Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac?


hercules25

Recommended Posts

hercules25 Apprentice

Hi Everyone. I am so confused.

Symptoms - nausea, abdom pain, fatigue, vision problems, , tingling in feets and hands, headaches, sore muscles, constipation, bloating,

My CT scans Neg, colonoscopy shows mild inflammation where small intestines and colon meets, MRI scan normal, Gastritis in stomach, etc, etc, LOL

No fever, no bleeding

Normal blood work except:

increased eosinophils (in my blood) my doctor says this indicated to him he thinks my problems are from food allergies but I had the prick food allergy test and negative.

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Other bloodwork that is positive

Saccharomyces cervissiae, IgG 34.9 High (over 25 is Positive)

Saccharomyces cervissiae, IgA 48.5 High (over 25 is Positive)

I have been sick for 13 years and over it. Any advice would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coinkey Apprentice

An easy way to find out if it's gluten related is to go gluten free for a while. I figured out my symptoms were gluten related when I ran out of money (I'm on student loans), which meant I ate all the gluteny products left in my house- leaving me with the potatoes and rice for a week. I felt SO MUCH BETTER after just one week and it finally clicked. I've been gluten free for a month (aside from accidental glutenings and they are HORRIBLE). So, just give it a try and see if anything improves! good luck!

Skylark Collaborator

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

hercules25 Apprentice

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

I am not sure how I would have no damage. Its been 13 years of sick and pain. And a handful of intestinal infections. I am starting to think from the test results it is probably Chrons.

WheatChef Apprentice

I tested negative for IgA-TTg (the main celiac marker) and yet whenever I eat gluten it feels like I have shrapnel dragging through my intestines for a few days. The blood tests don't mean squat compared to how you react to a gluten-free diet.

Marz Enthusiast

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Hi and welcome :)

Sorry to hear you've struggled with this for so long. :( I'd recommend trying a strict gluten free diet - you have nothing to lose but restricting yourself to certain foods for a few weeks. If you notice a huge impovement, you could let your doctor know about this, and maybe see if you still need the meds? I'm surprised your Gastro didn't recommend this after the panel came back positive?

hercules25 Apprentice

Thanks. I am starting gluten free today. I was not sure if there were 2 different IgA and IgG test. One for Celiac and one for IBD. I guess I am just confused. After the blood test he thought ok lets treat you for Chrons but he has his doubts too. I wonder why he did not talk about Celiac. Maybe its both.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,829
    • Most Online (within 30 mins)
      7,748

    Tamekia Phillips
    Newest Member
    Tamekia Phillips
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.