is for you. Go for it. You have been given a gift with a friend who is also gluten free.

RideAllWays Enthusiast
RideAllWays
Posted

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

prisskitty Rookie
prisskitty
Posted
  • Author

Your best friend has Celiac! That's so lucky to have somebody so close to you understand completely what you are going through. You guys can probably help each other out a ton. If it's affordable, I would totally go for moving in together. When I moved into my own gluten free kitchen it made a big difference :)

I am lucky to have her she's the reason I found out about this. But, unfortunately, I can't seem to meet up with her lately. She is VERY busy. It'd be good if her and I could discuss this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BethM55 Enthusiast
BethM55
Posted

Your very own gluten free toaster or toaster oven would help, too. Can you label your own jars of peanut butter, jam, butter, etc, and have other people respect that? Hmmm, I'm seeing your own refrigerator in your room, too. Sounds like it might be easier to move in with your friend!

Gemini Experienced
Gemini
Posted

My mom and my cousin are really keen on asking me what I can't eat but, when it comes to utensils, pots, etc, I can't have my own. My mom says there simply isn't enough room. This is very typical of her, very common for her to give up when something inconveniences her.

I am tempted, very very tempted to see if my best friend who has celiac would like to get a place together. She's moving on out soon (I hope) from a divorce. Our kitchen could be 100% gluten free!

I scrub everything I use. I have GSE most likely as opposed to celiac disease. I don't think that micro-grams of it will affect me, yet. But, when I do eat something with known gluten like a cookie or blueberry dressing, I get massively bad cramps until it passes. So, it is obvious to me now that I dont need to torture myself to be diagnosed. I don't care which gene is carrying it! It hurts! My stomach has been sore like this for two-three years. And now that I stepped away from gluten, even for 3-4 weeks, I feel better without it.

Suggestions please. She has zero tolerance for things that inconvenience her.

Pots and pans can be shared as long as they are stainless or other metal which is not porous. If they are cleaned well with soap and water, there should be no problem at all. You do need a separate toaster but they do not take up much room at all. They are not willing to do this? :blink: For utensils, same thing. Wooden ones you need your own but silverware does not have to be segregated.

Getting your own place would be good as long as you can afford it. Supporting yourself and funding a gluten-free diet can be very pricey but a good option if you can afford it. Aren't families a pain in the butt? :angry:

Skylark Collaborator
Skylark
Posted

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

prisskitty Rookie
prisskitty
Posted
  • Author

Well then, it has to not inconvenience her. "Hi, Mom. I got these few things so I can eat safely. There's just this one pot, a set of utensils I'll wash between meals and my own cutting board because yours are wood. I'll put them in the corner of this cabinet and they'll barely take up any space. Thanks a million for understanding! I knew you would want to help me feel better. Can I help you cook dinner or take out the trash?" ;)

Gluten-free doesn't have to be pricey. The absolute safest foods like rice, potatoes, veggies, and dried beans are cheap! It's only pricey if you're trying to pretend you can eat like other people and you spend a bunch of money on commercial gluten-free breads and baked goods.

I think rice and meat will make me fat(ter) though if thats all I eat. But maybe not. Considering all I eat when I eat gluten is fried crap.

Thanks for the advice. I think I am just going to go back to being gluten free. I want to test first but I cant find anyone to do it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748
    maggie23
    Newest Member
    maggie23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.