Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was Food Allergy Tested Today....


Luvbeingamommy

Recommended Posts

Luvbeingamommy Contributor

I decided to go ahead and do this even though I didn't really think I had any true allergies. I figured it never hurts to check before I started guessing and pulling things out of my diet.

The allergist didn't think we were dealing with true IgE allergies, but maybe delayed IgE allergies or more intolerances. Mostly stomach he said can be true allergies, but often are not. I did have a month not too long ago where I kept getting hives, but it went away.

Anyway, found out that I had a reaction to green peas, peanuts, and soybeans. At first I wanted to cry when I added gluten to that, but then I kind of thought about it and hopefully it won't be too bad. He wants me to remove those from my diet and do it for a month and see if my stomach problems resolve and then I can try to add one one month at a time. He seemed to be hopeful that I might be able to tolerate soy, as it was the least reactive.

I was a little confused, so if you have a reaction, but you don't notice it then it's okay to eat it?? That's what I got from what he said. I believe my soybean was 2+ and peas and peanuts 3+.

Oh and if anyone has had these kind of reactions did you feel better soon after eliminating??

Also it seems to me when you are diagnosed with anything autoimmune it seems common for allergies to show up, I wonder why that is??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

i have some mild, some moderate, and some severe allergies

during high allergy seasons (think NOW when it's high pollen time) i really avoid foods that i'm allergic to (nuts, seeds, fruits, etc...)

i find that i can tolerate very small portions of some items that i'm allergic to if 1) i have my medication in me, & 2) i do it in a smart way (i might have 2 strawberries but that will be it today for my allergy foods. then tomorrow i might have peanuts. then the next day i'll have pesto made w/ pine nuts - but a VERY SMALL amt.)

remember, everyone is different!

i also always keep a backup supply of benadry (i am allowed to take it in case my everyday pill doesn't do the job) and my epi pen around too.

however, if i wake up and my day starts off as a bad allergy day, i avoid all of it.

good luck and know you have support!

Luvbeingamommy Contributor

So you take allergy meds year round then?? I do have seasonal allergies and take it on and off during the allergy season.

I forgot to tell the doctor but when I was laying there maybe 5 minutes into it my heart was beating really fast for the second half, but not for a long time or anything. Probably not a big deal though??

So you hear about peanut allergies all the time and how scary they can be. I know mine isn't severe, but when I avoid it and then get it again can't the reaction be worse?? I just worry he didn't say anything about an epipen, but maybe with the severity he didn't think I needed it?? Probably me just worrying too much.

T.H. Community Regular

Sorry to hear about your allergies, but hopefully this will start to help you feel better!

My GI has prety much noted exactly what you said, in his practice. His celiac and other auto-immune patients seem to be susceptible to food allergies more than his other patients. I asked why and I don't remember his answer, darn it.

I was told I might be able to add things on my allergy list back in, too, after a while. The explanation I was given was that if it's a low level allergy, many people seem to stop being allergic after they have avoided it entirely for a while. Perhaps that is the same with your allergies?

One little bit of info. might be of use to you, that my doc passed on. In animal studies right now, animals fed soy beans that are genetically modified in a large portion of their diet tended to develop allergies to peanuts for some reason. the researchers didn't know why. But my doc said he very much suspected that celiac folk would be more vulnerable to this type of issue than non-auto-immune-issue folk. I tested allergic to soy, too, and my doc advised me that when I try to reintroduce soy some time in the future, I should look at organic products, since the soy in those isn't genetically modified, so I won't run into that issue. Figured I'd pass that on! :-)

I decided to go ahead and do this even though I didn't really think I had any true allergies. I figured it never hurts to check before I started guessing and pulling things out of my diet.

The allergist didn't think we were dealing with true IgE allergies, but maybe delayed IgE allergies or more intolerances. Mostly stomach he said can be true allergies, but often are not. I did have a month not too long ago where I kept getting hives, but it went away.

Anyway, found out that I had a reaction to green peas, peanuts, and soybeans. At first I wanted to cry when I added gluten to that, but then I kind of thought about it and hopefully it won't be too bad. He wants me to remove those from my diet and do it for a month and see if my stomach problems resolve and then I can try to add one one month at a time. He seemed to be hopeful that I might be able to tolerate soy, as it was the least reactive.

I was a little confused, so if you have a reaction, but you don't notice it then it's okay to eat it?? That's what I got from what he said. I believe my soybean was 2+ and peas and peanuts 3+.

Oh and if anyone has had these kind of reactions did you feel better soon after eliminating??

Also it seems to me when you are diagnosed with anything autoimmune it seems common for allergies to show up, I wonder why that is??

Metoo Enthusiast

Also it seems to me when you are diagnosed with anything autoimmune it seems common for allergies to show up, I wonder why that is??

I have read it has to do with the inflammation in your body from the autoimmune, and that the body just starts fighting all kinds of stuff because it is over inflammed. My relatives that went on an allergy exclusion diet, (because of having to go gluten-free) said the doctor said too that once your inflammation is down and controlled, then you can slowly add back in the things that you became allergic to...but you have to slowly test them you can't eat them more than once a week...and it takes like 3 months for them to add things back into their diet.

Skylark Collaborator

I couldn't tolerate milk or soy at first. After a year gluten-free my body settled down and I could eat them again. I don't know of any danger eating non-gluten foods that you can tolerate. You do have to pay attention for a few days, as delayed reactions can show up the day after you eat the food. I've had gluten reactions as late as 36 hours after eating something with wheat by mistake.

WheatChef Apprentice

Gluten has been shown to influence the expression of the genes responsible for determining your intestinal permeability meaning that substances that normally can't pass through your intestines potentially could make their way through if enough of the expression is altered. This would mean that your body normally wouldn't be exposed to these larger more reactive chemicals yet with the influence of gluten on your system is now having to react. This is most likely part of the reason why a lot of people with gluten problems end up having many other allergy problems that often go away once their gut heals.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Luvbeingamommy Contributor

I couldn't tolerate milk or soy at first. After a year gluten-free my body settled down and I could eat them again. I don't know of any danger eating non-gluten foods that you can tolerate. You do have to pay attention for a few days, as delayed reactions can show up the day after you eat the food. I've had gluten reactions as late as 36 hours after eating something with wheat by mistake.

Yeah that's why my allergist said I can try the foods I have to do it over a month I guess. Not for awhile though, but eventually.

Gluten has been shown to influence the expression of the genes responsible for determining your intestinal permeability meaning that substances that normally can't pass through your intestines potentially could make their way through if enough of the expression is altered. This would mean that your body normally wouldn't be exposed to these larger more reactive chemicals yet with the influence of gluten on your system is now having to react. This is most likely part of the reason why a lot of people with gluten problems end up having many other allergy problems that often go away once their gut heals.

That makes sense. I read though that most don't loose a peanut allergy, but maybe I will be one of the lucky few. If not I guess it's not the end of the world. Although going gluten free cut my candy bar choices down and now even more....not sure even what I could eat without gluten or peanuts. Thanks for the explanation.

Jestgar Rising Star

Gluten has been shown to influence the expression of the genes responsible for determining your intestinal permeability

Could you please provide links to these studies?

T.H. Community Regular

Oh how interesting! I have been wondering about why that is, too, for a while now! Good info. to know.

I have read it has to do with the inflammation in your body from the autoimmune, and that the body just starts fighting all kinds of stuff because it is over inflammed. My relatives that went on an allergy exclusion diet, (because of having to go gluten-free) said the doctor said too that once your inflammation is down and controlled, then you can slowly add back in the things that you became allergic to...but you have to slowly test them you can't eat them more than once a week...and it takes like 3 months for them to add things back into their diet.

kayo Explorer

If you have seasonal allergies you may have what is called cross reaction food allergies. There's also something called oral allergy syndrome. (links below)

I'm allergic to birch and ragweed and have an intolerance to soy. My body misinterprets the soy to be birch pollen. I've also had some reactions to strawberries and other fruits.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.