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Mourning The Loss Of Gluten?

firefightersgal

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firefightersgal Apprentice
firefightersgal
Posted

I've only been gluten-free for 2 1/2 days, so I'm very much a newbie. I'm awaiting my blood test results for celiac, but my doctor confirmed that I have dermatitis herpetiformus.

I had no idea that food meant this much to me before. I'm very sad about not being able to eat whatever I want. I was a bit relieved when I went to Walmart today and found that they have many gluten-free things at a more affordable price than the health food stores or another grocery store.

Please tell me this is a normal part of the process. I know that a lot of my health problems will be taken care of by avoiding gluten, and that will surely be a small price to pay.

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kareng Grand Master
kareng
Posted

I felt sad at first and I have never been a huge bread eater. What made it more fun was to find products and food I might not have tried before. We went to a Persian restaurant and it was good. Tried sun flower seed butter & almond butter and loved them. Also, realize that most stuff you eat is gluten-free unless it involves bread. My son who doesn't have to eat gluten-free likes the rice tortillas better then the wheat cause they are sturdier. I eat more fruits and veggies which means my family does too.

Also, crying a few times is encouraged. Being extremely happy and doing a happy dance at WF when you find a gluten-free product you like is also acceptable. :)

precious831 Contributor
precious831
Posted

I've only been gluten-free for 2 1/2 days, so I'm very much a newbie. I'm awaiting my blood test results for celiac, but my doctor confirmed that I have dermatitis herpetiformus.

I had no idea that food meant this much to me before. I'm very sad about not being able to eat whatever I want. I was a bit relieved when I went to Walmart today and found that they have many gluten-free things at a more affordable price than the health food stores or another grocery store.

Please tell me this is a normal part of the process. I know that a lot of my health problems will be taken care of by avoiding gluten, and that will surely be a small price to pay.

Hugs to you and I know the feeling. However after in the beginning I was sort of in denial. I was optimistic, only did recently, last month it all dawned on me. I don't know why, I've been gluten free since last yr but I guess all my emotions just got bottled up. So last month I just exploded and cried for hours. Maybe months and months of people making negative comments to me added to that. I'm better now, I have to avoid dairy, yeast and shellfish.

Anyway, hang in there, it will get better. I think it's good you are going thru this now and not go like the way I did.

Precious

ravenwoodglass Mentor
ravenwoodglass
Posted

You may be going through withdrawl. Many of us do. It is also a big change and not unusual to go through a mourning process. The celiac lifestyle is a big chance and involves so much. You do have celiac no matter what the blood tests results are and it is not unusual for folks with DH to have negative blood tests so don't let your doctor talk you out of the diet if the results are negative. I hope you heal quickly and do feel free to post any questions you may have. Also do check your personal care products for gluten ingredients, shampoos, lotions etc and just in case your doctor didn't mention it avoid iodine for a while also as iodine will keep the antibodies active in the skin.

K8ling Enthusiast
K8ling
Posted

I was a HUGE bread eater. I loved fresh crusty sourdough, my dads homemade noodles. my moms chicken pot pie, my favorite white chocolate birthday cake...All fo that just disappeared. Even cheeseburgers (because really, what's a cheeseburger without a great fresh bun?!). I miss beer and pie and brownies and cake oh wow do I miss cake. Spinach dip in a sourdough bowl...

But I missed being healthy more. I missed spending time with my husband and son, going to baseball games, going on play dates. I missed seeing my friends and not constantly being terrified of embarrassing myself. I missed living without painkillers and anti diarrheal medicine and noting where EVERY. SINGLE. BATHROOM. was located.

I missed my life. If giving up all the food I love means I get my life back? if it means my husband and I can have...quality...time because I am not sick, if it means my hair isn't falling out anymore? I will do it. I will give up anything to be happier and healthier and not have people worry over me all the time. SO yeah it is hard at first but don't look at everything you CAN'T do, look at everything you're gaining- a body that is HEALTHY! A fulfilling life!!

To me, thats a BIG win!

((hugs)) welcome to the club!

Glamour Explorer
Glamour
Posted

I was the biggest baby and went into a depression over bread, pizza, gravy and my normal way of cooking. At first it seemed impossible.

Eating out is the worst and I still get glutened.

I am fine with it now, if that is what it will take to get rid of my rash.

Udi's products, Homemade pizza with glutino or similar frozen crust.

The expense kills me.

Get up to date on all skin, shampoos, cosmetic, dental preparations.

ksymonds84 Enthusiast
ksymonds84
Posted

You may be going through withdrawl. Many of us do. It is also a big change and not unusual to go through a mourning process. The celiac lifestyle is a big chance and involves so much. You do have celiac no matter what the blood tests results are and it is not unusual for folks with DH to have negative blood tests so don't let your doctor talk you out of the diet if the results are negative. I hope you heal quickly and do feel free to post any questions you may have. Also do check your personal care products for gluten ingredients, shampoos, lotions etc and just in case your doctor didn't mention it avoid iodine for a while also as iodine will keep the antibodies active in the skin.

I want to second this, my BIL has HD but did have a negative celiac panel. HD = permanent lifetime gluten free diet. Once he went gluten free, his rash slowly went away (a few weeks) and hasn't had it since (he's four years gluten free). I still miss things and will sometimes have a pity party,as my husband calls them. However; I tell my self that no matter how good it would taste it wouldn't be worth spending the next morning and perhaps afternoon in the bathroom!

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sandsurfgirl Collaborator
sandsurfgirl
Posted

I have so many old threads about this. Losing gluten was like a death to me and I mourned the loss of favorite foods. I mourned the loss of freedom and not being able to just eat out wherever and whenever I wanted. I went through all the stages of grieving and sobbed like a baby over Guinness even though I've never been a big beer drinker (made me feel sick, go figure LOL).

Honor the process you are going through. Allow yourself to grieve. I'm Italian and the other day the crusty bread got to me. I was so sad that gluten free bread isn't like that.

But it gets SO much better and easier. I LOVE feeling good way more than I love that bread. And I have found so many great gluten free foods. The best part is I don't even want all that gluten free junk food very often. Gluten made me crave that type of stuff and now I'm off I eat clean and love it.

I had so many symptoms that were not gut related in addition to my horrible gut problems and I didn't even realize they were due to gluten. Just the other day I realized I don't cough in the morning anymore. I had chronic sinus infections and sinus problems, lung problems and a chronic cough. Every morning I would hack, cough and spit for an hour (so disgusting) before I could get going with my day. It occurred to me I haven't coughed in the morning or any time for that matter, for months now.

Go ahead and mourn. Cry and scream into a pillow. Journal and come here to complain. Get it all out because soon you'll be feeling better and the mourning will go away. This will become your life and you'll find all sorts of great foods to eat and you'll love feeling good.

Remember there is a withdrawal process. It can take time. It took me 5 months to really feel good and many go through a period where they feel sicker for a week or two. So hang in there with the diet!

sandsurfgirl Collaborator
sandsurfgirl
Posted

The bread I love is Gluten Free Pantry basic white bread mix and their french bread and pizza mix. You do have to make them yourself but they are easy and the pizza crust is awesome. A quarter of the price of Udi's.

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    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
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      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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