Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Explain It


summerteeth

Recommended Posts

summerteeth Enthusiast

I was diagnosed with celiac almost two years ago. I find that when I explain it to people, most of them at least understand it a little bit (as in, they understand I absolutely cannot eat gluten but maybe they don't understand why).

That being said, I have working in my current office for a little over a year (but I have worked at this company for almost three years. There are employees in and out of my office every day (I work for a trucking company) but there are three of us there: my boss (the president), an older lady who does secretarial work (but has been there for three decades) and myself (I am in IT).

Now this older lady, let's call her C, is a loud mouth character who is sometimes (begrudgingly) referred to as "an institution" (as in she has been there so long people request she pick up the phone and ramble off incoherent vulgarities). I have explained AD NAUSEUM my situation. I have brought in pamphlets on the disease. We get a lot of food from customers. Today, it was Pizza Hut pizza. With a piece, in hand, not two feet away from me, C TELLS ME I can have some because it is not made from whole wheat crust.

Okay, I am not trying to be oversensitive. And I could laugh it off it it only happened once in a while. But, like I said, it is almost daily. And, trust me, I have no desire to eat Pizza Hut. But my question is how do you explain celiac to people who just don't get it?

Sorry for the rant - I am just extremely frustrated with this...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

What if you just laugh at her when she says something like that? "that's very funny! You can't fool me! I know white flour is made from wheat?". Or "Ha! ha! You don't really think white flour doesn't come from wheat?". Being a small office, you can't get too mean. I think you already realize she's mean and not the fastest truck in the lot! :)

Jestgar Rising Star

..... and not the fastest truck in the lot! :)

This is what I thought, but I wouldn't have put it quite so nicely. :)

summerteeth Enthusiast

What if you just laugh at her when she says something like that? "that's very funny! You can't fool me! I know white flour is made from wheat?". Or "Ha! ha! You don't really think white flour doesn't come from wheat?". Being a small office, you can't get too mean. I think you already realize she's mean and not the fastest truck in the lot! :)

Haha that is a really good way to put it... she is kind of a, um... odd duck.

It just gets so grating, you know?

Thank you for the advice, though, I will try that next time she tries to pawn chocolate cake off on me.

StacyA Enthusiast

You gather up some serenity and accept that she is something you cannot change. You did have the courage to tackle the very difficult gluten-free diet, and you've educated others more than your energy required. Now you apply your wisdom to know the difference between what you can change and what you cannot - and you can't change her. Just smile and say - 'Oh, no, that has gluten, but thanks.'

It sounds cheesey, but maybe your only role can be planting the seed for her - and you already did it - job done. Maybe it'll have to take someone else in her life with celiac's or a food allergy to make her finally get it.

Nor-TX Enthusiast

I work in an elementary school and during staff meetings we basically all sit with the same groups. Staff meetings always have lots of food like cakes, cookies, little piggies in blankets, pita chips, brownies, crackers, dips....

Each and every time while I am eating my glutino pretzels and almond butter or jello the same insensitive b**** takes bites of brownies or pita dipped in spinach cheese dip and blows or exhales in my face and says, "Mmmmmmmmmmm doesn't that smell yummy. You know a little bit won't hurt you."

Well at first, when I was new to the diet I barely held back the tears, but now that I am feeling so much better I am stronger and just give her a smile and say, "oh wow, did you have garlic bread for lunch? or Wow did you have onion rings today?"

She still does it, but I am coping better. My DH is so supportive of my diet. We had company over for Memorial Day and he grilled me a portobello mushroom and I put it on some Katz gluten free Challah and it was delicious... didn't miss a burger at all. For dessert I made the Betty Crocker gluten free brownies and served them with regular ice cream for company and the So Delicous cookie dough icecream for me. No one made a big deal about anything because I didn't make a big deal of it either.

kareng Grand Master

I work in an elementary school and during staff meetings we basically all sit with the same groups. Staff meetings always have lots of food like cakes, cookies, little piggies in blankets, pita chips, brownies, crackers, dips....

Each and every time while I am eating my glutino pretzels and almond butter or jello the same insensitive b**** takes bites of brownies or pita dipped in spinach cheese dip and blows or exhales in my face and says, "Mmmmmmmmmmm doesn't that smell yummy. You know a little bit won't hurt you."

I hope she isn't a teacher. If that's how she treats your food issues, is she teasing the kids in her class that can't have something? Bringing PB cookies for a kid with a peanut allergy. I think I would ask the teachers you want to sit with if they would move away from that person and why. Maybe if others tell her she is acting stupid she will stop.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

Sometimes I somewhat inaccurately tell people I can't eat flour because I find that a shocking number of people don't think white flour is made from wheat!

conniebky Collaborator

I hope she isn't a teacher. If that's how she treats your food issues, is she teasing the kids in her class that can't have something? Bringing PB cookies for a kid with a peanut allergy. I think I would ask the teachers you want to sit with if they would move away from that person and why. Maybe if others tell her she is acting stupid she will stop.

I'd have to get redneck in that situation and went and knocked that "lady" into next week. OMG! I cannot believe full grown adults act like this. Honestly, why in this world would a grown up act like that? I hope she's not a teacher too....what valuable thing could she possibly be teaching to children if she finds that kind of behavior appropriate on any level?

Nor-TX Enthusiast

I'd have to get redneck in that situation and went and knocked that "lady" into next week. OMG! I cannot believe full grown adults act like this. Honestly, why in this world would a grown up act like that? I hope she's not a teacher too....what valuable thing could she possibly be teaching to children if she finds that kind of behavior appropriate on any level?

Oh yes, she is also a teacher. Young, perky, always joking, everyone thinks she is quite a character.

summerteeth Enthusiast

Sometimes I somewhat inaccurately tell people I can't eat flour because I find that a shocking number of people don't think white flour is made from wheat!

Isn't it shocking how people don't know what is in their food?

And WOW -- that is a horrible attitude for a teacher to have! Food allergies and intolerance are serious problems. Definitely not something you can "just have a bite of".

frieze Community Regular

Oh yes, she is also a teacher. Young, perky, always joking, everyone thinks she is quite a character.

actually, what she is doing is what is called "lateral violence" and she needs to be disciplined for it, she is opening herself and the school district to a lawsuit.

lynnelise Apprentice

That teacher is a scary situation! I read a news article several years ago where a teacher gave a boy a cookie telling him it was okay after he told her he wasn't supposed to have it. He died as he was allegeric to peanuts. Luckily adults can ignore that kind of behavior but kids may honestly believe this teacher when she says a little bit won't hurt! They are authority figures to kids and kids trust them! Let's hope all her students are free of food allergies, which is unlikely in this day and age.

Skylark Collaborator

These people don't WANT to get it. They don't care about celiac, and really they don't care about you. They care about appearing like the nice, sharing, generous person who makes sure you get a slice of pizza. The way to get around it is usually to make a big deal of the offer. "Thanks so much. You were so kind to think of me. No, I really can't eat that but you were so generous to offer to share." Yadda yadda... ad nauseum.

What that b*** of a teacher is doing is beyond normal. It's discriminatory and implies a desire to harm you. It's illegal to do that in a workplace and you don't have to put up with it. File a formal complaint with the HR department.

I've run across the white flour thing too. I had one waiter who was just hilarious. I was asking if they had a list of gluten-free food and he said all the breads had wheat but I eat the pasta. I asked what the pasta was made from and he said "flour". I asked him what the flour was made from and suddenly the light went on. :lol: Next, he looked at the menu and was suddenly sympathetic, asking me how I managed without flour.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...