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Any Sleepwalkers Out There?


buffettbride

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buffettbride Enthusiast

Just wondering if there are other sleepwalkers out there. My 12 year old Celiac is a sleepwalker. Tends to only pop up when she has a bit of stress, not really gluten-triggered, but I find it interesting.

She'll wake up after only 2-3 hours of sleep and start getting ready for school. We've found her in the shower or in the bathroom or trying to wake us up, thinking we're running late.

Episodes are few and far between, but tend to be triggered by busy or stressful weeks (such as this one). She has a major school assignment due, has been in tech/final dress rehearsals for a play she's in, plus a major acting day for her school (big Shakespeare festival for the whole school district).

So, if you're a sleepwalker, speak up!

  • 3 weeks later...

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GlutenFreeManna Rising Star

I don't know if this has to do with gluten, but I did sleep walk as a child. One time my parents found me sitting on the side of the bathtub with the water running. They woke me up in the process of trying to figure out what I was doing taking a bath (with my pajamas still on) in the middle of the night. There are certain ages when sleepwalking is more common.

sb2178 Enthusiast

I definitely was... and did in fact wake up my parents at 3 am a number of times. Continued at least through freshman year of college. No complaints recently, although generally I think I do fairly normal things, just without remembering. And, uh, being asleep. As a child, I was pretty responsive to being told to go back to bed without waking up.

I also did (past tense?) some mild sleep eating. Nothing really dramatic, but I used to find a granola bar wrapper, or bowl from cereal or something when I got up in the morning.

anabananakins Explorer

Just wondering if there are other sleepwalkers out there. My 12 year old Celiac is a sleepwalker. Tends to only pop up when she has a bit of stress, not really gluten-triggered, but I find it interesting.

I sleep walked as a child too buffetbride. I think I stopped in my early twenties. Mostly it was when I was feeling stressed - I was a pretty anxious child and suffered depression for years as teen/early twenty something. I remember rearranging my room when I was 20 and something about it must have really bugged me because I sleep walked every night for days until I finally changed it back again. And I shared a flat with a friend when I was 21-23 and I drove him demented; he'd hear me walking around after I'd supposedly gone to bed. Meanwhile, I woke up so many times standing in the living room and not knowing why I was there!

I haven't done so in years now - thinking about it is making me nostalgic!

  • 2 months later...
RachelisFacebook Apprentice

When I'm stressed, I'll sleepwalk. It hasn't happened recently..last June, I believe was the last time it happened. Not gluten related, though. At least...I don't think. :P

Juliebove Rising Star

I've done it. Last time that I know of was as a young adult. I thought I was dreaming. Apparently not. My roommate said I went downstairs, got three dollars out of my purse, then went to the door and said I'd take a box of mint. I thought a girl scout was there selling cookies. I have no clue where the three dollars went. Most likely the roommate took it. She turned out not to be honest.

dilettantesteph Collaborator

My celiac sister and I both sleepwalked in our early teens. She once ended up at the neighbors front door and they took her back still asleep. Once she got up and drew on her head with green felt pen so that she would be sure to wash her hair. Then in the morning she thought she had some serious medical condition to give her the green spots because she didn't remember doing it!


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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