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My Doctor Is Unsure

dhiltonlittle

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dhiltonlittle Contributor
dhiltonlittle
Posted

i've done about every test there is out there and it seems to me it is celiac but my doc doesn't seem to want to give it the diagnosis yet. my symptoms are the usual gi stuff (noises, loose(never formed) stools, sometimes constipation, nausea,headaches, brainfog, dizzyness, etc etc. i had antigliadin iga antibodies elevated to 39 with a range >11 being positive. igg i think was fine as was all of the ttg and deam peptide tests. colonoscopy was fine but endo showed mild blunting of villi and said inconclusive for celiac diagnosis. thoughs? i'm going to the celiac center at columbia university in a few months for a second opinion. what do you all think? my doc says he is not ruling out celiac but is still looking around for other stuff. my gene test was dq8 positive and dq2 negative. i am also hypothyroid.

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nora-n Rookie
nora-n
Posted

Hi, your blood test, your symptoms, hypothyroidism plus mild blunting means celiac.

Maybe go over to the delphi celiac forum where some people got diagnosed with mild blunting? You might get some more input there.

sb2178 Enthusiast
sb2178
Posted

blunted villi plus positive bloodwork? Seriously, still questioning?

umm... yes... that would be celiac disease. Can CU get you in sooner? Are you still eating gluten? Ask them if you can stop if you are since you already have the biopsy and bloodwork. And STOP. Three things you can follow up on with them: bloodwork shift to normal after going gluten-free, cessation or continuance of symptoms after gluten-free, and genetic testing.

Skylark Collaborator
Skylark
Posted

Marsh 1 biopsy is not positive for celiac in the strictest sense. There is research showing that some people with positive bloodwork and mild blunting feel better off gluten, and that some convert to Marsh 3 or Marsh 4 biopsies if they keep eating gluten.

dhiltonlittle Contributor
dhiltonlittle
Posted
  • Author

thanks for the replies so far. i have not eaten gluten for about 1 1/2 or 2 months now. i have seen some slight improvement of some symptoms but nothing night and day. i also stared synthroid at the same time so it is hard to know what is doing what. i wish i could get in to the center earlier but that was the soonest they could see a new patient. one doctor was booked solid until november!

nora-n Rookie
nora-n
Posted

I think many places, including the U of Maryland will diagnose celiac with blunted villi and symptoms and bloodwork and if you get better off gluten.

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