Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac?


hercules25

Recommended Posts

hercules25 Apprentice

Hi Everyone. I am so confused.

Symptoms - nausea, abdom pain, fatigue, vision problems, , tingling in feets and hands, headaches, sore muscles, constipation, bloating,

My CT scans Neg, colonoscopy shows mild inflammation where small intestines and colon meets, MRI scan normal, Gastritis in stomach, etc, etc, LOL

No fever, no bleeding

Normal blood work except:

increased eosinophils (in my blood) my doctor says this indicated to him he thinks my problems are from food allergies but I had the prick food allergy test and negative.

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Other bloodwork that is positive

Saccharomyces cervissiae, IgG 34.9 High (over 25 is Positive)

Saccharomyces cervissiae, IgA 48.5 High (over 25 is Positive)

I have been sick for 13 years and over it. Any advice would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coinkey Apprentice

An easy way to find out if it's gluten related is to go gluten free for a while. I figured out my symptoms were gluten related when I ran out of money (I'm on student loans), which meant I ate all the gluteny products left in my house- leaving me with the potatoes and rice for a week. I felt SO MUCH BETTER after just one week and it finally clicked. I've been gluten free for a month (aside from accidental glutenings and they are HORRIBLE). So, just give it a try and see if anything improves! good luck!

Skylark Collaborator

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

hercules25 Apprentice

Yes, all those symptoms can be caused by gluten intolerance. Negative celiac blood tests suggest you don't have severe villous atrophy (which is good!) but they don't say much about gluten intolerance. The next step is to try the gluten-free diet for a few months. If you feel better, you have your answer.

I am not sure how I would have no damage. Its been 13 years of sick and pain. And a handful of intestinal infections. I am starting to think from the test results it is probably Chrons.

WheatChef Apprentice

I tested negative for IgA-TTg (the main celiac marker) and yet whenever I eat gluten it feels like I have shrapnel dragging through my intestines for a few days. The blood tests don't mean squat compared to how you react to a gluten-free diet.

Marz Enthusiast

Many of my symptoms do and do not match Chrons disease (per the doctor) but after the test below my dr says he has his doubts but he is gonna treat me for Chrons but none of the meds work. I have read on the internet that this test can also indicate Celiac Disease. My primary dr said he did a celiac panel and it was negative. My Gastro order this test and it came back positive.

Hi and welcome :)

Sorry to hear you've struggled with this for so long. :( I'd recommend trying a strict gluten free diet - you have nothing to lose but restricting yourself to certain foods for a few weeks. If you notice a huge impovement, you could let your doctor know about this, and maybe see if you still need the meds? I'm surprised your Gastro didn't recommend this after the panel came back positive?

hercules25 Apprentice

Thanks. I am starting gluten free today. I was not sure if there were 2 different IgA and IgG test. One for Celiac and one for IBD. I guess I am just confused. After the blood test he thought ok lets treat you for Chrons but he has his doubts too. I wonder why he did not talk about Celiac. Maybe its both.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,582
    • Most Online (within 30 mins)
      7,748

    SusieP
    Newest Member
    SusieP
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.