Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice?


Simona19

Recommended Posts

Simona19 Collaborator

Is rice save for celiacs? What about the rice milk? I can't eat any milk or milk products (casein)also. Rice milk is my replacement for the real thing. I'm more terrified from not being able to eat milk products than from not being able to eat gluten. I grew up on milk. I always drank it. I miss my slice of bread with butter. Ach... :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvs2eat Collaborator

Is rice save for celiacs? What about the rice milk? I can't eat any milk or milk products (casein)also. Rice milk is my replacement for the real thing. I'm more terrified from not being able to eat milk products than from not being able to eat gluten. I grew up on milk. I always drank it. I miss my slice of bread with butter. Ach... :(

Rice is naturally gluten free and lots of people drink rice milk when dairy becomes a problem. That said... my daughter can tolerate white rice while brown rice makes her ill! There's also almond milk out there.

I'm totally with you on the difficulty in giving up dairy as opposed to gluten. Being gluten free is way easier, I think... because we can make/buy yummy breads, etc... but there is NO substitute for a glass of delicious milk or good cheese and butter.

jststric Contributor

Rice is naturally gluten free and lots of people drink rice milk when dairy becomes a problem. That said... my daughter can tolerate white rice while brown rice makes her ill! There's also almond milk out there.

I'm totally with you on the difficulty in giving up dairy as opposed to gluten. Being gluten free is way easier, I think... because we can make/buy yummy breads, etc... but there is NO substitute for a glass of delicious milk or good cheese and butter.

Very interesting! Because I can't seem to do white rice but can do brown rice...to some degree! It's SO interesting how we all differ so much while being so much alike at the same time! And my rice issue showed up at the same time my gluten issue did, along with nuts, beans, dairy and eggs. Very weird.

ravenwoodglass Mentor

Rice Milk is safe, except for Rice Dream which uses barley in the processing. I like and use the Wegmans brand daily. Hemp milk is also good as are almond milk. I used Ghee for a lot of stuff which is clarified butter and is casien and lactose free. I also use rice a lot but I make sure to rinse it throughly before I cook it. There is also wild rice, which is not really rice but grasses. Lundberg makes some good ones. Do read the label though as if I am not mistaken some of the mixes may have barley, could be wrong about that so check.

Simona19 Collaborator

Rice Milk is safe, except for Rice Dream which uses barley in the processing. I like and use the Wegmans brand daily. Hemp milk is also good as are almond milk. I used Ghee for a lot of stuff which is clarified butter and is casien and lactose free. I also use rice a lot but I make sure to rinse it throughly before I cook it. There is also wild rice, which is not really rice but grasses. Lundberg makes some good ones. Do read the label though as if I am not mistaken some of the mixes may have barley, could be wrong about that so check.

You are telling me that the Rice dream milk isn't safe? You should see my kitchen kabinet. It's full of it. I read somewhere that celiacs should avoid vanila flavor because its made with barley. I have only original. I read the label, and I didn't see anything what would look like gluten.

Ingredients: filtered water, organic brown rice (partially milled), expeller pressed high oleic safflower oil, sea salt.

In the vanila flavor is this:

Ingredients: filtered water, brown rice (partially milled), expeller pressed high oleic safflower oil, tricalcium phosphate, natural vanilla flavor with other natural flavors, sea salt, vitamin A palmitate, vitamin D2, vitamin B12.

Natural vanilla flavor with other natural flavors is the sign that something isn't safe. Don't take the only thing (something similar to milk) that I can drink because I have allergy to nuts and soy milk makes me sick.

ravenwoodglass Mentor

You are telling me that the Rice dream milk isn't safe? You should see my kitchen kabinet. It's full of it. I read somewhere that celiacs should avoid vanila flavor because its made with barley. I have only original. I read the label, and I didn't see anything what would look like gluten.

Ingredients: filtered water, organic brown rice (partially milled), expeller pressed high oleic safflower oil, sea salt.

In the vanila flavor is this:

Ingredients: filtered water, brown rice (partially milled), expeller pressed high oleic safflower oil, tricalcium phosphate, natural vanilla flavor with other natural flavors, sea salt, vitamin A palmitate, vitamin D2, vitamin B12.

Natural vanilla flavor with other natural flavors is the sign that something isn't safe. Don't take the only thing (something similar to milk) that I can drink because I have allergy to nuts and soy milk makes me sick.

Rice Dream is still processed using barley but the company has removed barley from the label and states that the amount is so small it doesn't matter. It does.

Simona19 Collaborator

Rice Dream is still processed using barley but the company has removed barley from the label and states that the amount is so small it doesn't matter. It does.

Thank you so much for the information. I will find some other options. Ach... :(:(:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.