Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Pattern Of Diarrhea

poopedout

Recommended Posts

poopedout Apprentice
poopedout
Posted

I would like to know if anyone else has a similar pattern to their diarrhea. Mine is usually at night after going to sleep. I call it a triple whammy. At midnight, or soon after, it starts and I get watery diarrhea three times within about 20 minutes. Sometimes the triple whammy is an hour or so after eating but more often around midnight. It feels like some poison is being expelled by my body. Also does anyone know why it would happen at that time? It usually comes again starting around 6 A.M but it is not a triple whammy. I rarely get the diarrhea in the daytime. It is now about 7 or 8 times a day per 24 hours. Is this typical of gluten intolerance/celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I would like to know if anyone else has a similar pattern to their diarrhea. Mine is usually at night after going to sleep. I call it a triple whammy. At midnight, or soon after, it starts and I get watery diarrhea three times within about 20 minutes. Sometimes the triple whammy is an hour or so after eating but more often around midnight. It feels like some poison is being expelled by my body. Also does anyone know why it would happen at that time? It usually comes again starting around 6 A.M but it is not a triple whammy. I rarely get the diarrhea in the daytime. It is now about 7 or 8 times a day per 24 hours. Is this typical of gluten intolerance/celiac disease?

This pattern could be suggestive of Microscopic Colitis. I would mention it to your gastro.

poopedout Apprentice
poopedout
Posted
  • Author

This pattern could be suggestive of Microscopic Colitis. I would mention it to your gastro.

So after midnight is typical of microscopic colitis and not celiac? Do you know why it happens at that time and not in the daytime?

poopedout Apprentice
poopedout
Posted
  • Author

This pattern could be suggestive of Microscopic Colitis. I would mention it to your gastro.

Why would it get better on a gluten free diet? I was great for about a month or more two months after going gluten free. No midnight diarrhea at all except it was usually still watery.

jerseyangel Proficient
jerseyangel
Posted

So after midnight is typical of microscopic colitis and not celiac? Do you know why it happens at that time and not in the daytime?

Why would it get better on a gluten free diet? I was great for about a month or more two months after going gluten free. No midnight diarrhea at all except it was usually still watery.

I don't know why it tends to happen at night/early in the morning, but it is a common symptom. My gastro told me that it's associated with Celiac, although you can certainly have one without the other.

Have you had testing for Celiac? MC is diagnosed by biopsying samples of tissue from the large intestine during a colonoscopy.

poopedout Apprentice
poopedout
Posted
  • Author

I don't know why it tends to happen at night/early in the morning, but it is a common symptom. My gastro told me that it's associated with Celiac, although you can certainly have one without the other.

Have you had testing for Celiac? MC is diagnosed by biopsying samples of tissue from the large intestine during a colonoscopy.

I have not been able to get an appointment with a gastro. I was referred by my GP on April 30th, but I have not had a call with an appointment. My GP would not test me for celiac. He said I was too old to have it. Anyway the tests would probably be negative as I have been gluten free for six months.

jerseyangel Proficient
jerseyangel
Posted

I have not been able to get an appointment with a gastro. I was referred by my GP on April 30th, but I have not had a call with an appointment. My GP would not test me for celiac. He said I was too old to have it. Anyway the tests would probably be negative as I have been gluten free for six months.

It's unfortunate that your GP wouldn't test you, and of course he's wrong about your being too old to have Celiac. (things like this make me so mad....) You are right though, the test would probably come back negative since you are already gluten-free.

Still, if it were me I would go ahead with an appointment with the gastro when you can and discuss this with them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


poopedout Apprentice
poopedout
Posted
  • Author

It's unfortunate that your GP wouldn't test you, and of course he's wrong about your being too old to have Celiac. (things like this make me so mad....) You are right though, the test would probably come back negative since you are already gluten-free.

Still, if it were me I would go ahead with an appointment with the gastro when you can and discuss this with them.

Thanks. That's what I am waiting for, but I don't understand why it is taking so long.

Looking for answers Contributor
Looking for answers
Posted

I would probably cut out all other typical high allergy foods in the meantime, soy, dairy, etc, to see if you can improve your symptoms and get some sleep before you get to see your doctor.

ravenwoodglass Mentor
ravenwoodglass
Posted

I would like to know if anyone else has a similar pattern to their diarrhea. Mine is usually at night after going to sleep. I call it a triple whammy. At midnight, or soon after, it starts and I get watery diarrhea three times within about 20 minutes. Sometimes the triple whammy is an hour or so after eating but more often around midnight. It feels like some poison is being expelled by my body. Also does anyone know why it would happen at that time? It usually comes again starting around 6 A.M but it is not a triple whammy. I rarely get the diarrhea in the daytime. It is now about 7 or 8 times a day per 24 hours. Is this typical of gluten intolerance/celiac disease?

Yes it is. My clueless GI after I was diagnosed asked me why I hadn't told him I was waking up nightly with D. I had of course told him but he was so convinced I had IBS that he wasn't listening. I would also have D daily as well, usually right after or even during a meal.

poopedout Apprentice
poopedout
Posted
  • Author

I would probably cut out all other typical high allergy foods in the meantime, soy, dairy, etc, to see if you can improve your symptoms and get some sleep before you get to see your doctor.

Funny you should mention sleep. I haven't had a good night's sleep for a long time. One morning after being in the bathroom 8 times between midnight and 6 A.M I was so out of it that I think I forgot to rinse the conditioner out of my hair as it was all sticky after I dried it. I even used someone else's toothbrush.

You've heard of the midnight ride of Paul Revere. Well I call my nightly adventures the midnight runs of diarrhea.

jerseyangel Proficient
jerseyangel
Posted

Funny you should mention sleep. I haven't had a good night's sleep for a long time. One morning after being in the bathroom 8 times between midnight and 6 A.M I was so out of it that I think I forgot to rinse the conditioner out of my hair as it was all sticky after I dried it. I even used someone else's toothbrush.

You've heard of the midnight ride of Paul Revere. Well I call my nightly adventures the midnight runs of diarrhea.

You poor thing! Although it does take time to get relief after going on the gluten-free diet, it's entirely possible for us to have something else going on. I hope you can get in to see the specialist and get to the bottom of this. Keep us posted.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Iam
      - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Yes. I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy. Numerous dental visits and several professionally made bite plates did very little to help with symptoms
    2. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    3. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    4. bobadigilatis
      - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm. Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate...
    5. cristiana
      - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

      Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,300
    • Most Online (within 30 mins)
      7,748
    Philbin
    Newest Member
    Philbin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Feel like I’m starting over

      By trents · Posted

      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By bobadigilatis · Posted

      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.