Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Other Tall Celiacs Out There?

LqrMan

By LqrMan
in Related Issues & Disorders

Recommended Posts

LqrMan Newbie
LqrMan
Posted

I couldn't find the best place to make this topic, so I put it into the health section. I am 6'2'' and remarkably continued to grow even though I was malnourished/anemic/had osteoperosis before being diagnosed with celiac disease! I was just wondering if there are any other tall celiacs that can relate because I always thought celiac could stunt your growth if not dealt with properly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skbird Contributor
skbird
Posted

I haven't been officially diagnosed as Celiac but I am gluten intolerant and have had symptoms most of my life. BUT I am 5'10", have great teeth (no cavities) and as far as I know, no osteoperosis.

Stephanie

Guest BellyTimber
Guest BellyTimber
Posted

I'm 50 so this story goes back.

My parents who are now elderly have been unburdening themselves of the odd matter that they had kept to themselves or even just plain forgotten about, as is normal I'm sure.

My experience was that I was seriously emaciated, underweight and weak from age about 5 to well past 20, but never stopped putting on height and in fact was almost the tallest in the class bar one or two until most of the rest caught up with me at around age 16. I have been 6ft since about age 16, which would have been tall earlier in the century but is perhaps near average among my contemporaries.

Am now 15st due to middle age spread which further confuses doctors.

What my folks just told me is, they were almost in trouble because I was so emaciated. This was after coeliac disease was heard of but evidently insight hadn't spread.

I had lots of symptoms that later (but not very well known) science has associated with celiac disease-like conditions.

HTH :)

Guest gliX
Guest gliX
Posted

i wouldn't call myself tall but i'm around 5'9 now..but didn't really grow until i went on the diet.

tarnalberry Community Regular
tarnalberry
Posted

darn... I wish I put on height after I went on the diet... 5"2' is tough to shop for - but hey, I can fit the cheaper childrens clothing. ;-)

Guest imsohungry
Guest imsohungry
Posted

Hey there! B)

Interesting topic! I'm 5'8" and have been thin my entire life. Of course, I fight multiple chronic disabilities...so I can't necessarily blame my blood probs. and thinness on celiac disease alone.

Hee hee...I was 5'6" by the end of elementary school with a whopping size nine foot. Doctors thought I would be closer to six feet, but I got sick and quit growing remarkably early.

Could be a blessing in disquise...I could be a giant! :P

flagbabyds Collaborator
flagbabyds
Posted

I;m almost 5'7" and still growing tall because I am almost 15 and I grew about 7" since I was diagnosed w/ sleep apnea YAY!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Thomas Apprentice
Thomas
Posted

Smith

Carriefaith Enthusiast
Carriefaith
Posted

I'm also almost 5"7 and I'm done growing.

Guest imsohungry
Guest imsohungry
Posted

Hi Smith...I didn't mean that being tall means you are a giant (in any negative way)...Like you, I also appreciate my height. B)

Well, all you tall ladies and gents out there have a good day! -Julie ;)

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I'm 6 feet and 2 inches.

I weigh around 230.

Everytime I go to a Celiac "event", people are suprised that I have Celiac. I guess some people think it can only happen to skinny folks (its not that I'm chubby - I'm just a corn-fed Ohio boy).

Guest vetnurse
Guest vetnurse
Posted

I am 5'11" and 43 so I hope I don't get a growth spurt! :o

skbird Contributor
skbird
Posted

I wanted to be six feet tall. Was a goal. I had a size 10 shoe at the end of 6th grade. Still wear size 10 shoes. I met a second cousin of mine about 10 years ago and she wears size 12, for some reason I was envious of this!

Funny anyway, I guess there is no one way to look/be with gluten intolerance.

Stephanie

LqrMan Newbie
LqrMan
Posted
  • Author

Hey all...thanks for the replies!

I guess our bodies are quite amazing if they are able to still grow with health problems. We are quite the diverse group of celiacs! My goal growing up was to be taller than my father and be 6'1'' but then I said the heck with that, might as well be 6'2''. I have size 12/13 feet too...

  • 1 month later...
bremac Apprentice
bremac
Posted

I'm 5'8" but I stopped growing a couple years before I was diagnosed so I don't know if celiac disease affected my growth that much. I have always been thin, but not underweight. My dad is really tall (6'6") so I think I reached my "natural" height.

Bre

Canadian Karen Community Regular
Canadian Karen
Posted

I'm 5'9", and I am the shortest one in my family..... People used to call my dad an "ex-mountain", he's huge......

My daughter (who so far is not celiac) is only 11 and she is already 5'7" with a ladies size 9 foot!!!! I am still waiting for her growth to level off a bit...... Interestingly, my younger daughter who is 6 is the cutest, tiniest, petite little pixie you ever saw. Go figure, eh? Two children, same parents, opposite ends of the spectrum.....

Karen

tasha Apprentice
tasha
Posted

I'm 5'8 -5'9ish, I guess that is kind of tall. I think I only developed celiac disease about two years ago (I'm 20 now), which was when I stopped growing. Its hard to tell if I stopped growing because of celiac or just because of my age.

nikki-uk Enthusiast
nikki-uk
Posted

We suspect my dh has had celiac disease since childhood,always extremely thin,now at 6ft at 110 pounds.

Oddly enough most of his family are on the small side(one brother is only 5ft 4inches-no celiac disease)

It seems that children grow-even if they're malnourished-but I think you pay the price in your health in later years.

celiac3270 Collaborator
celiac3270
Posted

I was short--around 5'2"...since Feb. I've grown about 5 inches and gone from a size 8 shoe to 10 1/2. My GI says it's catch up growth. I should be over six feet tall.

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I'm around 6'3 and 225 lbs.

I have to admit, I don't meet that many celiac disease's that are my size....

Generic Apprentice
Generic
Posted

I am 5'8", I think I would have been a lot taller. My dad is 6'6" and my mom is 5'1". I am glad my growth was stunted actually.

Guest gliX
Guest gliX
Posted

I'm around 5'9 now

and definitely grew after going gluten-free

  • 2 weeks later...
Brian Allee Newbie
Brian Allee
Posted

I'm 6'1" and I went through a huge growth spurt my junior and senior year in

High school. I still have knee and back pain! I think I developed Celiac a little bit later in life.

Misa Rookie
Misa
Posted

This is an interesting topic. Celiacs do come in all shapes and sizes.....

I'm 173 cm, I think that's 5'9. Looking back, have had celiac disease symptoms all my life. My sister is exactly the same height, and both my brother and father are tall people. But I was always the very slim one, even though I ate HUGE amounts of food all day long.

Misa :D

LRgirl Explorer
LRgirl
Posted

I'm 5'11, so is my dad! My mom is 5'8. My mom's side of the family are 5'8 or taller.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.