Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Out To Eat With Friends


Googles

Recommended Posts

Googles Community Regular

Hello.

I need some advice. I have friends who are coming to my area to visit. They want to take me out to eat. But we don't know exactly when they will get in. Since they are going to pay, I want to let them decide where to eat. I have only gone out a couple of times since I was diagnosed last year and have moved since then so don't know a lot of the restaurants in my area. I don't think they know my area well. I haven't seen them since I was diagnosed. I know they have a couple of friends with celiac, but I don't know how much they know about it. I do know they are worried about me getting sick from going out to eat, and they don't want that (neither do I). How do I deal with this situation. It is really new. I don't want them to feel restricted. But they are just planning on calling me when they get into town and then picking me up to go out. I don't know what to expect. I haven't seen my friends in a couple of years. Any advice would be really helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gfresh404 Enthusiast

Hello.

I need some advice. I have friends who are coming to my area to visit. They want to take me out to eat. But we don't know exactly when they will get in. Since they are going to pay, I want to let them decide where to eat. I have only gone out a couple of times since I was diagnosed last year and have moved since then so don't know a lot of the restaurants in my area. I don't think they know my area well. I haven't seen them since I was diagnosed. I know they have a couple of friends with celiac, but I don't know how much they know about it. I do know they are worried about me getting sick from going out to eat, and they don't want that (neither do I). How do I deal with this situation. It is really new. I don't want them to feel restricted. But they are just planning on calling me when they get into town and then picking me up to go out. I don't know what to expect. I haven't seen my friends in a couple of years. Any advice would be really helpful.

I think you'd be surprised (as I was) to discover how many restaurants now offer gluten-free menus. I would just simply do some research on the restaurants in your area, find out which ones offer gluten-free menus. And then let your friends choose from those restaurants. If they're worried about you getting sick, I doubt they'd mind at all.

Skylark Collaborator

I think you'd be surprised (as I was) to discover how many restaurants now offer gluten-free menus. I would just simply do some research on the restaurants in your area, find out which ones offer gluten-free menus. And then let your friends choose from those restaurants. If they're worried about you getting sick, I doubt they'd mind at all.

That's exactly what I do when I go out with friends. I suggest a few different places that have something I know I can eat and let them choose.

Tina B Apprentice

I've been doing this since 1990 and eat in all kinds of restaurants and not just here in the US. It's only been in the last few years that restaurants are offering special menus. It doesn't matter, I have not had a problem ordering off of the regular menus. Last week we went out and I had shrimp cocktail appetizer followed by a nice grilled veal chop, baked sweet potato and grilled asparagus. On another occasion things like scallops in bacon, rosemary baked chicken etc. Just a few examples. Look through the menu for grilled or baked. Ask about toppings if not sure. Most restuarants have no problem finding out if a particular dish has a crumb topping or is breaded and will be willing to leave it off. Avoid anything with a sauce because they may have been thickened with flour. also, if you are going to a chain restaurant, many of them offer gluten free info on line. I just typed in )gluten free menus chain restaurants in google and got a whole page of info.

There is soooo much on the regular menus that is OK. Just speak up. I was in a restaraunt on another time and and asked about a topping on a fish dish. The waiter said "is it a gluten thing?" I said yes and he said "let me talk to the chef." He came back with many more entree suggestions that the chef could do gluten free. I don't mind telling waiters it is an allergy (even though it isn't) because if they think you will swell up immediately and pass out in their restaurant they are definitely willing to avoid that :-)

Ahorsesoul Enthusiast

You do not need to worry about what your friends will think. Real friends will not mind, the other kind of friends do not matter.

Do check with the restaurants before your friends come. I suggest you go in during off hours to talk with the owners and chef about what you can eat. Take along one of the free dinning cards to hand them. I always have something in my bag to eat just in-case. I have no problem sitting while other people eat if I get into a situation where there is nothing for me. I'm there for their company so I just enjoy.

For dessert I will ask what brand ice cream they serve. If it's gluten free I order vanilla with Kahlua to make an adult sundae. Many times other people in the group will change their dessert order after hearing what I ordered. If the ice cream isn't gluten free I order coffee and Kahlua. Just make sure your favorite liqueur is tolerated by you. Just having a cup of coffee or tea in front of you will often put other people at ease if you are not eating.

Your attitude about being gluten free will make all the difference. I just will not eat if I think I might get sick. I do not whine about having nothing to eat if that is the way it turns out. I still enjoy the time with my friends.

sandsurfgirl Collaborator

They have other friends with celiac and are worried about you. These friend are keepers!!! You pick the restaurant. They will understand and what's more, they are tired from traveling. They will appreciate you doing the research and just saying "Let's go here."

summerteeth Enthusiast

I have a few restaurants that I know I can go to (2 Asian restaurants, 1 Mexican restaurant, 1 chain, 1 local/American-ized food) so between these restaurants we always have somewhere we can go. If for some reason we want to try something new, I try to find their menu online and then call the restaurant at a non-hectic hour (like 2 in the afternoon on a Thursday or whatever) and ask A LOT of questions (such as: are you familiar with a gluten free diet, do you have anything that can accommodate me, what kind of sauces do you use, can you make a certain dish "naked", etc). Then, I always bring my dining card and mention that I spoke to so and so previously. This usually works for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Googles Community Regular

Thank you all for the advice. I've never eaten out here and only once or twice before I moved. I'm a very poor student so don't go out to eat so it is all really new. You all make this so much easier. I'm just so scared about getting sick because they are coming in the middle of the week and I can't miss class or I fail. I don't have to tell you all how bad it is. I hate food. Thank you all for the advice. You are all amazing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.