Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Buckin' Up :-(


conniebky

Recommended Posts

glutenfr3309 Rookie

I gave up coffee for some time before I could have it in small quantity. Some people have their guts very damaged so they become very sensitive. Coffee may irritate your gut, as spices or vinegar do. Try not to drink coffee for a while, or take it with lactose-free milk if you can (just one small cup). :)

i have had the same problem with coffee- the dizziness, etc could be from the caffeine. i was drinking regular coffee in the mornings because i was so exhausted all the time. now that the exhaustion has diminished eating gluten-free, i switched to decaf. i just like the taste of coffee and it has become part of my morning ritual. switching to decaf doesn't make me have to go to the bathroom like the regular does!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

I wondered if the very sensitive people to small amounts of gluten could list a few products that they know are safe and thye have no problem with . Like I am wondering what brand of baking cocoa people use, or brands of cookies etc that you know are safe. I am to the point of being scared to try new things.

Hershey's cocoa power (baking cocoa) is safe for me at least. I make my own (drinking) cocoa using coconut milk. Cookies we bake ourselves mostly, but the few we buy are from Pamela's.

bisja Apprentice

I have not been able to drink tea or coffee it just seems to really make my stomach hurts and burns. Is Pamelas a totaly gluten free facility? Also is Glutino totaly gluten free facility? I have been reading about Udis and it seems like it is all totaly gluten free . I did try a Udi's blueberry muffin and all was fine.

jerseyangel Proficient

I have not been able to drink tea or coffee it just seems to really make my stomach hurts and burns. Is Pamelas a totaly gluten free facility? Also is Glutino totaly gluten free facility? I have been reading about Udis and it seems like it is all totaly gluten free . I did try a Udi's blueberry muffin and all was fine.

Pamela's and Glutino are both dedicated facilities.

bisja Apprentice

Thats great to know thank you everyone!

conniebky Collaborator

So far, Glutino is my favorite.

jerseyangel Proficient

So far, Glutino is my favorite.

If only I could stay out of my box of lemon wafer cookies.... :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bisja Apprentice

you all are makin me hungry :blink:

RoseTapper Newbie

Your gluten-free journey sounds so familiar. When people first try going gluten free, they're so accustomed to having processed foods in their diet, they look for gluten-free versions. It gives them comfort to eat like "they used to." Unfortunately, we continue to crave our old eating patterns, and it's difficult to change that without feeling deprived and bitter. I can honestly say that I was a bitter person for the first two years after being diagnosed with celiac, because I missed some of my favorite foods so very much (donuts, sourdough bread, cereals, croissants, pizza, ravioli, mac and cheese, etc.). However, over time, I lost my taste for these items. Now that there are gluten-free versions of everything I used to eat except croissants, I still rarely purchase them because I simply have very little interest in them anymore. Once you've spent some time eating a diet of unprocessed foods, believe me--you probably won't crave processed foods anymore. They just have a yucky, foreign consistency. So....don't bother to buy those cereals at all. Cook up some eggs or make a soup or salad. When your health is good, everything else seems good, too.

BTW, do you happen to live in Northern California? We have a few support groups around the S.F. Bay Area. Perhaps you can find a support group near you, too (??). Then you wouldn't have to rely on "Netland."

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    3. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is it gluten?

    4. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,350
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.