Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Pattern Of Diarrhea

poopedout

Recommended Posts

poopedout Apprentice
poopedout
Posted

I would like to know if anyone else has a similar pattern to their diarrhea. Mine is usually at night after going to sleep. I call it a triple whammy. At midnight, or soon after, it starts and I get watery diarrhea three times within about 20 minutes. Sometimes the triple whammy is an hour or so after eating but more often around midnight. It feels like some poison is being expelled by my body. Also does anyone know why it would happen at that time? It usually comes again starting around 6 A.M but it is not a triple whammy. I rarely get the diarrhea in the daytime. It is now about 7 or 8 times a day per 24 hours. Is this typical of gluten intolerance/celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I would like to know if anyone else has a similar pattern to their diarrhea. Mine is usually at night after going to sleep. I call it a triple whammy. At midnight, or soon after, it starts and I get watery diarrhea three times within about 20 minutes. Sometimes the triple whammy is an hour or so after eating but more often around midnight. It feels like some poison is being expelled by my body. Also does anyone know why it would happen at that time? It usually comes again starting around 6 A.M but it is not a triple whammy. I rarely get the diarrhea in the daytime. It is now about 7 or 8 times a day per 24 hours. Is this typical of gluten intolerance/celiac disease?

This pattern could be suggestive of Microscopic Colitis. I would mention it to your gastro.

poopedout Apprentice
poopedout
Posted
  • Author

This pattern could be suggestive of Microscopic Colitis. I would mention it to your gastro.

So after midnight is typical of microscopic colitis and not celiac? Do you know why it happens at that time and not in the daytime?

poopedout Apprentice
poopedout
Posted
  • Author

This pattern could be suggestive of Microscopic Colitis. I would mention it to your gastro.

Why would it get better on a gluten free diet? I was great for about a month or more two months after going gluten free. No midnight diarrhea at all except it was usually still watery.

jerseyangel Proficient
jerseyangel
Posted

So after midnight is typical of microscopic colitis and not celiac? Do you know why it happens at that time and not in the daytime?

Why would it get better on a gluten free diet? I was great for about a month or more two months after going gluten free. No midnight diarrhea at all except it was usually still watery.

I don't know why it tends to happen at night/early in the morning, but it is a common symptom. My gastro told me that it's associated with Celiac, although you can certainly have one without the other.

Have you had testing for Celiac? MC is diagnosed by biopsying samples of tissue from the large intestine during a colonoscopy.

poopedout Apprentice
poopedout
Posted
  • Author

I don't know why it tends to happen at night/early in the morning, but it is a common symptom. My gastro told me that it's associated with Celiac, although you can certainly have one without the other.

Have you had testing for Celiac? MC is diagnosed by biopsying samples of tissue from the large intestine during a colonoscopy.

I have not been able to get an appointment with a gastro. I was referred by my GP on April 30th, but I have not had a call with an appointment. My GP would not test me for celiac. He said I was too old to have it. Anyway the tests would probably be negative as I have been gluten free for six months.

jerseyangel Proficient
jerseyangel
Posted

I have not been able to get an appointment with a gastro. I was referred by my GP on April 30th, but I have not had a call with an appointment. My GP would not test me for celiac. He said I was too old to have it. Anyway the tests would probably be negative as I have been gluten free for six months.

It's unfortunate that your GP wouldn't test you, and of course he's wrong about your being too old to have Celiac. (things like this make me so mad....) You are right though, the test would probably come back negative since you are already gluten-free.

Still, if it were me I would go ahead with an appointment with the gastro when you can and discuss this with them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


poopedout Apprentice
poopedout
Posted
  • Author

It's unfortunate that your GP wouldn't test you, and of course he's wrong about your being too old to have Celiac. (things like this make me so mad....) You are right though, the test would probably come back negative since you are already gluten-free.

Still, if it were me I would go ahead with an appointment with the gastro when you can and discuss this with them.

Thanks. That's what I am waiting for, but I don't understand why it is taking so long.

Looking for answers Contributor
Looking for answers
Posted

I would probably cut out all other typical high allergy foods in the meantime, soy, dairy, etc, to see if you can improve your symptoms and get some sleep before you get to see your doctor.

ravenwoodglass Mentor
ravenwoodglass
Posted

I would like to know if anyone else has a similar pattern to their diarrhea. Mine is usually at night after going to sleep. I call it a triple whammy. At midnight, or soon after, it starts and I get watery diarrhea three times within about 20 minutes. Sometimes the triple whammy is an hour or so after eating but more often around midnight. It feels like some poison is being expelled by my body. Also does anyone know why it would happen at that time? It usually comes again starting around 6 A.M but it is not a triple whammy. I rarely get the diarrhea in the daytime. It is now about 7 or 8 times a day per 24 hours. Is this typical of gluten intolerance/celiac disease?

Yes it is. My clueless GI after I was diagnosed asked me why I hadn't told him I was waking up nightly with D. I had of course told him but he was so convinced I had IBS that he wasn't listening. I would also have D daily as well, usually right after or even during a meal.

poopedout Apprentice
poopedout
Posted
  • Author

I would probably cut out all other typical high allergy foods in the meantime, soy, dairy, etc, to see if you can improve your symptoms and get some sleep before you get to see your doctor.

Funny you should mention sleep. I haven't had a good night's sleep for a long time. One morning after being in the bathroom 8 times between midnight and 6 A.M I was so out of it that I think I forgot to rinse the conditioner out of my hair as it was all sticky after I dried it. I even used someone else's toothbrush.

You've heard of the midnight ride of Paul Revere. Well I call my nightly adventures the midnight runs of diarrhea.

jerseyangel Proficient
jerseyangel
Posted

Funny you should mention sleep. I haven't had a good night's sleep for a long time. One morning after being in the bathroom 8 times between midnight and 6 A.M I was so out of it that I think I forgot to rinse the conditioner out of my hair as it was all sticky after I dried it. I even used someone else's toothbrush.

You've heard of the midnight ride of Paul Revere. Well I call my nightly adventures the midnight runs of diarrhea.

You poor thing! Although it does take time to get relief after going on the gluten-free diet, it's entirely possible for us to have something else going on. I hope you can get in to see the specialist and get to the bottom of this. Keep us posted.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748
    Rotary
    Newest Member
    Rotary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      Potential celiac need advice

      By itsdunerie · Posted

      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.