Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Walgreens Fail


T.H.

Recommended Posts

T.H. Community Regular

I am so upset right now I just want to cry.

I had surgery earlier this week, and last night I ended up at the ER with increasing pain and all sorts of fun stuff. Was sent away from the ER with muscle relaxants - my neck and shoulders were so kinked up I am literally walking with my head to the side and hunched over - and pain medication for excruciating back pain. My doctor at the hospital was very good about making sure we had gluten free drugs, and we even double checked them with glutenfreedrugs.com after we left.

It was 9 at night, the pain meds from the hospital are wearing off, my husband goes into the Walgreens to get the medication (I would have recommended somewhere else, if I'd been very coherent), and that's where it all goes down the drain. We've spent hours at the ER, we're tired, he's been watching the kids, and he knows they gave us gluten free meds. so he didn't even think to ask about it when he got the medication. I was just a little heap in the car, waiting for him.

I was supposed to take one of the pills as soon as we got them, but I had just enough coherence left that I noticed the label of the pill bottles. They didn't give us the drugs we asked for, they gave us the generic. I ask my hubby if those are gluten free, and he has no idea, but he assumes they are, because Walgreens has down that I am Celiac. They wouldn't give me stuff that has gluten, right?

I've only had to have medicine a couple times since going gluten free, but I'm a lot less trusting than he is. I made him go back and check, and they have no idea. My stupid !#$%!@#$@ cell phone has no battery left, the car charger is in the other car, and the Walgreens has 'no way to check the gluten status until the morning when the drug companies open.' We end up driving to the nearest walmart, buying a stupid car charger so we can charge the phone and check glutenfreedrugs.com ourselves, and both my medication they gave me has gluten. :(

I'm SO glad I checked! SO mad that they don't have a freaking list!!

But it doesn't end there. My pain medication is almost completely worn off by this point, but I end up going in to the pharmacy to talk to them, hoping that the actual patient being there might help. They check all their medicines, but not one that they have in stock is gluten free for my two prescriptions. They won't take back the pills they gave us, of course, although the pharmacist does give me the number of the ER to call them for ANOTHER prescription.

I call the ER on the cell phone as I'm walking out of the store, just in so much freaking pain all I want to do is lie down and not get up for a week, and I take two steps out the door by the time the ER says they'd be happy to get me a new prescription, but they just need to talk to the pharmacist in person for a few seconds to confirm (these are narcotics, after all). I turn to re-enter the store, and they have locked it behind me. Closed.

I manage to get the manager to re-open, explaining I just need a few seconds of the pharmacist's time to speak to the ER, and he won't let me back in. I'm literally crying I'm in so much pain now, feeling like a complete idiot, and he's telling me that no, they can't let me in, and even if they could, it's now after hours so the pharmacist isn't allowed to talk with the ER anyway. We can go to another Walgreens that's open 24 hours a few miles away and THEY can call the ER for us. This Walgreens won't even do THAT for us.

I honestly broke down completely. Headed back to my car, just crying uncontrollably, in front of my kids no less so the poor things are scared to death, because mama never cries unless it's a sad movie. My husband is beyond pissed. He just heads back to the ER, brings in the drugs, tells them what happened, and they are very responsive and good, just as they were before. Gave us another prescription, and names of pharmacies they thought would be better, and told us to make sure to take these not-gluten-free drugs with us so we could show the new pharmacy and not get hassled about trying to get this type of medication twice in one day.

The only thing is, all the pharmacies that carry this are over an hour away from where we are, which will be an hour away from our house, too. It's now after 11 at night, with the kids in the car, and we finally just ended up coming home where I have my half-as-effective pain pills that let me sleep at least a few hours but no more than that. My hubby is going in this morning to get prescription for me at the other pharmacy.

Right now, I'm still so ANGRY and in pain and just miserable. I know the pharmacist tried to help, once she realized there was a problem. She called all the companies, she gave us the names of the manufacturers, she got me the ER name, but considering it was their mistake, when they have ALL the information to avoid that mistake, it doesn't feel like enough. Because of the pharmacy and that !#$@# manager, I've got essentially an extra day of pain to live through before I can get any relief, and that makes me so mad. I keep thinking about what if this had been my kids going through this, and it makes me madder.

So I suppose all I'm saying is, if this is an example of Walgreens' ability to cope with gluten sensitive patients, they earn a total and utter FAIL. :angry: Avoid these guys like the plague.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I go to Walgreens too. I have to check myself all the meds I get. They said they can't access the Internet or call long distance. I usually find out before I pick up something and call. They do not keep the fact that you have celiac disease in the computer and it wouldn't matter. They don't check it and it doesn't seem to work too well cross checking your other meds either. I know they have given people stuff that shouldn't be taken with other meds and not told them. The pharmacist even told me that the amount of gluten in a pill isn't enough to hurt me. I said maybe, if I only took it once but twice a day foy months?

Maybe you can copy the above and email it to them.

I just emailed to ask why they can't keep track of the celiac disease and gluten status of drugs. If anyone else who reads this uses Walgreens, email them today and ask that. If they get several in one day they might wonder about it.

Monklady123 Collaborator

I'm sorry that happened to you! It sounds awful! But, thank you for posting, because now I will be sure to NEVER EVER go to Walgreens. :angry:

ravenwoodglass Mentor

I will never go to Walgreens either for anything if this is the way they treat their customers.

One thing that may help is when my doctor gives me a script for something the he has checked and certified that it is gluten-free I make sure that he writes Dispense as written, DAW on the script, there is actually a little box for that. If the doctor does that the pharmacy cannot substitute a generic form that may or may not be safe. There are times though that the name brand drug will not be safe, xanax is an example, after my doctor checked we found out the generic form usually is safe. It depends on the med and the maker.

I am so sorry this happened to you. I don't know if you have a Wegmans nearby but they are very celiac savvy and though I do have to remind the clerk they will take the time needed to check that the med is safe.

GlutenFreeManna Rising Star

So sorry to hear about your bad night. Going to the ER and then waiting for meds is no fun even without the hassle of having to check if your meds are gluten-free.

Unfortunately this could be a problem at any pharmacy. They don't teach pharmacists about celiac disease or gluten intolerance. My SIL is a pharm tech and when my H told her I can't have anything with gluten she said, "What is gluten?". My H had to list the foods that contain gluten: wheat, barley, rye, etc.

It's a good thing you had enough coherence to look out for yourself and fight to get the right meds. Hope you feel better soon.

missy'smom Collaborator

I go to Walgreens too. I have to check myself all the meds I get. They said they can't access the Internet or call long distance. I usually find out before I pick up something and call.

Ditto. Sigh...I always ask the doc. both the brand name and the generic name so that if I can't track down one, maybe I can get in touch with the other and yes, it takes an extra day usually. Thankfully I rarely take meds. I don't want to bash Walgreens, I think it could happen anywhere. The Walgreens I go to finally got to the point where they would at least let me call the manufacturer from their phone, saving me one trip or a little time. But, I've had to go home and look up the number online at times. To the OP, I'm sorry you had such a bad experience. I feel your pain. Really. The pharmacies NEED better training! I've been laughed at by an ER doc for asking if the solution they wanted me to drink was gluten-free. He'd "never heard that one before!"

Almendra Apprentice

Odd, I went to Walgreens here in Southeastern Wisconsin and, after I explained my needs and worries about my prescription, the pharmacist allowed me to double check the ingredients of my medicine and then printed out a 20 page list of gluten-free OTC medicines in the store for me. The list says that it is revised once a year ("Good as of 06/30/2009") and that the items are subject to manufacturer product changes.

I do not understand why other Walgreens would be less helpful. Although, it does seem that the pharmacists I have spoken with since my diagnosis are not very familiar with gluten issues (we seem to problem solve together - they do not have ready answers or understanding of my needs).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

To have that kind of frustration piled on you when you're in excruciating pain is inexcusable! I hope you can get in touch w/ someone "higher up" in the Walgreens company and tell them your whole story!

polarbearscooby Explorer

When I informed Walgreens I have an allergy to penicillin and have celiac they brushed me off and didn't seem to notice. We've had LOTS of problems with our local walgreens so we just made the switch to wal*mart. They are much nicer they and way more helpful...

kayo Explorer
They said they can't access the Internet or call long distance.

What a joke! Pharmacists need to be able to call and gather adequate information. Also, no one had a cell phone? Regardless, all the meds come with paper inserts that the pharmacist can look at to see the active and inactive ingredients. When I had a question that's what my (CVS) pharmacist did. She pulled out the papers and unfolded them and we went over the ingredients together. When one had gluten she chose the same med with a different manufacturer and we checked that one. In the end she had to order me the med from yet a different manufacturer who didn't use gluten. I'm lucky in that she knew what gluten and lactose were and she put notes in my file.

jerseyangel Proficient

we just made the switch to wal*mart. They are much nicer they and way more helpful...

I had bad luck with my local CVS, so I also go to WalMart. They tagged my file in their system with gluten-free, and always call the manufacturer for me.

polarbearscooby Explorer

I had bad luck with my local CVS, so I also go to WalMart. They tagged my file in their system with gluten-free, and always call the manufacturer for me.

So far Wal*Mart has been really good, My own doctor is an idiot so I can't look to him to help me with this :P

T.H. Community Regular

Thank you everyone for your replies! I'm pretty sad to hear that lots of people have gone through this, too, but at the same time, it's kind of nice to feel less alone. I suppose maybe I should be grateful that this happened to me first. I'm kind of new to this, but both my kids need gluten-free medications too, and better I had to go through this than my kids have to. I'd better start trying to find a trustworthy pharmacist now for the future

I think I may be giving Walmart a try and see if they are any better - this is the second Walgreens in town I've had problems with, and in the end, I now don't have any pain meds until Monday. We have five different pharmacies in town, and not ONE of them had gluten free versions of my medicine in stock. They all had the generic versions with gluten available. This may be a long search for a good pharmacist. Thank you for all your thoughts and ideas. Hopefully that will narrow down the search!

jerseyangel Proficient

Best of luck, Shauna. I hope you feel better soon :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

    4. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.