Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Need A Place To Vent Where You All Understand....

MommyStina

By MommyStina
in Coping with Celiac Disease

Recommended Posts

MommyStina Rookie
MommyStina
Posted

My dear younger sister is getting married this month and for the past six weeks we have been going around about the reception food. My daughter and I both have Celiac and are both members of the wedding party...So my sister tells me that they talked to the caterer about gluten free options and the caterer didn't even know what gluten free was (oh, brother). So they asked what other options were available and were told there was a vegetarian option....which should be fine, right? I tried to tell she and my mom that i need a list of ingredients and to know how they prepare said meal if I am going to eat it. That was six weeks ago. Last week I get a phone call from my darling sister telling me that the buffet shouldn't be a problem because I will be the third person through the line and i can just eat the salad, green bean and potatoes because those should be ok. I am sick of fighting about it and am thinking that my husband will be bringing something for my daughter and I...is that too tacky? My hubby is the only one of us that isn't in the wedding. She says she wants me to be able to enjoy the evening and just have fun.

ok, so let me bring my own food and know that i won't end up sick....

A couple of days ago I mentioned needing to make cake the day before because my daughter will be heartbroken if she can't have cake....my sister was like "you can't eat the cake?"

ARGHHH! Talk about frustrating!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

Ughhh! Has the wedding turned your sister's head to mush or has she always been like this?

Bring your own safe food and bake a gluten free cake! Have a safe and healthy celebration! Say congatulations to the happy couple! Just wait, they might have a Celiac child in the future!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

My dear younger sister is getting married this month and for the past six weeks we have been going around about the reception food. My daughter and I both have Celiac and are both members of the wedding party...So my sister tells me that they talked to the caterer about gluten free options and the caterer didn't even know what gluten free was (oh, brother). So they asked what other options were available and were told there was a vegetarian option....which should be fine, right? I tried to tell she and my mom that i need a list of ingredients and to know how they prepare said meal if I am going to eat it. That was six weeks ago. Last week I get a phone call from my darling sister telling me that the buffet shouldn't be a problem because I will be the third person through the line and i can just eat the salad, green bean and potatoes because those should be ok. I am sick of fighting about it and am thinking that my husband will be bringing something for my daughter and I...is that too tacky? My hubby is the only one of us that isn't in the wedding. She says she wants me to be able to enjoy the evening and just have fun.

ok, so let me bring my own food and know that i won't end up sick....

A couple of days ago I mentioned needing to make cake the day before because my daughter will be heartbroken if she can't have cake....my sister was like "you can't eat the cake?"

ARGHHH! Talk about frustrating!

Oh dear. So sorry for your clueless of you family. I think you should just bring your own food, but try not to draw too much attention to it. Slip off to a dressing room to eat something and then come back. Don't make it obvious that you had to do that. You sister is trying to accommodate you, but it's obvious she and the caterers are clueless so don't trust anything at all. "Vegetarian" food could be the worst if it's anything other than a fresh salad, since a lot of the meat-replacements have wheat in them. Green beans and potatoes could be made with a canned broth containing gluten or soy sauce. Maybe you can get some salad if there are no cro

MommyStina Rookie
MommyStina
Posted
  • Author

Oh dear. So sorry for your clueless of you family. I think you should just bring your own food, but try not to draw too much attention to it. Slip off to a dressing room to eat something and then come back. Don't make it obvious that you had to do that. You sister is trying to accommodate you, but it's obvious she and the caterers are clueless so don't trust anything at all. "Vegetarian" food could be the worst if it's anything other than a fresh salad, since a lot of the meat-replacements have wheat in them. Green beans and potatoes could be made with a canned broth containing gluten or soy sauce. Maybe you can get some salad if there are no cro

Ahorsesoul Enthusiast
Ahorsesoul
Posted

This is an exellent learning experience for your daughter. She will be having a gluten free wedding. So spend the time talking about how the two of you could change things to be gluten free. It is not an eating event. It should not be about the food.

K8ling Enthusiast
K8ling
Posted

UGH so sorry you have to handle this! What a pain in the butt. I would definitely bring your own food. Everyone else can kiss it because it because THEY won't get sick from the food. Do what you have to to make it safe for you and your daughter.

((hugs))!!!

sahm-i-am Apprentice
sahm-i-am
Posted

MommyStina - bring your own food and stay healthy! I'm sorry your family is so caught up in the wedding to not think of others. There are probably many people coming to the wedding that have other allergies and issues, too. I'm sorry for all those, but it is getting harder and harder to accomodate a large group for meals. This past weekend I helped a friend make a gluten free ice cream cake for her daughter's birthday party since 3 of the guests were celiac. We thought we had our bases covered when wouldn't you know it, one of the girls couldn't have the cake because she had a dairy allergy! Darn!

Take care of your daughter and yourself and don't feel bad. I wouldn't even hide it and eat in the dressing room. Grab a plate from the buffet and eat like any other person at the dinner. If you calmly state that you have a gluten intolerance issue and leave it at that you should be fine. That won't cause too much attention to you, your daughter, or the bride. It might even bring awareness to some poor soul who has had tummy troubles for years and is trying to find out why. Most people might not even notice, especially if the meal you bring is similar.

Whatever you do, I hope you have fun and are able to enjoy the day!

Take care,

Wendi

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Ughhh! Has the wedding turned your sister's head to mush or has she always been like this?

Bring your own safe food and bake a gluten free cake! Have a safe and healthy celebration! Say congatulations to the happy couple! Just wait, they might have a Celiac child in the future!

omg LOLOL... your last sentence- im still laughing (maybe i have a twisted sense of humour- but wow- funny)

ravenwoodglass Mentor
ravenwoodglass
Posted

Take care of your daughter and yourself and don't feel bad. I wouldn't even hide it and eat in the dressing room. Grab a plate from the buffet and eat like any other person at the dinner. If you calmly state that you have a gluten intolerance issue and leave it at that you should be fine. That won't cause too much attention to you, your daughter, or the bride. It might even bring awareness to some poor soul who has had tummy troubles for years and is trying to find out why. Most people might not even notice, especially if the meal you bring is similar.

Whatever you do, I hope you have fun and are able to enjoy the day!

Take care,

Wendi

My DD is getting married soon (she is chosing to ignore her celiac diagnosis and there is nothing I can do about it) and that will be the option I will likely do since I will have to drive 6 hours the next day to get home. My DD is very fearful that even though the caterer says they can make me a safe meal that it really won't be. I'll play it by ear but make sure I bring my own food. I decided I will let them give me a piece of cake, I'll wrap it in plastic and bring it home as a momento but I sure won't eat it.

The event is about celebrating the joining of two people who love each other not about the food. I fully intend to enjoy myself even if I have to fend for myself foodwise and I hope the OP does also.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

Ravenwoodglass,

I always thought it would be nice to dry out a piece of the wedding cake for a shadow box. Just not sure if it would really dry without molding. I'm sure the frosting would dry ok.

ravenwoodglass Mentor
ravenwoodglass
Posted

Ravenwoodglass,

I always thought it would be nice to dry out a piece of the wedding cake for a shadow box. Just not sure if it would really dry without molding. I'm sure the frosting would dry ok.

I am thinking about putting in a box with some silica jel. I don't know if it will work but since I have seen old shadow box type things with cake in them I figure I will give it a try. I already have some lavender dryed and will see if I can get out of the reception with a floral centerpiece to add to it. She is having a cake like the old fashioned ones where everyone brought a single layer from home and piled them up, where the tradition of the multiple layers came from, and it should slice really pretty. I know she is useing white, chocolate, and I think spice and carrot. I can't wait to see it but do wish I could eat it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.