Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Quench My Appitite


SuzyVandy

Recommended Posts

SuzyVandy Newbie

I lost 45lbs in 6 months, i was never fully diagnosed with Celiac due to lack of insurance and all my money was ran out from other tests. My mom had looked into Celiac Disease for a friend and suggested it to me, and so far it has been the only thing that seems to fit with all my symptoms.

I started a gluten free diet about a month ago, and so far feel the best I have in 9 months. Not only can I not seem to eat gluten but a lot of dairy as well seems to make me sick. I have gained roughly 5 pounds back in the past month, or it might just be bloating from still figuring out what I can and can't eat, but I can never seem to eat enough.

I'm constantly hungry and eating till i feel like i will burst, yet am still hungry. What kind of things could I eat that might fix this and quench my appetite? I'm scared to gain back all the weight i lost, as i was overweight before and now that I seem to have gained a few pounds have an amazing figure, and I have given away all my old clothes as they couldn't even stay above my waist


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rebecca Madrid Newbie

I'm going to begin by saying I have the opposite problem and I am incredibly jealous ;) I gained weight while sick, and can't seem to get rid of it.

However, what I find helps calm the hunger is a snack I call a "Healthful". Here's the recipe:

1 whole banana; sliced

1/2 an apple; cut into chunks

2 cups yogurt; any flavour will do

1 cup Enjoy Life gluten-free Granola (my favourite is the berry flavour)

1/4 cup Enjpy Life gluten-free/Nut-Free Trail Mix

Cut up the fruit and put it into an average sized cereal bowl, then add 1 cup of the yogurt. Follow with the granola and the other cup of yogurt. Finally, top with the trail mix.

Mix and match flavours and try to eat one almost every day, possibly as an afternoon snack to get you through until dinner. Hope this helps :)

I'm recently gluten-free as well so feel free to send me an email if you want to exchange any other recipes, or just chat. rlmadrid@live.ca.

Good Luck with your new diet. smile.gif

starrytrekchic Apprentice

Being constantly hungry is a sign of being glutened for me (had it before going gluten-free and when I get glutened now.) You might make sure you don't have any lingering gluten in your food/products/etc anywhere.

Also likely your body went into starvation mode. Make sure you're eating enough calories everyday (1600+). Fill up on high fiber foods to take the edge off the hunger (like popcorn) and then it's best to just wait it out. It will go away eventually, once your body is better.

lovegrov Collaborator

It's not at all unusual to be insatiably hungry when you start healing from celiac. Your body is starved for the nutrients it wasn't getting.

richard

Coolclimates Collaborator

i, too, am just feeling hungry all the time, as well as having constant cravings for foods, esp. sweets and baked goods. I'm hoping I don't gain weight, but I probably will. I've noticed this increase in appetite is more intense as time goes one. I've been on the gluten-free diet for nearly 1 month now. I'm a bit overwhelmed and don't know if it's more psychological, physical or what.

Rebecca Madrid Newbie

i, too, am just feeling hungry all the time, as well as having constant cravings for foods, esp. sweets and baked goods. I'm hoping I don't gain weight, but I probably will. I've noticed this increase in appetite is more intense as time goes one. I've been on the gluten-free diet for nearly 1 month now. I'm a bit overwhelmed and don't know if it's more psychological, physical or what.

Coolclimates, I am similar this way. I have been off gluten for nearly 4 months now, and the cravings are still getting stronger. They also tend to focus on objects not within my grasp. (lately it's been a butter croissant that I really want rolleyes.gif) I'm thinking it may be our body's desire for proteins it is used to getting. If I'm wrong I'm sure someone will tell us, but the way I see it, when you go with out coffee after having it on a daily basis, you crave it. Maybe it is similar, in that your body wants what it thinks it needs, even if you now know that it isn't what you should have. Rather than crave a slice of bread, you'll crave what you enjoyed, pie cookies, etc.

To answer your question, it seems to be a psychological desire, but brought on by some level of physiology. My advice, you can make low calories sweets, such as peanut butter cookies that may help to trick your body. Just 2 cups low fat PB, 1 cup of pure white sugar, and 1 egg makes 24 very healthy cookies. Also, they are good for about 2 weeks, (but my family usually devours them before that).

I hope this helps a little, I know how you feel.

  • 3 weeks later...
coffeetime Explorer

Being constantly hungry is a sign of being glutened for me (had it before going gluten-free and when I get glutened now.) You might make sure you don't have any lingering gluten in your food/products/etc anywhere.

Also likely your body went into starvation mode. Make sure you're eating enough calories everyday (1600+). Fill up on high fiber foods to take the edge off the hunger (like popcorn) and then it's best to just wait it out. It will go away eventually, once your body is better.

I'm the same, first the excessive hunger starts and then the migraines come back again. I'm currently trying to locate what is getting me right now, but have been totally unsuccessful. I think it is just the handling on bread for the rest of my family.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Are you eating a lot of gluten free replacement items? I have noticed that when I eat more protein based snacks as opposed to carb-based snacks I'm not AS hungry later. The protein sticks with me longer. Try eating a hard boiled egg or a spoonful of peanut butter the next time you are really hungry but it is not meal time. I do need to eat frequently, so I eat snacks several times throughout the day. Also check your vitamin levels. You may just be low on something and your body is signaling it's hungry because it needs the nutrients.

BlueBridie Newbie

I've only been gluten free for a week and still learning the ropes. But I'm the same, I can't stop eating! Anything and everything, within 30 mins of eating I'm hungry again!

The peanut butter's a good idea, but I keep putting it on gluten-free Bread or crackers - should stop that I guess. Higher protein sounds sensible, but I have the added problem of not yet being able to eat dairy. I also used to eat a lot of sliced deli meat but have discovered most of them have gluten! I went to Woolworths on Saturday and could only have one thing in the window! So what does that leave? nuts, eggs and the small amount of pre-sliced meat I can get my hands on?

Weight gain really worries me as I'm already on the larger side - I seem to be getting told to eat foods that I previously would have classified as higher in fat (peanut butter - evern the 'light' versions), nuts (in the amounts that actaully fill me up) and the deli meats that aren't exactly 'lean'. Has anyone else noticed this, or am I just freaking myself out?

missy'smom Collaborator

Weight gain really worries me as I'm already on the larger side - I seem to be getting told to eat foods that I previously would have classified as higher in fat (peanut butter - evern the 'light' versions), nuts (in the amounts that actaully fill me up) and the deli meats that aren't exactly 'lean'. Has anyone else noticed this, or am I just freaking myself out?

Fats don't add fat onto our bodies-to gain weight we need three things-excess calories, carbs and insulin. It's the insulin and insulin resistance caused by too many carbs that causes weight gain. It's the carbs in the donut more than the oil that it's fried in that cause us problems. Same for many of our favorite junk foods-although transfats are a different matter. Low-carb diets work even though people on those plans eat lots of fat because they aren't pumping out all that insulin to process tons of carbs. If you eat fats and protein and cut your carbs, you should feel more satisfied. The worst thing a person can do is go on a low/no fat diet and eat lots of processed carbs.

sb2178 Enthusiast

I've only been gluten free for a week and still learning the ropes. But I'm the same, I can't stop eating! Anything and everything, within 30 mins of eating I'm hungry again!

The peanut butter's a good idea, but I keep putting it on gluten-free Bread or crackers - should stop that I guess. Higher protein sounds sensible, but I have the added problem of not yet being able to eat dairy. I also used to eat a lot of sliced deli meat but have discovered most of them have gluten! I went to Woolworths on Saturday and could only have one thing in the window! So what does that leave? nuts, eggs and the small amount of pre-sliced meat I can get my hands on?

Weight gain really worries me as I'm already on the larger side - I seem to be getting told to eat foods that I previously would have classified as higher in fat (peanut butter - evern the 'light' versions), nuts (in the amounts that actaully fill me up) and the deli meats that aren't exactly 'lean'. Has anyone else noticed this, or am I just freaking myself out?

1. you're freaking out a little. (with good reason- I'm still freaking out too.)

2. pair your protein with produce. Deli meat or tuna wrapped in lettuce. Peanut butter with apples and carrots. Green bean salad with almonds.

3. beans at meals. the hard core protein-ists don't count them, but i find them very filling and a good source of many nutrients. sub in a bean salad for your carb. they are also cheap, which is wonderful.

4. lots of folks say their weight stabilizes (either up or down) as needed over the first year or so. you may be one of those lucky folk.

5. definitely follow up on any nutrient deficiencies. i am ravenous whenever i edge toward anemia.

BlueBridie Newbie

1. you're freaking out a little. (with good reason- I'm still freaking out too.)

2. pair your protein with produce. Deli meat or tuna wrapped in lettuce. Peanut butter with apples and carrots. Green bean salad with almonds.

3. beans at meals. the hard core protein-ists don't count them, but i find them very filling and a good source of many nutrients. sub in a bean salad for your carb. they are also cheap, which is wonderful.

4. lots of folks say their weight stabilizes (either up or down) as needed over the first year or so. you may be one of those lucky folk.

5. definitely follow up on any nutrient deficiencies. i am ravenous whenever i edge toward anemia.

LOL happy someone admitted I was freaking out, everyone at home is sympathetic to the point of not telling me to give it a rest! Thanks for the advice guys, appreciate your help and 8 days in I'm starting to feel some differences, jeans don't fit, but I've upped the protein and dropped most (not all) the processed carbs. Since doing that (only 2 days ago mind you) I'm feeling that continuous hunger, and am actually starting to see an improvement!

Thanks again for your support!

  • 1 month later...
oceansparkle Newbie

I lost 45lbs in 6 months, i was never fully diagnosed with Celiac due to lack of insurance and all my money was ran out from other tests. My mom had looked into Celiac Disease for a friend and suggested it to me, and so far it has been the only thing that seems to fit with all my symptoms.

I started a gluten free diet about a month ago, and so far feel the best I have in 9 months. Not only can I not seem to eat gluten but a lot of dairy as well seems to make me sick. I have gained roughly 5 pounds back in the past month, or it might just be bloating from still figuring out what I can and can't eat, but I can never seem to eat enough.

I'm constantly hungry and eating till i feel like i will burst, yet am still hungry. What kind of things could I eat that might fix this and quench my appetite? I'm scared to gain back all the weight i lost, as i was overweight before and now that I seem to have gained a few pounds have an amazing figure, and I have given away all my old clothes as they couldn't even stay above my waist

Hi!

I too gained a lot while I was sick and couldn't figure out why I was ravenous all the time until I was tested for Vitamin D3 deficiency and was found to be very low. My doctor prescribed Omega-3 with Vitamin D3 by Nordic Naturals. I take 3 tablespoons of it per day and am yet to lose weight. It's great that I don't feel hungry all the time now. I believe it's because my nutritional needs are now being met. Hang in there!

Wheatfreedude Apprentice

If you eat fats and protein and cut your carbs, you should feel more satisfied. The worst thing a person can do is go on a low/no fat diet and eat lots of processed carbs.

AMEN on the above!

To keep satiated shop the Golden Horseshoe of the store -- produce, meat, fish, and dairy (if you can). And if you need a snack, try low salt/no salt almonds. You get the good fat, fiber and protein.

~Wheatfreedude~

rain Contributor

I've been finding that adding a probiotic helps a lot. I'm not sure why though.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.