Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An Email I Sent To All My Mental Health Colleagues


StacyA

Recommended Posts

StacyA Enthusiast

I thought I'd share an email I sent out to a bunch of mental health colleagues last week: counselors, social workers, psychiatrists. It's my hope they forward it to others:

Mental Health Colleagues:

To best serve our clients, we should always be increasing our knowledge. I hope this email contributes in some way.

Is celiac disease on your short list of rule-outs for patients? If not, please consider it.

Celiac disease is an autoimmune reaction to gluten - the protein found in wheat, barley and rye.

Symptoms vary widely, and some people are asymptomatic. Some common symptoms that alone may indicate further exploration include: unexplained fatigue, mood swings, depression, irritability, unexplained weight loss or gain, amenorrhea, unexplained infertility, dental enamel loss, GI distress, lactose intolerance, and nutritional deficiencies including anemia, vitamin K deficiency, vitamin D deficiency, and early osteoporosis. Family or patient history of other autoimmune disorders may also warrant a celiac screen.

Currently it is estimated that 1 in every 133 Americans have celiac disease, but 97% of them go undiagnosed. Could some of your patients be in that 97%?

I thought I was fairly educated on general medical conditions that may mimic or contribute to mental health disorders: mitral valve prolapse, thyroid disease, vitamin deficiencies, multiple sclerosis, chronic pain disorders


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I hope they listen. Thanks for doing all you can to increase the awareness of this disease and its effects on mental health.

Skylark Collaborator

You might have read my SSRI/bipolar horror story in bits and pieces in other posts. As a person who "fell through the cracks" I'm absolutely thrilled to see you doing this. I hope it makes a difference.

lilbit Apprentice

I'm just curious, I wonder why noone has done a PSA or a commerical. Do you think its because its a diet change and not a drug therapy?

  • 2 weeks later...
Stacy hated pancake Sunday Newbie

I'm just curious, I wonder why noone has done a PSA or a commerical. Do you think its because its a diet change and not a drug therapy?

Just think of all the money lost if people cut out gluten instead of taking prescriptions....all of the industries affected...drug companies, farmers, food manufacturers, weight loss companies...I often wonder if it is just lack of knowledge, education or if it is some grand conspiracy to keep us sick and spending.

My husband makes fun of me because I attribute so many issues to possible gluten intolerance...he says that I want everyone to suffer with a gluten-free diet along with me. While he laughs at me...he also double checks ingredient labels to make sure I don't 'glutenize' myself because I'm not fun to be around the 3-4 weeks following a gluten accident.

Stacy hated pancake Sunday Newbie

I thought I'd share an email I sent out to a bunch of mental health colleagues last week: counselors, social workers, psychiatrists. It's my hope they forward it to others:

Mental Health Colleagues:

To best serve our clients, we should always be increasing our knowledge. I hope this email contributes in some way.

Is celiac disease on your short list of rule-outs for patients? If not, please consider it.

Celiac disease is an autoimmune reaction to gluten - the protein found in wheat, barley and rye.

Symptoms vary widely, and some people are asymptomatic. Some common symptoms that alone may indicate further exploration include: unexplained fatigue, mood swings, depression, irritability, unexplained weight loss or gain, amenorrhea, unexplained infertility, dental enamel loss, GI distress, lactose intolerance, and nutritional deficiencies including anemia, vitamin K deficiency, vitamin D deficiency, and early osteoporosis. Family or patient history of other autoimmune disorders may also warrant a celiac screen.

Currently it is estimated that 1 in every 133 Americans have celiac disease, but 97% of them go undiagnosed. Could some of your patients be in that 97%?

I thought I was fairly educated on general medical conditions that may mimic or contribute to mental health disorders: mitral valve prolapse, thyroid disease, vitamin deficiencies, multiple sclerosis, chronic pain disorders

ravenwoodglass Mentor

I'm just curious, I wonder why noone has done a PSA or a commerical. Do you think its because its a diet change and not a drug therapy?

Gee didn't you see the constant press that celiac got last month during Celiac Awareness Month? Just kidding, I wish that was the case but yes I also think the reason we don't see PSAs or commericals is because of the fact that it is a diet change and not a drug treatment. Literally millions of dollars are made by the health industry and drug companies off us when we remain undiagnosed. It also means we are one of the unhealthiest countries in the world with a average death age that is going down rather than up at this point in history. Not to mention the money made from the scores of our population in prisons, many for drug related offenses, due to a pharmecologic society. We are also one of the few that allow drugs to be pushed over TV. We also have more of our population in prison than any other country in the world, bar none. But that is another subject.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.