Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac & Itp (Low Platlet Bleeding Disorder)

Sheryl589

Recommended Posts

Sheryl589 Newbie
Sheryl589
Posted

Hello, I'm new to this site and to Celiac disease. However, I'm not new to autoimmune diseases.

My daughter (now 21) was diagnoised in 2002 with idiopathic thrombocytopenic purpura or ITP.

Itp is a disease where the body attaches the blood and destroys the platets. Last week she was

diagnoised with Celiac disease. She has suffered from stomach problems for years. She's been tested

3 times for Lupus. Her list of Celiac symptoms is a tablet sheet long.I've been reading and it seems there is some kind of link diseases. Does anyone else have ITP or have bleeding or bruising problems?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


knittingmonkey Newbie
knittingmonkey
Posted

Hello, I'm new to this site and to Celiac disease. However, I'm not new to autoimmune diseases.

My daughter (now 21) was diagnoised in 2002 with idiopathic thrombocytopenic purpura or ITP.

Itp is a disease where the body attaches the blood and destroys the platets. Last week she was

diagnoised with Celiac disease. She has suffered from stomach problems for years. She's been tested

3 times for Lupus. Her list of Celiac symptoms is a tablet sheet long.I've been reading and it seems there is some kind of link diseases. Does anyone else have ITP or have bleeding or bruising problems?

Been diagnosed celiac, both my parents might be to; Dad (deceased) had depression and severe mental illness, Mom is diabetic, hypothyroid, congestive heart, scoliosis and seems to have Parkinson's, also suffers with diarrhea.

On Dad's side of the family, his first cousin had known issues with wheat, and his sister had ITP. So yes, I think there may be a connection between celiac and other auto-immune disease.

mommida Enthusiast
mommida
Posted

There seems to be a saying of "once you have one auto-immune disease it"s just a matter of time before you get another." :ph34r:

A few people here have mentioned small purple bruises, which I believe is a primary symptom of ITP. I have them myself, and have not been able to find a doctor to even now what kind of test to run. :huh:

So as soon as we can find doctors who know enough about auto-immune diseases to even diagnose them, I'm sure we are going to have more of a proven correlation. ;)

Sheryl589 Newbie
Sheryl589
Posted
  • Author

Have your doctor order a CBC. It will check your platlet level. ITP is a bleeding disorder. It causes spontaneous bleeding(nose,gums etc.). Bruising is usually severe but not aways. Also you will find peticia. These are small red blister like dots.

I'm wondering now if she's had Celiac most of her life and their just now finding it. If so she might have been able to avoid ITP and years of severe treatment. She also has gasteritis, B12 defic.,reflux disease and the list of symptoms goes on and on.

Looking for answers Contributor
Looking for answers
Posted

I've had low blood platlets for years....they've never dropped to a dangerously low number but they are usually out of range. I also have gastristis. I believe your daugter will be able to control it from getting any worse by eliminating gluten and possibly dairy.

  • 2 weeks later...
O.N. Rookie
O.N.
Posted

...Does anyone else have ITP or have bleeding or bruising problems?

It was the only symptom that my physician couldn

nikki-uk Enthusiast
nikki-uk
Posted

My husbands diagnosis of ITP came several years after the celiac disease and psoriatic arthritis was diagnosed.

Luckily the ITP has not yet required treatment - it's just closely monitored.

He's always been an 'easy bleeder'....I think he's had low platelets for alot longer than he's been aware :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 7 months later...
jensen Newbie
jensen
Posted

My 5 year old son was diagnosed with a severe case of ITP 2 years ago. He has had tummy aches on and off for years and we were told that it was nothing to be concerned about. He just tested positive with the first blood test for Celiac but his doctor ordered a genetic test that shows that it is not in his DNA. he said he cannot possibly has Celiac if it is not in his genetic makeup. I really feel that his test result is related to his ITP. It is hard to ignore His tummy aches, dry, awful skin and night sweats. Can anyone offer us an explaination? I heard that there are endocrine diseases that can create celiac disease and autoimmune diseases like ITP even if they are not in the patients DNA.

Help.

Searching Mom.

mommida Enthusiast
mommida
Posted

The genetic tests for Celiac are not failproof.

  • 11 months later...
Austin Guy Contributor
Austin Guy
Posted

In case anyone is still following this, I had ITP between my ankles and knees for about 5 years. I also bled forever (sometimes for an hour) after nicking myself shaving. I never made the connection until after going gluten free in May, 2011. The ITP was gone in a week and small cuts clotted within a minute or so. In me there was absolutely a strong connection between ITP and gluten. By the way, ITP is now being called Immune Thrombocytopenic purpura. Go figure.

RiceGuy Collaborator
RiceGuy
Posted

Also you will find peticia. These are small red blister like dots.

Wow, I finally have a name to put on it! Have had this as long as I can remember. Still do, and not until this moment did I connect it to Celiac. Sorta just ignore it most of the time.

And the easy bruising...oh yeah. Blisters too. But these didn't start until long after going gluten-free :huh: Been taking vitamin C, K2, D3, Biotin, Folic acid, and more. Can't find a zinc supplement that doesn't throw my digestive system off. Hopefully I don't really need it.

A work in progress...

  • 4 weeks later...
Tim Lawing Newbie
Tim Lawing
Posted

My son had ITP most of his life. He tested him for Celiac over a year ago and the entire family is living gluten free in south Mississippi. His symptoms has all but disappeared and better yet, we have not had one treatment for his ITP since. His behavior has changed and he is able to pay attention at school. It has taken some time to understand and get used to the diet; however, he is a success story.

Tim Lawing.

  • 3 months later...
nvsmom Community Regular
nvsmom
Posted

I had ITP years ago and just searched the forum to see if it was connected to celiac... I guess it might be. Huh. I had a bad case of ITP, I remember my platelets were at 90, not 90K, just 90. lol I almost needed a blood transfusion. Steroids couldn't regulate my blood so they took my spleen out; my white blood cells aren't able to do much any more.

I'm still in the process of diagnosing myself as celiac, although I think I've had it for a good 30 years, but it makes me wonder if celiac caused it or how related they are...

nicole

cavernio Enthusiast
cavernio
Posted

My 5 year old son was diagnosed with a severe case of ITP 2 years ago. He has had tummy aches on and off for years and we were told that it was nothing to be concerned about. He just tested positive with the first blood test for Celiac but his doctor ordered a genetic test that shows that it is not in his DNA. he said he cannot possibly has Celiac if it is not in his genetic makeup. I really feel that his test result is related to his ITP. It is hard to ignore His tummy aches, dry, awful skin and night sweats. Can anyone offer us an explaination? I heard that there are endocrine diseases that can create celiac disease and autoimmune diseases like ITP even if they are not in the patients DNA.

Help.

Searching Mom.

1. You aren't the only person to complain about celiac disease showing up positive in blood tests and symptoms but then have negative genetic results show up.

2. Your doctor is the first I've heard say that there's a 100% agreement with genes and celiac disease. The wikipedia article disagrees with your doctor.

"There are seven HLA-DQ variants (DQ2 and DQ4

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748
    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.