Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened, Dammit

Skylark

By Skylark
in Coping with Celiac Disease

Recommended Posts

Skylark Collaborator
Skylark
Posted

I went to a catered party tonight. I had talked to the chef ahead of time, he was an expert in gluten-free, and had set me up a separate gluten-free meal prepared free of CC.

Of course it got served to someone else. The head of the catering company was not on-site. The waitress goes to the kitchen, and I am assured the salmon in butter sauce, potatoes, root vegetables and some sort of beef in a light sauce are not made with any gluten ingredients. I ate a little food and something warned me to stop. A tingle, a second sense, I don't know. I realized there was a little menu card on the table (duh...hadn't looked before) and it says Guinness Braised Beef. :angry:

I call the waitress back, she goes to the kitchen, and sure enough Guinness is an ingredient in the beef. Two came back to tell me. I looked stricken, they asked if I was going to be OK, and I said probably not. I'd probably be sick for about two days. They asked if there was anything they could do and I mentioned that Pepto Bismol helps. Not 20 minutes later someone came over to the table with a small bottle of Pepto. Someone had driven to the store to get me some! (It's the one thing that calms my stomach.)

Obviously this doesn't undo the problem and the head of the catering company will get a call and the story of all the miscommunication. I have to wait a day or two to cool off first. One of the people running the event was his daughter-in-law, who got a bit of an education about celiac. She was very kind to me and very embarassed and I can tell you for sure that she's never serving something with a beer ingredient to a celiac again. We talked a little about hidden gluten and how hard it is to avoid.

I'm praying that a couple veggies in a tiny bit of Guinness sauce won't have me sick for days. At least I got some Pepto fast, which always helps me. I won't know for a couple more hours and can't tell if my stomachache now is just anxiety. The asthma certainly isn't. I guess I must be slightly gluten-allergic as well as intolerant.

Keep your fingers crossed for me. I don't really need anything other than a sympathetic audience for my tale. So frustrating!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

sending good thoughts for a fast recovery your way.

vbecton Explorer
vbecton
Posted

Who the heck got your gluten-free meal? Man, after all that planning you did to ensure your meal was gluten-free and free of CC, I would be ticked too! Hope you get to feeling better :)

Back in the day, when I was vegan, I was on a long flight to Australia. So, I called ahead to make sure they would be serving all vegan meals to me. No problem! When the flight took off, meal #1 was about to be served. They always deliver the special meals 1st. So, I was on the lookout for mine and saw the big black lettering VEGAN. I knew it was mine because there was only one. A man raised his hand and they just gave him MY meal. I nearly came unglued. I walked up to the man, who had just opened the meal and said, "Excuse me sir, are you a vegan? (he looked puzzled). This meal was specifically prepared for me and I am a vegan and consume zero animal products. I realize you might be hungry and ready to eat, but I'm sure you would prefer something of the meaty nature. Now, may I have my meal back? (puzzled), YES." That man just took my meal because he couldn't wait for the silly cart to come down the ailse! I hope that wasn't your case because as mad as I was about that, I would be 10x more mad about my gluten-free meal being snatched!!!!

weluvgators Explorer
weluvgators
Posted

What a bummer! Thanks for sharing your experience. It helps to think through these things sometimes. And, YEAH for you - you *knew* to stop eating!! It is hardly consolation after getting glutened, but what a relief that you were able to prevent further exposure.

And what a bummer about the asthma. Our family has combinations of celiac and gluten allergy - absolutely NO FUN! And I get really pissy/anxious when I cannot breathe well, and I find it exhausting. I hope you feel better soon!!

Skylark Collaborator
Skylark
Posted
  • Author

Thanks for the kind thoughts. I'm up this morning bloated, queasy, and sneezing with asthma and a runny nose. I had a bunch of bronchitis and asthma trouble this spring and wrote it off to seasonal allergies. I knew I was getting more sensitive to gluten and it looks like the gluten has become an asthma trigger.

In a way that's good news. If I'm ultra-careful maybe I can keep the asthma at bay along with the GI trouble.

Marz Enthusiast
Marz
Posted

Ah crap, so sorry you got glutened Skylark :( Especially frustrating when you go to so much trouble to stay gluten-free and then someone else gets your meal D:

Hope you feel better soon...

And wow, 6th sense regarding gluten?? :D

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I call the waitress back, she goes to the kitchen, and sure enough Guinness is an ingredient in the beef. Two came back to tell me. I looked stricken, they asked if I was going to be OK, and I said probably not. I'd probably be sick for about two days. They asked if there was anything they could do and I mentioned that Pepto Bismol helps. Not 20 minutes later someone came over to the table with a small bottle of Pepto. Someone had driven to the store to get me some! (It's the one thing that calms my stomach

Of course they drove to a store to get the Pepto. They are afraid you might sue them. Glad you are following up on this. The more people hear us complain the sooner we might be safe to eat out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted

Of course they drove to a store to get the Pepto. They are afraid you might sue them. Glad you are following up on this. The more people hear us complain the sooner we might be safe to eat out.

Hi Skylark, I am so sorry you are having such a painful and frustrating experience like this. Something similar happened to me a couple of years back at a supposedly vetted gluten-free restaurant that forgot about non gluten-free soy sauce being a problem. I quickly realized something was up (that 6th sense?) and asked about it -- after I had had a couple of bites. They got me Pepto too and some fresh pineapple and both items did help. Thanks for the reminder!

I unfortunately just glutened myself last night with what appears to be CC from carob powder in my birthday cake I made for myself! Aach! I just didn't realize. For me these days I not longer get D generally. Instead I usually get a migraine and my sinuses plug on my left side--so yes any kind of sinus problem can be way aggravated by gluten.

My head isn't as bad today as it is sometimes. My boyfriend also got a bad hit off it last night (as we both did), though today he's OK. Both of us slept longer than usual however.

The good news is that the spice sunflower meal zucchini cake otherwise turned out to be very tasty. Its sugar free since I sweetened it with stevia. I can make another without the carob...and maybe this time I will eliminate the eggs too given I am probably extra sensitive today.

Am going to have some detox tea to help my head now along with marshmallow root etc.

Hope both of us feel better soon Skylark!

Bea

kayo Explorer
kayo
Posted

Sorry you got gluten after such careful preparation. This makes me wonder if we should ask that our names be put on our special meals so they aren't taken by others. It's possible someone else at the event asked for a gluten free meal at the event and the server figured that was the person. Or like the airline story, someone just took it. I guess it's not enough to say gluten free or vegan but specifically, made for so&so.

txplowgirl Enthusiast
txplowgirl
Posted

Sorry you're feeling bad Skylark. Hang in there. I didn't get glutened but I ate some potato starch and whew, it got me.

So we can both be miserable together. ;)

orco Newbie
orco
Posted

Sorry to hear about that Skylark. I know what you mean by the 'Gluten Sense' thing

bluebonnet Explorer
bluebonnet
Posted

just now seeing this post ... that really stinks. i didn't realize pepto bismal would help by taking it so quickly. well, atleast i hope it did this time for ya! hope by now you are feeling better. :)

Adrienne2823 Newbie
Adrienne2823
Posted

Sorry to hear you got glutened...I did too last night. It was the first time I ate at someone elses home. I won't tell my mother in law because she was wonderful and went out of her way to make me gluten-free brownies and bought some gluten-free rice...I am not sure how it happened (it could have been how they prepared/marinated the meat or what she used as ingredients in the gluten-free brownies).

It has been hard but now I know for the most part I either need to eat before I go or be there to help prepare the food to make sure I do not get sick. Immodium is my lifesaver and a bunch of water...just have to try to make it through the day of work today.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mmoc
      - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results.
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to...
    3. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies...
    4. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted...
    5. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Have you had your 25(OH)D vitamin D blood level checked? Vitamin D deficiency occurs in 40 - 60% of western societies. It is even more common in Celiac Disease because of malabsorption syndrome. Appropriate intake of vitamin D or skin production from sun, increases the absorbtion rate of Calcium.and phosphorus, two minerals crucial to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748
    LizzieE
    Newest Member
    LizzieE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      Gluten free nuts

      By Aretaeus Cappadocia · Posted

      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.